Health

Who is the enemy?

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One of the most valuable lessons I’ve learned about dealing with conflict in a relationship is the idea of standing shoulder to shoulder and attacking the problem together instead of face to face and attacking one another. If we all applied this principle to the fight against Covid-19, I think we’d have a much better chance of successfully containing the spread and minimizing the long term effects of this dreadful pandemic.

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The first step in fighting this battle together is identifying who or what is the enemy and perhaps even more important, who is NOT the enemy. The enemy is not the government, the public health authorities, or Bill Gates. The enemy is not 5G and it certainly isn’t your Facebook friend who thinks that Covid-19 is a hoax!

The enemy is a virus; a submicroscopic infectious agent that invades living cells and uses their chemical machinery to stay alive and to replicate itself. It doesn’t care whether or not we believe it’s real. It doesn’t care what our political views are, whether we’re young, old, or in-between, or if we’re good at math. It just needs an available host.

We can exhaust ourselves arguing about whether or not we should be wearing face masks and using hand sanitizer. We can wave protest signs and refuse to follow recommendations and requirements. We can spread rumours and accuse one another of all sorts of heinous things, but the virus doesn’t care! As long as we’re standing face to face and fighting with one another, it will simply continue its insidious attack. It will kill more of our elderly and vulnerable. Some of its victims will get off easy, but others will suffer long term physical and mental harm.

OR we can stop attacking one another and stand shoulder to shoulder against a common enemy. We can admit that we’re all in this together and that there are no quick fixes or easy answers. We can temporarily put aside our personal preferences and stop rebelling against every measure that is put in place to try to protect us.

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NET Cancer Day 2020

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Once again, today is Worldwide NET Cancer Day, a day set aside to try to increase awareness of neuroendocrine (NET) cancers and to promote improved diagnostics, treatments, information, care and research. The focus of this year’s campaign is to highlight the challenges that patients and clinicians face around the early diagnosis of NETs.

A recent worldwide survey of NET patients showed that only 27% of them received a correct diagnosis the first time around. 44% of us, myself included, were misdiagnosed for several years before the correct source of our symptoms was discovered, often by accident. Globally, it has been taking 5 years on average from initial symptoms to diagnosis; 6 years here in North America which was also my experience.

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I’m part of the 36% who were initially diagnosed with gastritis, inflammation of the stomach lining. It was a GP who made that diagnosis based only on my symptom, a gnawing abdominal ache. I don’t fault him for that as NET cancer usually presents symptoms that mimic much more common ailments. Had we done a colonoscopy, however, the tiny tumour growing in my cecum would likely have been found before the cancer spread. It was several years later, when unusual spots on my liver showed up on a completely unrelated ultrasound, that suspicions were raised and I eventually learned that I had Stage 4 cancer! By that time, my symptoms had grown to include chronic diarrhea as well as occasional flushing and episodes of tachycardia (extremely rapid heart rate), all common characteristics of NET cancer.

There are 3 As that would significantly improve the outcome for many NET patients:

  1.  Awareness of symptoms  –  We need health care professionals at every level to be aware of this complex disease and to be able to recognize its symptoms. My family physician had been practicing medicine for approximately 20 years when I was diagnosed, but I was his first NET patient and he knew very little about it. I’ll never forget the locum who argued with me that neuroendocrine tumours aren’t malignant (some aren’t) and that I didn’t actually have cancer at all! 
  2.  Availability of diagnostic tools  –  The most precise tool for detecting NET cancer is the Gallium 68 PET scan, but I have never had one. In fact, only 18% of the surveyed patients worldwide have. It isn’t available at many cancer treatment centres. For the past few years, there’s been talk of one coming to the Cross Cancer Institute where I receive all my care, but as far as I know it hasn’t happened yet. 
  3.  Access to NET specialists  –  In the survey mentioned above, 24% of the patients had not even heard of a NET cancer specialist and many others travel long distances to see one. 

So, every year on November 10, and whenever I have the opportunity in between, I’ll do my bit to raise awareness, never giving up hope that eventually better diagnostics and treatments will be available to all NET patients and that ultimately a cure will be found!

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Hiking in November!

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We usually have snow to stay by the end of October, but as we all know by now, 2020 is a rule breaker! Though we had some unusually cold weather and a few flurries in the latter half of October, when we turned the calendar page to November, the weather took an amazing turn. The average daytime temperature at this time of year is barely above 0ºC (32ºF), so when the forecast said that today’s high would be 18ºC (64ºF), we decided to go hiking! Hiking in central Alberta in November? Unheard of!

This morning, we headed for the village of Donalda, about an hour from home. The last time we hiked in that area was over five years ago. It was already 18ºC when we arrived and we hadn’t been hiking long when we started peeling off layers!

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We started off following the woodland trail that leaves from one corner of the village. With all the leaves on the ground and the trees bare, there was a peaceful beauty about the place. Before long, we passed through a gate that took us onto 129 acres of private land that’s used for grazing cattle. Signs tell hikers that they’re welcome to explore anywhere within the area. We had the option of staying on the trail along the rim of the massive coulee, the northernmost part of the Canadian Badlands, but instead we turned toward the valley and wandered wherever our feet took us. Up, down, and around the bluffs we went seeking out interesting formations and views.

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Though there weren’t any cattle grazing in the area, we had to watch our step as there was plenty of evidence that they had been there! We did see some deer. 

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The weather is so warm this week that the golf course, which has been closed since October 12, has reopened with golfers playing on temporary greens. Richard had Platelet Rich Plasma (PRP) injections in both his shoulders a week ago to promote healing of some old sports injuries, so he can’t do much with his arms right now. Golfing is out, but he certainly could hike!

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I have no idea how far we hiked, but we were out for about three hours. We enjoyed a picnic lunch overlooking the valley.  

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Eventually, we rejoined the woodland trail at it’s far end and made our way back to our starting point. Along the way, we passed this unusual sign on a fence post. We have no idea what it was trying to tell us, but it seemed very appropriate for this most unusual November day!

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Are you anti pantie?

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I’ve started seeing more and more articles posted on social media with titles like this one. Medical Doctor Warns that “Bacterial Pneumonias Are on the Rise” from Mask Wearing. What these articles actually talk about is the danger of wearing contaminated face masks; either repeatedly wearing the same disposable mask or wearing a cloth mask without changing and washing it regularly.

Interestingly, I’ve never seen anyone post an article warning us to stop wearing underwear! What? What does that have to do with anything? Quite a lot, actually.

Davidson Hamer, infectious disease specialist and professor of global health and medicine at Boston University, says that while there have actually been no documented cases of masks leading to fungal or bacterial infections of the upper airway or the lower airway as in pneumonia, bacterial growth could possibly occur if someone wore a mask that was contaminated. “Theoretically, it could happen, but it’s highly unlikely with just typical mask use.” Anne Monroe, an internal medicine physician and epidemiologist at George Washington University’s Milken Institute School of Public Health agrees “In terms of mask use, it is important to follow general sanitation guidelines,” she says.

Exactly the same thing is true of underwear. For both men and women, failing to wear clean underwear every day can be problematic. For those of us with vaginas, moisture build up in the nether regions is normal. It’s common knowledge that lack of cleanliness in this area can lead to rashes and infection. While men may not be quite as susceptible, they too can get yeast and urinary tract infections.

So why are people advocating that we stop wearing facial masks, but not that we stop wearing underwear? The articles that I’ve seen are often posted by anti maskers, those who would have us stop wearing facial coverings altogether as opposed to simply following good hygiene. In other words, they’d have us throw the baby out with the bathwater! My question for them would be, are you also anti pantie?

Just treat your mask like your underwear. Wear a clean one every day!

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A Covid Thanksgiving

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If you use social media at all, I’m sure you’ve seen a myriad of memes and posts bemoaning the somewhat bizarre year that 2020 has turned out to be.

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Then there are the “If 2020…” memes. At least some of them add a bit of humour to our current predicament. 

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But has it really been that bad? I see posts from people claiming that 2020 has been the worst year of their life. If that’s the case, I’m thinking that perhaps they’re very young or maybe they’ve just lived a charmed life. I can think of at least three years in my life that have been worse than this one, but that’s not what I want to write about today.

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Today is Canadian Thanksgiving, traditionally a time for families to gather and enjoy a festive meal together. For many of us, it’s a very different and much quieter celebration this year. Here in Canada, we’re experiencing a second wave and many of the new Covid-19 cases have been the result of large family gatherings. Though we live in a rural area where the numbers have remained relatively low, all of our children and grandchildren live in urban settings where that is not the case. As a result, we’ve chosen not to get together to celebrate Thanksgiving this year. In spite of the fact that hubby and I are alone this holiday weekend, I cooked a tiny (8.5 pound) turkey with all the trimmings yesterday. It may be far from an ordinary year, but that’s no reason to completely forgo those things that bring us joy!

Without the happy sounds of children and no one gathered around a board game on the kitchen table, the house is very quiet, but that doesn’t mean that I don’t have much to be thankful for. In the solitude of this unusual Thanksgiving weekend, I’ve had much opportunity to contemplate how very blessed we are. Even in the midst of a pandemic such as we’ve never experienced before, there is so much to give thanks for. I’m reminded of one of my favourite passages of scripture, Philippians 4:6-7.

“Do not be anxious about anything, but in every situation, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.” (emphasis my own)

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Though the list of things that I’m thankful for is very long, this image pretty much sums it up for me. In spite of two cancers and several other diagnoses, I feel great and I’m able to live a full and active life. I have access to excellent, free health care. I have a comfortable home that’s in the process of undergoing a complete facelift. My family may be scattered today, but I’m so proud of the adults that my children have become and the spouses they’ve chosen. Of course, I’m also head over heels in love with the seven grandchildren that they’ve added to the clan. As sad as it was to lose my elderly father earlier this year, I’m grateful that he went before the pandemic struck, that we were able to be with him in his final hours, and that we could celebrate his life together with friends and family. And where would we be without friends? I’m so thankful for the ones that God has blessed me with, both far and near. Finally, there’s food. Along with safe, clean drinking water, food is something that we tend to take for granted, but I’m mindful of the fact that, while I can cook a whole turkey for two people, there are many in this world who don’t know where their next meal is coming from and who may be going to bed hungry tonight. No, for most of us, 2020 has not been that bad! 

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Just wear the mask!

/ edebock / 11 Comments

I’ve avoided wading into the wearing of masks fray because I know that it’s controversial and has the potential to erupt into another nasty conversation on Facebook similar to the one provoked by my “redneck thinking” post back in April, but I can’t stay silent any longer. I am absolutely mind boggled that this is even an area of debate! Are people so stressed and so unhappy these days that they will jump at any reason to protest?

In an attempt to understand this controversy, we need to back up several months. In the very early days of the Covid-19 pandemic, public health officials thought that the virus was primarily transmitted by people touching contaminated surfaces and then their faces. Frequent hand washing, the use of hand sanitizers, and refraining from touching your face were thought to be the best ways to prevent its spread. At first, both the World Health Organization (WHO) and the Centers for Disease Control and Prevention (CDC) said that wearing masks was unnecessary. As time progressed, however, and more was learned about this new virus, it became clear that this early thinking was inaccurate. Instead, researchers now realize that Covid-19 is primarily spread by inhaling virus-laden droplets expelled by an infected person. As time passed and studies were conducted, it also became clear that people can transmit the virus before they begin to experience symptoms and, in fact, that some people who remain asymptomatic are actually contagious. These factors explain the more recent recommendation that people wear masks in public, especially in situations where it’s difficult to maintain distance between one another. Perhaps changing advice midstream led to confusion and fuelled the anti mask movement, but I think that there are also other reasons why it’s become necessary for many businesses and municipalities to make wearing masks in public spaces mandatory.

Denial is clearly at the root of some people’s refusal. In spite of all the information to the contrary, there are still those who refuse to accept the severity of this worldwide plague. Conspiracy theories abound and negative voices question the research and the data that it presents.

At the individual level, some people protest that their personal rights and freedoms are being infringed upon when they’re told that they must cover their mouths and noses. They selfishly choose to put personal comfort above the welfare of others. We all know that wearing a mask isn’t particularly comfortable. If you’re a glasses wearer, as I am, there’s the added frustration of fogged up lenses, although I’ve discovered that folding a Kleenex (tissue) into a strip and placing it across the bridge of my nose under the top edge of the mask helps a lot. I don’t like wearing a mask any more than anyone else does, but I wear one because I don’t walk this planet alone and I don’t want to take a chance on unknowingly passing a deadly virus to someone else, particularly one of the more vulnerable amongst us. As my specialist put it so succinctly when we discussed the topic at my appointment yesterday, “In our culture, too many people think only about their rights and freedoms while forgetting that we also have responsibilities.” In Genesis 4:1-12 and elsewhere throughout scripture, God answers the question, “Am I my brother’s keeper?” with a resounding YES! Jesus said that the greatest commandment is to “Love the Lord your God with all your heart and with all your soul and with all your mind.” The second is to “Love your neighbour as yourself.” In the days of Covid-19, loving your neighbour often involves wearing a mask!

Some of the excuses that I’ve heard for not wearing masks are absolutely ludicrous.

  • Wearing masks causes oxygen deprivation or carbon dioxide poisoning or similarly, rebreathing dirty moist air will make me sick. In reality, the fibres that cloth and surgical type masks are made from aren’t dense enough to block the exchange of gases and air can also get in around the edges. The only time that this excuse might be considered legitimate would be during strenuous exercise. If this is a concern, exercise outdoors instead of in a gym and maintain distance from people who aren’t part of your household or “bubble”.
  • The mask prevents communication. Sound passes easily through masks! This is only a legitimate concern for those who are hearing impaired and who depend on lip reading. Masks with clear panels are available for those who interact regularly with someone for whom this is an actual problem.
  • Masks hide our beautiful smiles. The world will survive without your beautiful smile until this pandemic eventually comes to an end!

And then there’s the one that I’ve seen circulating around on Facebook since our province announced that masks will be required in schools for students from grade 4 to 12. Masks make children unidentifiable and assist in human trafficking! Now that’s really grasping at straws! There is absolutely no question that human trafficking is an incredibly heinous crime and far more prevalent that most people are aware of or willing to admit, but to make the wearing of masks about human trafficking is a ridiculous stretch and an insult to intelligence.

Perhaps living in Asian countries where wearing a mask when you have a simple sniffle has long been a common courtesy has influenced my thinking on this topic, but I’m truly astonished by the tempest that this has created here in North America. As more businesses and municipalities make masks mandatory, the furor increases, but there’s really one simple answer for those who don’t want to comply. If you choose not to wear a mask, stay home!

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and BACK!

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If you’ve been reading my blog recently, you already know that I’m participating in a fundraiser called HOOFING IT Across Canada. We, the Canadian neuroendocrine cancer (NETS) community, are working together in an effort to raise $100,000 for much needed neuroendocrine cancer research. Participants have been racking up as many kilometres as we can by walking, hiking, kayaking, swimming, cycling, roller-blading, or any other forward moving activity that we can think of and tracking our individual distances. Our original goal was to record 5,514 kilometres, the distance from Newfoundland and Labrador to the Yukon, but I am very proud to announce that in less than two weeks, we’ve already surpassed 4000 km! As a result, we have a brand new goal. We’re not just HOOFING IT Across Canada, we’re HOOFING IT Across Canada and BACK! That’s right! Our new goal is 11,028 km.

Personally, I’ve walked over 33 km since July 1st. While that’s a tiny fraction of the distance that’s been covered (it helps that we have some long distance cyclists and runners in the group), I’m one third of the way to reaching my personal goal of 100 km. At this rate, I may have to increase my goal too!

Of course, the main purpose of the HOOFING IT Across Canada campaign is to raise funds for research. Once rare, NETS is now the fastest growing class of cancers worldwide, accounting for approximately 2% of all cancers. We need to know why this is. We need safer and more effective methods to prevent, detect, diagnose, treat, and ultimately cure this disease. Research is the key to transforming and saving lives and research takes money.

HOOFING IT is the easy part. Asking people for money is more difficult, especially in today’s economy when many are facing financial hardship and don’t have extra to give. By last night, however, we had raised over $20,000 and were 20% of the way to meeting our goal. I’m extremely grateful to those who have made donations on my behalf. At $875, I’m almost 60% of the way to meeting my personal goal of $1500. If you would like to add to this amount, please click here to visit my fundraising page. No amount is too small. Every dollar brings us one step closer to finding the answers we’re looking for.

In the meantime, I’m off to the city tomorrow for CT scans to see if there’s been any change to my NETS tumours over the past six months. I won’t be meeting with the doctor and finding out the results until August 6, so I’ll try to provide an update after that.

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Walking in the rain

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The past few days have been sunny and warm, just the way summer should be, but today has been mostly cool and cloudy again. I really didn’t feel like putting on my zebra stripes and going for a walk. Cancer’s a bit like that. I don’t only have it on days when I feel like it! I wake up with it every morning and I go to bed with it every night. These days, I’m not just walking because I want to. I’m walking to increase awareness of neuroendocrine cancer (NETS) and to raise funds for research.

As I walked, I thought about how fortunate I am to be able to do this. I don’t live where I’m able to attend support group meetings nor do I really feel that I need them, but I am part of several online groups for patients and caregivers. Every day I hear from people whose NETS stories are so much worse than mine. I walk for them as well as for myself. I walk in memory of those we’ve lost and I walk for those who will be diagnosed with this increasingly common type of cancer in the future. I walk in hope that money for research will eventually result in a cure.

I was walking in the exact opposite corner of our small town when it started to rain! (I think I need to find a zebra striped umbrella.) There was no way that I could suddenly transport myself back to the comfort of my warm, dry house. I had to keep walking. Cancer’s like that too. When you’re diagnosed, you suddenly find yourself a long way outside your comfort zone and there’s no going back. I treat my life with cancer a lot like a walk. I just keep putting one foot in front of the other and moving forward. I refuse to stand around in the rain feeling sorry for myself!

When I walk through the corridors of the cancer clinic as I’ll do again later this month, I can’t help feeling like I don’t really belong there. I look and feel so well compared to most of the people around me. It’s called “survivor’s guilt” and it’s common to those of us who have or are surviving cancer. We can’t help asking “why them?” and “why not me?” I only know that when all this started, God promised to take care of me and, while it hasn’t always been smooth sailing, He’s been doing a great job of it ever since. So here I am, feeling strong and able to HOOF IT Across Canada!

Since the campaign started on July 1, I’ve logged 12.96 kilometres. Reaching my goal of 100 km by September 7 should be no problem, but far more important is the money that I raise for NETS cancer research. As a Canada-wide community, we hope to raise $100,000. I set my personal goal at $1500 and at $550, I’m 36% of the way! Thank you so very much to those of you who have already donated. I’ll try not to bore you with too many updates! For those who haven’t donated yet and who would like to, you can find my personal fundraising page here.

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Chinos

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LogoI finally went clothes shopping this week! To be more truthful, we were in the city for an appointment and I went into one clothing store. Just one!

After weeding several things out of my closet that should never have made the cut when I did my seasonal closet switch last fall, I identified a couple of significant holes in my summer wardrobe. As I mentioned two Friday’s ago, I have lots to wear when the weather is hot, but where we live I need things that are suitable for cooler summer days like the ones we’ve been having recently. One thing that I clearly needed was a couple of pairs of pants that would be warmer than my shorts and capris, but cooler than jeans.

Though I don’t shop for clothes online, the internet is a great place to do some scouting, especially during these days of Covid-19 when I don’t want to spend a lot of time browsing. I’d much prefer to go into a store, buy what I want, and leave again without lingering. When I knew that we’d be going to the city, I checked out the Mark’s website in advance and decided that their chinos might be just what I was looking for. Chinos are a nice middle ground between dress pants and jeans for both men and women.

The first thing I did when I entered the store was check to see if the fitting rooms were open. If I couldn’t try the pants on, there’d be no point in me even looking at them. Thankfully, a limited number of them were in use and there weren’t a lot of customers in the store so I didn’t even have to wait in line.

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Finding pants that fit well is often a struggle for me, but Mark’s slim-fitting, tapered leg chinos were perfect for my boyish figure. The toughest decision was which of the several colours to choose! I settled on two pairs; one in a light tan called Stone and the other in a dark Olive. Both will be very versatile. I’m showing you the light pair today, but I’m sure that the others will show up on the blog sometime soon. The bottom hem is meant to be rolled to ankle length, but they can also be worn down.

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I didn’t realize until after we’d finished taking the pictures that I’d forgotten to put on any lipstick, so this is my au naturel, at home look! Actually, I’d just got back from having several vials of blood taken at the local hospital, so perhaps I was even a bit paler than usual!

Being a word nerd, I couldn’t help doing a bit of research to find out how chinos got their name and what it actually meant. Apparently, the word was first used to describe khaki coloured military trousers that were worn during the Spanish American war of 1898. They were made from a cotton twill fabric that was sourced from China, so the name came from the fact that Chino is the Spanish word for Chinese. Thankfully, my new pants, which are made of a stretch cotton blend, were not made in China as one of my fashion goals for this year is to avoid buying Chinese products as much as possible. Of course, I have no idea where the fabric came from. As I’ve mentioned before, being a truly ethical shopper is very difficult, but I try.

It’s Canada Day and Day 1 of HOOFING IT Across Canada!

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Today is Canada Day, the 153rd anniversary of our country’s birth as a nation. It’s also Day 1 of the HOOFING IT Across Canada fundraising campaign for neuroendocrine cancer research. Today I begin counting the kilometres that I walk and/or hike between now and September 7th. Joining with participants from the neuroendocrine cancer (NETS) community across the country, we hope to record 5,514 kilometres, the distance from Newfoundland and Labrador to the Yukon! We also hope to raise $100,000!

I’m very grateful to those who made donations following Saturday’s post. Thanks to their generosity, I’ve already raised slightly more than 20% of my goal. There’s still a long way to go though!

If you haven’t already, I hope that you’ll consider going to my fundraising page and making a donation. No amount is too small! Every cent received will go toward neuroendocrine cancer research and hopefully bring us closer to understanding what causes this disease and to ultimately finding a cure.

I’ve been asked several questions regarding making a donation, so I’ll answer those here:

  1. What methods of payment are accepted?  You can make your donation using a credit card (VISA, MasterCard or American Express), PayPal, or a CanadaHelps gift card. 
  2. Can I donate from outside Canada?  Yes! Absolutely! Research conducted in Canada will benefit patients around the world. Many of my readers live in the US or elsewhere and some have already made donations. Your credit card statement will automatically show the value of your donation in your local currency.
  3. Will I receive a tax receipt?  Again, the answer is yes. When you make a donation, you’ll be asked for your email address and a tax receipt will be sent to that address immediately. Only Canadian tax receipts are issued however, so if you’re donating from elsewhere, you might want to check your country’s income tax policies to see whether or not you can use a Canadian tax receipt when you file your tax return.
  4. Can my business make a donation?  Yes. Simply select the “Corporate/Group” option under Donor Type when filling out the Donor and Tax Receipt Information section.

I hope that helps. If you have any other questions, please let me know and I’ll do my best to answer them. In the meantime, I’m off to watch a Canada Day parade later this morning and then it’s time to start walking!