Cancer metaphors and an update

Patients, caregivers, fundraisers, and even medical professionals use a variety of different metaphors to describe life with cancer.

From day one, I’ve referred to my cancer experience as a journey. As a seasoned traveller, when I was diagnosed I felt as if I was embarking on a trip into the unknown. It’s been a long and tumultuous trip, but the metaphor is one that still works for me. Some patients, however, are bothered by it believing that a journey should always be fun and something that you have control over.

An even more controversial metaphor is the one that refers to life with cancer as a battle. Although it’s very common, many people take exception to using the vocabulary of violence at a time when patients are at their most vulnerable. Within the language of winning and losing, there’s also the uncomfortable implication that those who’ve died of cancer are losers and that maybe if we just fight hard enough we can win. While I realize that there are limitations to any metaphor, I think that the battle metaphor can be empowering. I am in a fight for my life and cancer is the enemy.

Thankfully, no one fights cancer alone and that’s also where the battle metaphor works well. My closest ally is my husband who accompanies me to every appointment and is involved in every decision regarding my care. An army of skilled medical professionals with a vast array of formidable weaponry (chemical, biological, and nuclear) at their disposal direct my care and they are backed up by a battalion of prayer warriors around the world. Ultimately, the commander in chief, the only one who knows the final outcome, is the Lord Himself. As we sang in church yesterday,

So when I fight, I’ll fight on my kneesWith my hands lifted highOh God, the battle belongs to YouAnd every fear I lay at Your feetI’ll sing through the nightOh God, the battle belongs to You

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While my life with cancer is both a journey and a battle, at times it’s also a roller coaster and that brings me to the latest news that I want to share with you. After several years of stability, things began to change about 18 months ago. The first sign that my cancer was becoming active again were some changes in lab results. Two markers that are of particular significance for neuroendocrine cancer (NETS) patients had been gradually climbing and were now flagged as being higher than the normal range. Suddenly, the roller coaster went over the top and I felt like I was falling! More frequent surveillance eventually showed significant growth to the largest tumour on my liver. That led to the Therasphere treatment that I had in March of this year. The roller coaster dropped again when a post treatment CT scan showed what appeared to be a new growth in my lower abdomen raising concerns that my cancer was spreading. In mid April I met with a new oncologist. After reviewing my case, he requested a Gallium scan (the most detailed scan for NETS) and another CT scan. Last week, I met with him again to discuss the results and the news was fantastic! First of all, the Therasphere treatment was successful in destroying the large tumour on my liver. Equally exciting was the news that what had looked like a new tumour in my abdomen was nothing more than a harmless diverticulum, a bulge in the lining of my colon! There are other tiny growths that we will need to continue to keep an eye on with regular surveillance, but those don’t appear to have changed significantly. Since my cancer is incurable, this news is about as good as it gets and I’m hoping for a smooth ride for some time to come!

So, what metaphors should you use when talking to or about a cancer patient? It is, of course, valid for a person to speak about their own illness in any way they choose and their loved ones ought to adopt the same language as a way of reflecting those experiences. Simply take your cues from the patient and you won’t go wrong.

Lyrics: Battle Belongs, Phil Wickham

Choosing the right walking shoes

Screenshot 2024-05-09 at 7.40.11 PMAfter writing about my 150 day walking challenge earlier this week and encouraging you to consider joining me, I thought that this would be a good time for a post about how to choose the right walking shoes. If you’re walking in comfy, but well-worn sneakers, you might want to consider investing in a new pair that are dedicated to walking.

The American Podiatric Medical Association recommends replacing your walking shoes every 600 to 800 miles (approximately 950 to 1300 km). Some experts advise replacing them even more often, so be sure to check yours from time to time. If they’re becoming worn or have lost cushioning, it’s time for a new pair. Brand-new, well-fitting walking shoes might even put a bit more spring in your step and encourage you to walk a little farther.

Because feet come in various shapes and sizes, it’s impossible to recommend a specific style or brand that would suit everyone, but there are some tips that can help you find a pair that are right for you. First of all, shop late in the day. Our feet tend to expand a little throughout the day, so it’s best to try on shoes when they’ve swelled a bit. Also think about what kind of socks you’ll wear on your walks. The thickness of your socks will affect how the shoes fit, so take them shopping with you. If you wear orthotics, be sure to take those too. 

Comfort and fit go hand in hand and are by far the most important factors to consider when choosing the right walking shoes. Choose a shoe that is lightweight and breathable. You want it to fit snuggly at the heel and through to the middle of your foot, but it shouldn’t crowd your toes. The toe box should have enough wiggle room for your toes to splay out a bit, but not too much. Make sure that there’s a finger’s width or about half an inch between the end of your longest toe and the front of the shoe. Don’t hesitate to try on several different brands and styles to find the one that is right for you. 

The insole of a good walking shoe should cushion each step and it should feel like it’s adequately supporting the arch of your foot. Look for a uniform level of cushioning, rather than a higher heel cushion. The outer sole should provide adequate traction. 

Check the shoe for flexibility and stability. Hold it by the heel and bend the toe upward. It should bend at the ball of the foot. Grasp it at the heel and toe, then twist. You should feel moderate resistance. 

Finally, take a walk around the store before you decide to buy to ensure that the shoes you choose fit well and are completely comfortable. The old idea that shoes need to be broken in doesn’t apply to walking shoes. 

Good quality athletic shoes can be expensive, but your feet are worth it. You are worth it! Consider these shoes an investment in your well-being. Then get out there and enjoy walking!  

My 150 day walking goal

If you’ve been following my blog for long, you may remember that several times in the past few years I’ve challenged myself to walk or hike a specific distance over the summer months. The first time, back in 2020, I walked as part of a fundraiser for NET cancer research, but after that I recalled how good all that walking felt and how much having a specific goal kept me motivated. Last year, I challenged myself to walk 350 km between May 1 and October 31 and actually exceeded that by approximately 60 km.

Today, recognizing that I’ve been unusually lazy over the past winter and realizing how badly I need to get out and walk again, I decided that I would attempt to walk 300 km between now and my 72nd birthday on October 5, which happens to be exactly 150 days from now. (For my American friends, 300 km is equal to 186.4 miles.) Not only does having a goal motivate me, especially on those days when I’m feeling sluggish or just plain lazy, but being accountable to someone else is another driving force. That’s where you come in and the reason why I’m writing this post! 

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So why walk?

Walking has many benefits including:

  • It’s accessible, easy, safe, and free.
  • It reduces stress and decreases symptoms of depression and anxiety.
  • It improves heart health and reduces the risk of cardiovascular disease.
  • It increases blood flow and therefore improves energy levels.
  • It improves blood pressure and cholesterol levels.
  • It reduces the risk of some cancers.
  • It boosts the immune system.
  • It helps prevent the onset of Type 2 diabetes (which I already have).
  • It burns calories.
  • It promotes more restful sleep.
  • It improves flexibility and helps ease chronic pain and stiffness.
  • It improves brain function.
  • It’s a weight bearing exercise that reduces the risk of osteoporosis.
  • It has even been linked to longer life expectancy!

If you’d like to partner with me, I’d love to share this walking challenge with you. Just choose a distance that you think is reasonable for you and share it in the comment section below.

There are several ways to measure the distance that you walk. In and around town, I use MapMyWalk which allows you to create and save routes that you use regularly. All Trails gives information and distances for trails around the world and I use a handheld Garmin GPS to measure unmarked hiking trails. 

Your most valuable accessory

What is your most valuable fashion accessory? I would suggest that it’s not an expensive piece of jewelry, a silk scarf, or an amazing pair of shoes. No, I would say that it’s your smile!

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Image: Reader’s Digest

A smile has a way of lighting up a room and making everyone feel welcome. It brightens your face and makes you appear more confident, friendly and approachable. In fact, the first thing we notice about a person is seldom the clothes they’re wearing. Several years ago, a survey for USA Today found that 47% of respondents chose a great smile as the feature that most attracted them to another person. Their eyes came second at 31%.

Apparently, smiling can have profound impact on your mental and physical health too . The simple act of smiling can improve your mood, reduce stress, boost your immune system, and help improve cardiovascular health by lowering blood pressure. What’s not to like about that?

Smiling is also contagious. During the year that we lived in Japan, I didn’t speak the language. I wasn’t able to converse with many people, but I made a point of smiling at everyone I passed. The reactions were interesting. Known as a publicly reserved people and especially shy about interacting with foreigners, many looked startled and some quickly looked away, but many faces lit up and smiled back at me. I liked to think that I added a moment of warmth to their day as they had done to mine. After all, a smile is the same in any language!

So, next time you go out, don’t forget to wear your most valuable accessory, your smile!

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Debunking common cancer myths

Penn Medicine

Image: Penn Medicine

The post that I recently wrote about what not to say to someone with cancer clearly resonated with a lot of people. In fact, it rapidly became one of my most read posts of the past year.

As I thought about the things that people say and particularly the advice that is often given, I realized that much of it is the result of common myths and misconceptions that people have accepted as truth. As a result, I decided to write a companion piece to try to debunk some of those popular cancer myths.

The internet, and social media in particular, have been responsible for spreading vast amounts of dubious or misleading information as well as much that is entirely false, but cancer myths existed long before the advent of the internet. In the early 1980s, when our daughter was dying of leukemia, I was told by a well-intentioned gentleman that I simply needed to boil up some spruce needles and give her the resulting tea to drink and she would be fine! That may not be one of the more common myths, but it is the kind of miracle cure that cancer patients are routinely advised to try. According to this study from a few years ago, almost 40% of Americans believe cancer can be cured solely through alternative therapies.

So, without further ado, here are 12 popular beliefs about cancer that are not true.

Sugar feeds cancer and makes it grow faster.

All cells in the body, both healthy and cancerous, depend on glucose, a type of sugar, to function. There is, however, absolutely no scientific evidence showing that eating sugar will make cancer grow or spread more quickly or that cutting out sugar will slow its growth or prevent the disease. This is not to say that there is no connection between sugar and cancer. Consuming too much sugar causes weight gain and obesity does increase the risk of developing certain cancers.

Artificial sweeteners cause cancer. 

According to the National Cancer Institute, questions about artificial sweeteners and cancer arose when early studies showed that cyclamate in combination with saccharin caused bladder cancer in laboratory animals. Further studies, however, including one with more than half a million participants, found no evidence that artificial sweeteners increased the risk of cancer or posed any other threat to human health.

An acidic diet causes cancer and an alkaline diet cures cancer.

Although it’s true that cancer cells can’t live in a very alkaline environment, neither can any other cells in our body. While our blood may become slightly more acidic or alkaline after eating certain foods, it will not remain that way for any meaningful amount of time. Our kidneys ensure that our blood stays in its healthy, slightly alkaline range. If or when our blood becomes too acidic or too alkaline, our body automatically eliminates the excess through our urine. A healthy balanced diet, with lots of fruits and vegetables, plenty of whole grains, and healthy sources of protein, can help maintain a healthy body weight and reduce the risk of cancer, but there is no evidence to show that diet can significantly change our body’s pH, or that a diet of a certain pH has any impact on cancer.  

Cancer is a fungus and can be cured with baking soda. 

No, cancer is not a fungus! Scientists have proven that cancer begins when mutations within our own cells cause them to grow in an uncontrolled way. Oddly though, even if cancer were a fungal infection, baking soda (sodium bicarbonate) wouldn’t be an appropriate or recommended treatment. In fact, high doses of sodium bicarbonate are poisonous and can lead to very serious consequences.

Herbal medicines can cure cancer.

There is no evidence that herbal medicines can effectively treat or cure cancer, but certain complementary and alternative therapies, such as acupuncture, meditation, and yoga, are known to help with the psychological stress associated with cancer and some of the side effects of its treatment.

Plastic bottles and containers cause cancer. 

Reducing the use of plastics definitely has environmental benefits, but it will not affect your cancer risk. Drinking from plastic bottles (including those that contain BPA) and using plastic containers and bags to store food have not been proven to cause cancer. Although studies have shown that certain chemicals in plastics may end up in the things we consume, the levels are very low and within a range considered safe for humans. This is even true in experiments where plastics are heated for many hours at a time.

5G, wifi, cell phones and power lines cause cancer. 

Behind these myths, which I’ve lumped into one, is the misunderstanding that these emit radiation that can damage DNA and cause cancer. High energy radiation (often called ionising radiation), such as UV rays from the sun, do indeed release enough energy to damage DNA, but these technologies transmit radio frequency radiation (non-ionising), which is very weak in comparison. It doesn’t have enough energy to damage DNA or cause cancer. 5G, wifi, and mobile phones are still relatively new technologies so long term effects can’t be completely ruled out and research is still ongoing. At this point, however, several large-scale studies in people have been conducted and have found no clear evidence that these technologies cause cancer. Cell phone use has risen dramatically over the last few decades, with billions of people now using them around the world, and yet no significant rise in the rates of conditions such as brain, thyroid or salivary cancers has been observed.  

Microwaves cause cancer. 

Just like cell phones, microwaves emit non-ionising radiation that is too weak to damage DNA and cause cancer. Despite some common misconceptions, microwaves do not make your food radioactive and it’s safe to stand in front of the microwave oven while your food is heating.

Deodorants cause breast cancer.

This popular myth probably grew out of the fact that women are asked not to wear deodorants or antiperspirants when they go for mammograms. That’s because deodorants and antiperspirants contain aluminum which can mimic calcium on an X-ray or mammogram and interfere with the test results. Studies so far have found no evidence linking the chemicals typically found in antiperspirants and deodorants with changes in breast tissue or an increased risk of breast cancer.

Attitude affects cancer outcome. 

There is no scientific proof that a positive attitude gives you an advantage in cancer treatment or improves your chance of survival. It does, however, improve your quality of life during cancer treatment and beyond. People with a positive attitude are more likely to stay active and maintain social connections that provide the emotional support they need to cope with their cancer.

Cancer spreads when exposed to air during surgery or biopsy. 

There is absolutely no evidence that exposing a tumour to air causes it to grow more rapidly or to spread to other parts of the body. The chance of surgery causing cancer to spread is extremely remote and surgeons take many precautions to prevent this from happening. The reality is that many cancers are aggressive and will spread. This is because of the biology of the cancer, not because of a biopsy or surgery.

The cure for cancer already exists, but the pharmaceutical companies are keeping it secret.

First of all, cancer is really more than 200 different diseases. There is not, nor will there ever be, a one size fits all cure. In spite of this fact, the claim that a cure for cancer has actually been found and is being suppressed by pharmaceutical companies who make money off the disease is a popular one. Logic would say, however, that it would be in the best interest of those pharmaceutical companies to reveal such a cure if it actually existed because huge sales of the antidote would be sure to follow. It’s also important to remember that doctors, medical researchers, and the people who work for pharmaceutical companies also get cancer. Their loved ones get cancer. The idea that they would intentionally withhold a cure from their own loved ones is rather difficult to believe. Surely someone who is part of that nefarious plot would break and the secret would be out of the bag!

This is by no means an exhaustive list of all the cancer myths that are out there, but I’ve tried to address the most common ones. You many not agree with everything I’ve said, but please know that if you disagree, you will also be disagreeing with many of the primary cancer organizations around the world and the researchers that they support.

Why volunteer?

April 14-20, 2024 is National Volunteer Week in Canada, a time to recognize and celebrate the impact of the country’s 24 million volunteers who share their time, skills, empathy, and creativity for the well-being of others.

But why volunteer? What are the benefits of giving of your time and energy for the sake of others?

One positive result of volunteering is an increased sense of purpose and satisfaction. Studies actually show that volunteering triggers the mesolimbic system, the portion of the brain responsible for feelings of reward. The brain releases feel-good chemicals like dopamine, spurring a person on to perform more acts of kindness. Psychologists call this “helper’s high.”

For those of us who are retired, this aspect of volunteering can be especially beneficial. “A strong sense of purpose is always in my top five secrets of healthy aging,” says Scott Kaiser, MD, a board-certified geriatrician and director of geriatric cognitive health for the Pacific Neuroscience Institute. “Having a reason to get up in the morning is extremely powerful.”

Research presented at last year’s Alzheimer’s Association International Conference also found that volunteering later in life may protect the brain against cognitive decline and dementia. Those who volunteered demonstrated better memory and executive function. Volunteering can also be a social activity; an opportunity to build connections with other people who have similar interests.

In his later years, my father always said that there are no end of things to do as long as you don’t have to be paid for doing them and I have found that to be very true. My only problem is ensuring that I don’t overextend myself and take on more than I can reasonably handle.

But what if you haven’t volunteered before? How do you get started? First, think about your skills, abilities, and passions. What are you good at? What excites you? Next, look for opportunities that align with these things. These might be found in your church, in community organizations, or ever further afield. Sometimes it’s just a matter of taking that first step!

For example, teaching and writing are my gifts. These are the things that energize me. In the past, children’s ministries were an obvious area where my abilities could be put to good use. I taught Sunday School, counselled at summer camps, and assisted with after school programs and Vacation Bible Schools. While I still love kids, I don’t have the energy level that I once had, so working with adults has become a better fit. I lead a ladies Bible and also volunteer as a tutor with a local literacy program. As I’ve mentioned on the blog before, I’m also a volunteer editor for Kiva, an online lending program that crowdfunds loans to borrowers around the world who don’t have access to traditional financing. This has the advantage of being done online and while I’m committed to editing a minimum of 40 loan descriptions a month, I can do it whenever I choose.

Still not sure? Don’t be afraid to step outside your comfort zone and try something new. Several months ago, I volunteered to be part of a CNETS (Canadian Neuroendocrine Tumours Society) Advocacy Advisory Board, hence my recent trip to Montreal. We’re still in the learning and planning stages, so I don’t know exactly how my skills will be put to use, but as a NETS patient this is something that I’m passionate about, so I took a leap.

As my father said, there are no end of opportunities. Hospitals need volunteers to assist patients, their families, and staff. Food banks need volunteers to prepare and distribute food hampers. Drivers are needed to deliver meals to shut ins. Schools often welcome volunteers to help in a variety of ways. A volunteer even gave me directions at the airport last week!

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What not to say to someone with cancer

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Image: freepik.com

While most people mean well, knowing what to say to a cancer patient can be challenging and as a result, many people say things that are are far from helpful. As you know, I have chosen to be very transparent about my experience and how I’m doing. For the most part, people have been supportive and I appreciate that greatly, but I’ve also been taken aback by some of the things that have been said. So, from the perspective of someone who has been dealing with the disease for over a decade, here are 12 things not to say to someone with cancer. 

I know how you feel. 

No you don’t! Even if you have or have had cancer yourself, everyone experiences the journey uniquely. As similar as your story might be, how you felt might be completely different from how the person you’re speaking with feels. 

My aunt / grandmother / next door neighbour’s cousin had cancer and they… 

There are more than 200 different kinds of cancer and even two people with the same kind may experience it and its treatment entirely differently. 

My friend / family member died of cancer. 

It is never a good idea to remind someone who is battling cancer that people die of the disease. We already know that! We all know someone who died of cancer. We don’t need to be reminded of our mortality. 

Do they know what caused it?

Saying this seems to imply that the person might have an underlying genetic flaw or worse, that unhealthy lifestyle choices might have led to their diagnosis. Many of us have no known risk factors or family history that would explain our cancers and introducing feelings of doubt or guilt are not helpful! 

You should try [insert an alternative therapy here]. 

This is one of my pet peeves! It is never okay to suggest that a patient might not be getting the best care possible or that you, an armchair expert, know better than the professionals in the field of cancer care. The rule of thumb here should be, don’t give any advice unless you’re asked for it. 

You should eat more / stop eating …

This is another one that really irks me. I’ve been given so much, and sometimes even conflicting, dietary advice by well-meaning people that I could probably write an entire blog post about it, but I won’t. Good nutrition is important during cancer treatment, but there is absolutely no scientific evidence that certain foods or specific diets can cure cancer. 

Big pharma is blocking or withholding new cancer treatments.

This is one of many common myths or misconceptions about cancer treatment that should be stopped in its tracks. Unfortunately, scientific studies and clinical trials to determine the safety and effectiveness of new cancer treatments take time. That may create the appearance or lead to reports that effective new treatments are being blocked, but that simply isn’t the case. No one is hiding the cure to cancer or withholding help from those who need it. 

A positive attitude is all you need to beat cancer.

There is absolutely no scientific proof that a positive attitude gives you an advantage in cancer treatment or improves your chance of survival. It does, however, improve your quality of life during cancer treatment and beyond. I can definitely attest to that, but it’s also a reality that no one can stay positive all the time. Everyone will have down days.  

You don’t look sick. It must not be that bad.  or  You don’t look like you have cancer.  

Outward appearance isn’t always indicative of how serious a person’s cancer is. I may look good on the outside, but you can’t see the mess that my insides are in! 

You’re so brave.

No, I’m not! Courage is choosing to willingly confront agony, pain, danger, uncertainty, or intimidation. Those of us with cancer didn’t have any choice in this. We are simply dealing with what was dealt us and trying to make the best of a bad situation. 

God won’t give you more than you can handle.

Oh, yes he will! Nowhere in scripture does it say that God won’t give us more than we can handle. In fact, it says that there will always be suffering, trials, temptations, pain, and situations that we won’t be able to handle on our own. It also promises that He will be with us through those times. We aren’t meant to handle them on our own; we’re meant to depend on Him. 

Let me know if there’s anything I can do. 

While this sounds great, it’s too vague. Instead, offer something more specific. Ask if they need a ride to appointments or if some freezer meals would be helpful after a treatment or surgery. If they have children, offer to provide childcare while they receive medical care or just take a much needed break. When you make a specific offer, the person can say yes or no, and they are also more likely to ask for help when they actually need it. 

Several of these tips would also apply to other serious illnesses as well as to loss. Sometimes it’s better not to say anything at all than it is to say the wrong thing. In fact, your presence is often what’s needed most. Simply be there; be willing to listen if the person wants to talk, but understand if they don’t. Even those of us who are very open about what we’re going through want to be seen as more than just a person with cancer, so talk to us about the same things you’d talk to anyone else about. 

Stripes for spring

First of all, a very big thank you for all your kind responses to last Friday’s post on here, on Facebook, and on Pam Lutrell’s blog, Over 50 Feeling 40. I especially appreciate those who promised to pray for me! The medical oncology team discussed my case earlier this week and I now have an appointment on April 17 with a doctor that I haven’t met before to discuss their recommendations and make decisions about further treatment. I will keep you posted.

And now, on to fashion!

LogoStripes are a forever classic that never really go out of style, but they’re everywhere this season. Horizontal, vertical, pin stripe; on shirts, dresses, sweaters, pants, and even accessories, stripes are the print of the season. Bold, high-visibility stripes, often in eye-catching colours, are especially on trend.

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Ads for this long-sleeve crew-neck sweater from Reitmans kept popping up on my Facebook feed, but I seldom shop for clothes online. I prefer to see things in person, feel the fabric, and try things on. I also like to support brick and mortar stores that provide employment and I detest the fact that more than 25% of all returns end up in the garbage! The ads caught my attention though and I was tempted, but I waited until we went into the city for my recent treatment and shopped in person instead. I’m glad I did as the sweater fits a bit large and I probably would have ordered the wrong size.

(Please ignore my hair in the photos! I’m way overdue for a cut, but my hairdresser has been sick.)

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I love the relaxed fit, the length, and the soft, cozy knit. While the sweater is also available in a true white, Reitmans calls the light oatmeal colour of mine Heather Latte, an off-white that works well with my complexion. Here, I’m wearing the sweater with jeans, but it would pair well with leggings and I’ve also worn it with black pants for a dressier look.

I also came home with a second striped top, but I’ll save that one for another post, maybe next week.

Clothe me in peace, hope, and inner strength

This will not be a fashion post in the traditional sense. I won’t be showing you an outfit today or giving any style advice. I’ve held off on writing an update about my health since undergoing the TheraSphere treatment on my liver on March 11 because I needed time to wrestle with what’s been happening. Time to figure out how to “wear” the latest news.

The treatment itself went very well. I was in and out of the hospital in approximately eight hours and walked away feeling pretty good. A CT scan following the treatment showed that the vast majority of the radioactive microspheres that were injected during the treatment had been deposited on target at the site of the largest tumour on my liver while a minimal amount had reached a second smaller tumour and surrounding tissue. This was exactly what was hoped for. 

Had that been all that the scan showed, I would have weathered the post treatment fatigue and mild nausea with ease, but unfortunately, it also showed a nodule elsewhere in my abdomen that has grown significantly since a previous scan five months ago. That raises concerns that the cancer has spread. Knowing the importance of being proactive and advocating for myself, I contacted my specialist’s office as soon as I read the scan report and was able to have a phone consult with her earlier this week. She is going to refer my case to the medical oncology team asking them to review my file and make recommendations. 

So how do I deal with all of this? 

I feel a bit like I did at the beginning of this journey over 10 years ago. Once again, I’m facing a huge unknown. At that time, I prayed for strength to walk this pathway with grace and I continue to ask for that. In my morning prayer time this week, I’ve been meditating on a snippet of scripture from 2 Peter 2:19. “… a man is slave to whatever has mastered him.” Whatever happens, I do not want to become a slave to fear! 

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You may remember that my one word for 2024 is hope. This beautiful graphic, which I found on Rare Disease Day, perfectly combines my word with the zebra ribbon representing rare diseases and more specifically, neuroendocrine cancer (NETS) which, though no longer considered rare, is definitely not well-known. Though the pathway may become rough, I am not giving up hope!  

Clothe me in peace, hope, and inner strength.

Let that be my style! 

A World Cancer Day update

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When I posted a World Cancer Day graphic on Facebook this morning and mentioned that I’m currently waiting for a treatment to destroy a tumour on my liver, the outpouring of support from people near and far was immediate and heartwarming. I was also asked recently whether this was related to my original cancer or something new. In response, I decided that today would be a good day to share an update on what’s been happening in my ongoing battle with cancer.

For those of you who may be new to the blog, I was diagnosed with neuroendocrine cancer (NETS) in 2013. The primary tumour was in my cecum (a pouch at the beginning of the large intestine that the appendix is connected to) and, as is very common with NETS, it had already spread to lymph nodes and my liver. A series of radioactive treatments (PRRT) resulted in some shrinkage and stability that lasted until about 17 months ago when we started to notice gradual changes in my regular lab results and scans. As neuroendocrine cancer is usually a slow-growing disease, we took a cautious approach. We started monitoring more often and eventually changed the medication that I receive by injection every 28 days. Unfortunately, that didn’t have the desired result.

The last time I wrote an update on the blog was back on November 10, NET Cancer Day. At that time, it was clear that the tumours that had been basically dormant for several years, or at least the largest one which is on my liver, were growing and producing an excess of hormones again. I was waiting for the tumour board at the Cross Cancer Institute to discuss my case and make their recommendations.

Shortly after that, I was referred to the Interventional Radiology department at the University Hospital and my NET specialist told me that I would undergo a radiofrequency ablation, a fairly non-invasive procedure that would destroy the cancer cells without damaging much of the surrounding tissue. I was all for that. Let’s zap that tumour, I thought! As it turns out, however, at 5 cm (2 inches) my tumour is too large for that procedure to be successful. Instead, I’ll be undergoing a transarterial radioembolization, also known as a TheraSphere treatment. (I love words, but as a cancer patient, I’ve learned a lot of big ones that I wish I’d never had to hear!)

The treatment is a minimally invasive procedure that deposits millions of glass microspheres, each about one-third the width of a human hair, containing a radioactive isotope (Y-90) inside the blood vessels that supply a tumour. This blocks the blood supply to the cancer cells and delivers a high dose of radiation to the tumour. The treatment will destroy a significant portion of my liver, but thankfully, it has the amazing capacity to regenerate itself after damage.

Three weeks ago, I had a work-up which was basically a trial run. As will happen in the actual treatment, a catheter was inserted through the femoral artery in my groin and guided via x-ray to the hepatic artery supplying my liver. Mapping and measurements of the blood vessels feeding the tumour were done and then a contrast was injected and various images taken to ensure that the Y-90 would stay in my liver and not travel anywhere else in my body. During this entire time, which took several hours, and for four hours afterward, I had to lie on my back without raising my head or moving my right leg. It was a long and somewhat grueling day and after almost eleven hours, I was very happy to walk out of the hospital with no ill effects. I may not be quite as fortunate after the real deal. I’ve been told that common side effects include abdominal discomfort, nausea, and fatigue for a week or two afterward, but it will be worth it if it successfully destroys the tumour!

I was initially told that the treatment would take place two to five weeks after the work-up, but three weeks later, I haven’t been given a treatment date yet. Wheels often move very slowly in the medical world and waiting is something that patients have to get used to. It never seems to get any easier though!

To those of you who suggested in your very kind responses on Facebook this morning that you would be praying for me, I very much appreciate it. While I am enormously thankful to live in a part of the world where I have access to state of the art medical care at no personal expense, and I have a body of amazing doctors taking care of me, I know that God is ultimately my healer and it is He who holds my future. I continue to put my hope in Him!

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Image: TheraSphere Patient Info – Boston Scientific