Why volunteer?

April 14-20, 2024 is National Volunteer Week in Canada, a time to recognize and celebrate the impact of the country’s 24 million volunteers who share their time, skills, empathy, and creativity for the well-being of others.

But why volunteer? What are the benefits of giving of your time and energy for the sake of others?

One positive result of volunteering is an increased sense of purpose and satisfaction. Studies actually show that volunteering triggers the mesolimbic system, the portion of the brain responsible for feelings of reward. The brain releases feel-good chemicals like dopamine, spurring a person on to perform more acts of kindness. Psychologists call this “helper’s high.”

For those of us who are retired, this aspect of volunteering can be especially beneficial. “A strong sense of purpose is always in my top five secrets of healthy aging,” says Scott Kaiser, MD, a board-certified geriatrician and director of geriatric cognitive health for the Pacific Neuroscience Institute. “Having a reason to get up in the morning is extremely powerful.”

Research presented at last year’s Alzheimer’s Association International Conference also found that volunteering later in life may protect the brain against cognitive decline and dementia. Those who volunteered demonstrated better memory and executive function. Volunteering can also be a social activity; an opportunity to build connections with other people who have similar interests.

In his later years, my father always said that there are no end of things to do as long as you don’t have to be paid for doing them and I have found that to be very true. My only problem is ensuring that I don’t overextend myself and take on more than I can reasonably handle.

But what if you haven’t volunteered before? How do you get started? First, think about your skills, abilities, and passions. What are you good at? What excites you? Next, look for opportunities that align with these things. These might be found in your church, in community organizations, or ever further afield. Sometimes it’s just a matter of taking that first step!

For example, teaching and writing are my gifts. These are the things that energize me. In the past, children’s ministries were an obvious area where my abilities could be put to good use. I taught Sunday School, counselled at summer camps, and assisted with after school programs and Vacation Bible Schools. While I still love kids, I don’t have the energy level that I once had, so working with adults has become a better fit. I lead a ladies Bible and also volunteer as a tutor with a local literacy program. As I’ve mentioned on the blog before, I’m also a volunteer editor for Kiva, an online lending program that crowdfunds loans to borrowers around the world who don’t have access to traditional financing. This has the advantage of being done online and while I’m committed to editing a minimum of 40 loan descriptions a month, I can do it whenever I choose.

Still not sure? Don’t be afraid to step outside your comfort zone and try something new. Several months ago, I volunteered to be part of a CNETS (Canadian Neuroendocrine Tumours Society) Advocacy Advisory Board, hence my recent trip to Montreal. We’re still in the learning and planning stages, so I don’t know exactly how my skills will be put to use, but as a NETS patient this is something that I’m passionate about, so I took a leap.

As my father said, there are no end of opportunities. Hospitals need volunteers to assist patients, their families, and staff. Food banks need volunteers to prepare and distribute food hampers. Drivers are needed to deliver meals to shut ins. Schools often welcome volunteers to help in a variety of ways. A volunteer even gave me directions at the airport last week!

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What not to say to someone with cancer

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Image: freepik.com

While most people mean well, knowing what to say to a cancer patient can be challenging and as a result, many people say things that are are far from helpful. As you know, I have chosen to be very transparent about my experience and how I’m doing. For the most part, people have been supportive and I appreciate that greatly, but I’ve also been taken aback by some of the things that have been said. So, from the perspective of someone who has been dealing with the disease for over a decade, here are 12 things not to say to someone with cancer. 

I know how you feel. 

No you don’t! Even if you have or have had cancer yourself, everyone experiences the journey uniquely. As similar as your story might be, how you felt might be completely different from how the person you’re speaking with feels. 

My aunt / grandmother / next door neighbour’s cousin had cancer and they… 

There are more than 200 different kinds of cancer and even two people with the same kind may experience it and its treatment entirely differently. 

My friend / family member died of cancer. 

It is never a good idea to remind someone who is battling cancer that people die of the disease. We already know that! We all know someone who died of cancer. We don’t need to be reminded of our mortality. 

Do they know what caused it?

Saying this seems to imply that the person might have an underlying genetic flaw or worse, that unhealthy lifestyle choices might have led to their diagnosis. Many of us have no known risk factors or family history that would explain our cancers and introducing feelings of doubt or guilt are not helpful! 

You should try [insert an alternative therapy here]. 

This is one of my pet peeves! It is never okay to suggest that a patient might not be getting the best care possible or that you, an armchair expert, know better than the professionals in the field of cancer care. The rule of thumb here should be, don’t give any advice unless you’re asked for it. 

You should eat more / stop eating …

This is another one that really irks me. I’ve been given so much, and sometimes even conflicting, dietary advice by well-meaning people that I could probably write an entire blog post about it, but I won’t. Good nutrition is important during cancer treatment, but there is absolutely no scientific evidence that certain foods or specific diets can cure cancer. 

Big pharma is blocking or withholding new cancer treatments.

This is one of many common myths or misconceptions about cancer treatment that should be stopped in its tracks. Unfortunately, scientific studies and clinical trials to determine the safety and effectiveness of new cancer treatments take time. That may create the appearance or lead to reports that effective new treatments are being blocked, but that simply isn’t the case. No one is hiding the cure to cancer or withholding help from those who need it. 

A positive attitude is all you need to beat cancer.

There is absolutely no scientific proof that a positive attitude gives you an advantage in cancer treatment or improves your chance of survival. It does, however, improve your quality of life during cancer treatment and beyond. I can definitely attest to that, but it’s also a reality that no one can stay positive all the time. Everyone will have down days.  

You don’t look sick. It must not be that bad.  or  You don’t look like you have cancer.  

Outward appearance isn’t always indicative of how serious a person’s cancer is. I may look good on the outside, but you can’t see the mess that my insides are in! 

You’re so brave.

No, I’m not! Courage is choosing to willingly confront agony, pain, danger, uncertainty, or intimidation. Those of us with cancer didn’t have any choice in this. We are simply dealing with what was dealt us and trying to make the best of a bad situation. 

God won’t give you more than you can handle.

Oh, yes he will! Nowhere in scripture does it say that God won’t give us more than we can handle. In fact, it says that there will always be suffering, trials, temptations, pain, and situations that we won’t be able to handle on our own. It also promises that He will be with us through those times. We aren’t meant to handle them on our own; we’re meant to depend on Him. 

Let me know if there’s anything I can do. 

While this sounds great, it’s too vague. Instead, offer something more specific. Ask if they need a ride to appointments or if some freezer meals would be helpful after a treatment or surgery. If they have children, offer to provide childcare while they receive medical care or just take a much needed break. When you make a specific offer, the person can say yes or no, and they are also more likely to ask for help when they actually need it. 

Several of these tips would also apply to other serious illnesses as well as to loss. Sometimes it’s better not to say anything at all than it is to say the wrong thing. In fact, your presence is often what’s needed most. Simply be there; be willing to listen if the person wants to talk, but understand if they don’t. Even those of us who are very open about what we’re going through want to be seen as more than just a person with cancer, so talk to us about the same things you’d talk to anyone else about. 

Stripes for spring

First of all, a very big thank you for all your kind responses to last Friday’s post on here, on Facebook, and on Pam Lutrell’s blog, Over 50 Feeling 40. I especially appreciate those who promised to pray for me! The medical oncology team discussed my case earlier this week and I now have an appointment on April 17 with a doctor that I haven’t met before to discuss their recommendations and make decisions about further treatment. I will keep you posted.

And now, on to fashion!

LogoStripes are a forever classic that never really go out of style, but they’re everywhere this season. Horizontal, vertical, pin stripe; on shirts, dresses, sweaters, pants, and even accessories, stripes are the print of the season. Bold, high-visibility stripes, often in eye-catching colours, are especially on trend.

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Ads for this long-sleeve crew-neck sweater from Reitmans kept popping up on my Facebook feed, but I seldom shop for clothes online. I prefer to see things in person, feel the fabric, and try things on. I also like to support brick and mortar stores that provide employment and I detest the fact that more than 25% of all returns end up in the garbage! The ads caught my attention though and I was tempted, but I waited until we went into the city for my recent treatment and shopped in person instead. I’m glad I did as the sweater fits a bit large and I probably would have ordered the wrong size.

(Please ignore my hair in the photos! I’m way overdue for a cut, but my hairdresser has been sick.)

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I love the relaxed fit, the length, and the soft, cozy knit. While the sweater is also available in a true white, Reitmans calls the light oatmeal colour of mine Heather Latte, an off-white that works well with my complexion. Here, I’m wearing the sweater with jeans, but it would pair well with leggings and I’ve also worn it with black pants for a dressier look.

I also came home with a second striped top, but I’ll save that one for another post, maybe next week.

Clothe me in peace, hope, and inner strength

This will not be a fashion post in the traditional sense. I won’t be showing you an outfit today or giving any style advice. I’ve held off on writing an update about my health since undergoing the TheraSphere treatment on my liver on March 11 because I needed time to wrestle with what’s been happening. Time to figure out how to “wear” the latest news.

The treatment itself went very well. I was in and out of the hospital in approximately eight hours and walked away feeling pretty good. A CT scan following the treatment showed that the vast majority of the radioactive microspheres that were injected during the treatment had been deposited on target at the site of the largest tumour on my liver while a minimal amount had reached a second smaller tumour and surrounding tissue. This was exactly what was hoped for. 

Had that been all that the scan showed, I would have weathered the post treatment fatigue and mild nausea with ease, but unfortunately, it also showed a nodule elsewhere in my abdomen that has grown significantly since a previous scan five months ago. That raises concerns that the cancer has spread. Knowing the importance of being proactive and advocating for myself, I contacted my specialist’s office as soon as I read the scan report and was able to have a phone consult with her earlier this week. She is going to refer my case to the medical oncology team asking them to review my file and make recommendations. 

So how do I deal with all of this? 

I feel a bit like I did at the beginning of this journey over 10 years ago. Once again, I’m facing a huge unknown. At that time, I prayed for strength to walk this pathway with grace and I continue to ask for that. In my morning prayer time this week, I’ve been meditating on a snippet of scripture from 2 Peter 2:19. “… a man is slave to whatever has mastered him.” Whatever happens, I do not want to become a slave to fear! 

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You may remember that my one word for 2024 is hope. This beautiful graphic, which I found on Rare Disease Day, perfectly combines my word with the zebra ribbon representing rare diseases and more specifically, neuroendocrine cancer (NETS) which, though no longer considered rare, is definitely not well-known. Though the pathway may become rough, I am not giving up hope!  

Clothe me in peace, hope, and inner strength.

Let that be my style! 

A World Cancer Day update

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When I posted a World Cancer Day graphic on Facebook this morning and mentioned that I’m currently waiting for a treatment to destroy a tumour on my liver, the outpouring of support from people near and far was immediate and heartwarming. I was also asked recently whether this was related to my original cancer or something new. In response, I decided that today would be a good day to share an update on what’s been happening in my ongoing battle with cancer.

For those of you who may be new to the blog, I was diagnosed with neuroendocrine cancer (NETS) in 2013. The primary tumour was in my cecum (a pouch at the beginning of the large intestine that the appendix is connected to) and, as is very common with NETS, it had already spread to lymph nodes and my liver. A series of radioactive treatments (PRRT) resulted in some shrinkage and stability that lasted until about 17 months ago when we started to notice gradual changes in my regular lab results and scans. As neuroendocrine cancer is usually a slow-growing disease, we took a cautious approach. We started monitoring more often and eventually changed the medication that I receive by injection every 28 days. Unfortunately, that didn’t have the desired result.

The last time I wrote an update on the blog was back on November 10, NET Cancer Day. At that time, it was clear that the tumours that had been basically dormant for several years, or at least the largest one which is on my liver, were growing and producing an excess of hormones again. I was waiting for the tumour board at the Cross Cancer Institute to discuss my case and make their recommendations.

Shortly after that, I was referred to the Interventional Radiology department at the University Hospital and my NET specialist told me that I would undergo a radiofrequency ablation, a fairly non-invasive procedure that would destroy the cancer cells without damaging much of the surrounding tissue. I was all for that. Let’s zap that tumour, I thought! As it turns out, however, at 5 cm (2 inches) my tumour is too large for that procedure to be successful. Instead, I’ll be undergoing a transarterial radioembolization, also known as a TheraSphere treatment. (I love words, but as a cancer patient, I’ve learned a lot of big ones that I wish I’d never had to hear!)

The treatment is a minimally invasive procedure that deposits millions of glass microspheres, each about one-third the width of a human hair, containing a radioactive isotope (Y-90) inside the blood vessels that supply a tumour. This blocks the blood supply to the cancer cells and delivers a high dose of radiation to the tumour. The treatment will destroy a significant portion of my liver, but thankfully, it has the amazing capacity to regenerate itself after damage.

Three weeks ago, I had a work-up which was basically a trial run. As will happen in the actual treatment, a catheter was inserted through the femoral artery in my groin and guided via x-ray to the hepatic artery supplying my liver. Mapping and measurements of the blood vessels feeding the tumour were done and then a contrast was injected and various images taken to ensure that the Y-90 would stay in my liver and not travel anywhere else in my body. During this entire time, which took several hours, and for four hours afterward, I had to lie on my back without raising my head or moving my right leg. It was a long and somewhat grueling day and after almost eleven hours, I was very happy to walk out of the hospital with no ill effects. I may not be quite as fortunate after the real deal. I’ve been told that common side effects include abdominal discomfort, nausea, and fatigue for a week or two afterward, but it will be worth it if it successfully destroys the tumour!

I was initially told that the treatment would take place two to five weeks after the work-up, but three weeks later, I haven’t been given a treatment date yet. Wheels often move very slowly in the medical world and waiting is something that patients have to get used to. It never seems to get any easier though!

To those of you who suggested in your very kind responses on Facebook this morning that you would be praying for me, I very much appreciate it. While I am enormously thankful to live in a part of the world where I have access to state of the art medical care at no personal expense, and I have a body of amazing doctors taking care of me, I know that God is ultimately my healer and it is He who holds my future. I continue to put my hope in Him!

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Image: TheraSphere Patient Info – Boston Scientific

One word for 2024

At the beginning of each year since 2017, I’ve chosen one word to inspire or guide me throughout the new year as well as a scripture verse to go along with it. My word for 2023 was contentment and the Bible verse, Philippians 4:12b. “I have learned the secret of being content in any and every situation, whether well fed or hungry, whether living in plenty or in want.” I wanted to be able to say with the apostle Paul that I had learned to be content regardless of my circumstances. 

Everything went pretty well for about eight months. In late March, hubby came through his prostate surgery well. We had a good summer season. We camped, hiked, kayaked and played lots of golf. Everything seemed to be going well and contentment came easily. Then things started to unravel. I worried about a close family member who was going through a very difficult time. Hubby and I encountered more issues with our health and life seemed to become a long series of trips to the city for medical appointments. I no longer came to the end of a day with a feeling of quiet happiness and satisfaction. Instead, I was stressed! Tense! I berated myself for having had the audacity to choose a word like contentment! How could I possibly be content in my present circumstances? Thankfully, time, prayer, wise counsel, and an excellent massage therapist helped get me back on track. Now that the year has ended, I think I can say that I’ve come closer to being able to be content in any and every situation. I’m definitely still a work in progress though! 

It was during this dark time that I settled on my one word for 2024. 

Hope! 

The New Oxford American Dictionary defines hope as “a feeling of expectation and desire for a certain thing to happen”. That meaning is definitely part of the reason that I chose hope as my word for the new year. I hope that 2024 is a good year for all of us. I hope that my family is happy and healthy. I hope that the embolization that I’ll be having to tackle the tumour on my liver is successful and that my cancer doesn’t grow or spread any further. I hope that hubby and I can travel more in the coming year (and not just to medical appointments!) Yes, I hope for many things, but there is a hope that is so much greater than any of these. 

This year, while my word came to me easily, choosing a scripture verse to go with it was more difficult because there were so many possibilities. I finally settled on two of them, Romans 15:13 and Hebrews 6:19a.

“May the God of hope fill you with all joy and peace as you trust in him, so that you may overflow with hope by the power of the Holy Spirit.”

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“We have this hope as an anchor for the soul, firm and secure.” 

The Biblical word hope is so much more than just wishful thinking. From the Hebrew word tikvah, it’s an expectation and a strong expression of faith. It’s a certainty that we can hold fast to. It’s confidence that God is who He says He is and can do what He says He will do. My hope, my certainty, is that some glorious day when the trials of this life are over, I will see Him face-to-face. He guaranteed it! This hope gives me strength to face whatever happens between now and then. It isn’t dependent on my circumstances. As I learn to depend more and more on this tikvah hope, the contentment that I yearned for in 2023 should become more and more real in my life!

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What do you hope for in 2024?

Have you chosen a word for the new year? 

 

Posture and appearance

“Stand up straight!” “Stop slouching!” 

Did you hear your mother’s voice or perhaps your grandma’s when you read that? It’s timeless advice that’s worth heeding. Good posture has many health benefits. Incorrect alignment of the spine puts extra stress on the legs and can lead to achy knees and feet. Poor posture can have a negative impact on circulation and digestion and may lead to increased headaches. Good posture is also essential to balance which becomes increasingly important as we age.

So, what does good posture look like?

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Image: Stanford University

Notice that in the image on the left, the model’s ears are directly above her shoulders. One of the leading causes of poor posture today is constantly looking down at phones and laptops. Did you know that your head weighs approximately 5 kg (11 pounds)? Every time you look down for an extended period of time its weight adds stress to muscles, joints, and nerves, especially in the neck and upper back.

But what does all this have to do with our appearance? Have you ever been to a fashion show or watched one online? Models, without exception, have great posture; shoulders back, chin level and hips neutral. There’s a reason for that. Clothing always looks better on a body with good posture.

I love to people watch and I can’t help noticing that people with good posture walk with more ease and grace. They look taller, more slender, more confident, happier, and healthier. So, as you put on your Christmas finery and head out the door to whatever special occasions this season holds, remember to listen to that inner voice that’s telling you to “Stand up straight!”

Logo by Sam

Sixteen years of blogging!

I published my very first blog post sixteen years ago today! It was also the shortest post I’ve ever written; a brief message announcing that hubby and I had just accepted positions teaching conversational English in Japan. The blog was meant to share that year-long adventure with friends, family and anyone else who might be interested. Never in my wildest dreams did I imagine that it would still be alive and well sixteen years later!

The title, Following Augustine, no longer fits the blog as well as it did in those early days, but since it’s what I’ve been known as in the blogosphere for more than a decade and a half, I hesitate to consider changing it. You can read about why I originally chose the title here.

Though I probably already had neuroendocrine cancer (NETS) when the blog was born, I didn’t know about it until several years later. When I finally received a correct diagnosis, blogging became a helpful way to process what was happening and to share the journey with friends and family. I also use the blog to raise awareness of NETS. I’m sure that this will continue to happen as I’ve recently become a member of a newly formed Advocacy Advisory Board that will report to the board of directors of the Canadian Neuroendocrine Tumour Society (CNETS).

When I started the blog, writing about fashion was the farthest thing from my mind. Several years ago, however, I starting following several fashion blogs and began to develop a greater interest in the topic. It was then that I decided to add the weekly Fashion Friday feature. At times, I find it a challenge to come up with a new fashion related topic every week, but it’s been a great way to connect with other women and to ensure that I post something at least once a week. Fashion Friday has a fairly small, but loyal following of interested readers, so I as long as I can continue to think of engaging content, I plan to keep the feature going.

As an avid reader, it was my passion for books that prompted me to add the latest feature to the blog, a monthly book review that first appeared at the beginning of February this year.

I refer to Following Augustine as a lifestyle, travel, and fashion blog, but in recent years, there hasn’t been as much travel content as I would have liked. First, the pandemic and then a number of other health issues, both mine and hubby’s, have limited our ability to spend as much time away from home as we would like, but our brand new ten year passports arrived in yesterday’s mail and we hope to be able to put them to good use in the future. If that happens, the blog will once again chronicle our wanderings.

Following Augustine will probably continue to undergo changes from time to time, but at this point, I don’t see it coming to an end anytime soon. Over the past sixteen years, I’ve published over 1400 posts and I expect that I’ll continue adding to that number until I’m no longer able!

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Not exactly a fashion post

Life has been a bit crazy lately between our usual fall/winter activities starting up again and numerous medical appointments for both hubby and I. More about that in the future when we have a better idea what’s going on, but for now, suffice to say that it’s been a bit difficult to focus on something as comparatively trivial as fashion. I will, however, share what I wore yesterday for what was probably our final hike of the year.

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I don’t usually wear graphic t-shirts nor do I often wear black close to my face, but this particular tee has significant meaning to me and I really wasn’t worried about what I looked like out on the trail! 

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The logo, known as The Creator’s Path, was created by Indigenous artist, Don Monkman, for Indian Life Ministries, an organization that I do volunteer work for that seeks to reach Native people across Canada and the United States with the good news of the gospel. If you look closely, you’ll see the cross surrounded by Christ wearing the crown of thorns, the two thieves on either side of Him, His nail pierced hands, the people who rejected Him piercing His side, and those who accepted His sacrifice kneeling in prayer. All of this is held within a circle representing creation. 

Anyway, back to our hike. It was an absolutely beautiful day, one of the last few in the forecast before winter is expected to hit early next week. We spent a couple of hours exploring one of our favourite hiking areas, Willow Creek Coulee, located near the village of Donalda, Alberta. With beautiful sunshine and a temperature of 23ºC (73ºF), it was hard to believe that snow and sub-zero temperatures might be just around the corner! 

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In addition to the t-shirt described above, I wore an older pair of chinos, my trusty Merrell hiking shoes, and a hat to shade my eyes from the sun. There are few things that I love more than the peace and quiet of nature. For awhile, I even forgot all about the headache that I’ve had for the past two weeks! 

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On the way back to the vehicle, we almost decided to do a bit of international travel, but we didn’t have our passports with us.

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Just kidding! 😂 That’s actually a new sign that has appeared on the fence of a property near the trailhead since the last time we hiked the coulee. The land is held by a member of a movement known as  Freemen on the Land, a group who believe that they can declare themselves independent of the government and any laws to which they have not consented. It takes all kinds, I guess! 

Not promising, but I’ll try to have a more conventional fashion post for you next week! 

Logo by Sam

 

My 10 year cancerversary

Do you remember where you were and what you were doing exactly ten years ago today? I do. The day is etched in my memory in vivid detail. That was the day I was told that I had cancer in my colon and that it had already spread to my liver! There was no hope or expectation then that I’d be writing about that day ten years later!

It wasn’t until a couple of weeks later that we learned that what I actually had (and still have) is neuroendocrine cancer (NETS) which, though incurable, usually progresses slowly. That gave us a glimmer of hope, but on one of our earliest clinic visits, we read that the average life expectancy for a neuroendocrine cancer patient was five years following diagnosis. I now know that that information was probably already outdated. There are members of my online patient groups who have been living with this disease for 10, 15, even 20 years or more. Others, however, have not fared as well, so I’ve learned to consider every day a gift.

On a day like today, I could dwell on the fact that over the past ten years I’ve had two major surgeries, been exposed to an enormous amount of radiation, had dozens of tests and scans of various kinds, lived in 28 day increments between injections, had 128 of those “butt darts”, and on and on. Or, I could count my blessings; focusing instead on the things that I’ve been able to do and enjoy over the past ten years.

Since my initial diagnosis, we’ve seen our family grow by one daughter-in-law and four grandchildren! In spite of the worldwide pandemic that put a damper on travel for a time, we’ve holidayed in Nova Scotia, BC, and the Yukon, and traveled to Israel, Europe (Portugal, Italy, France, Belgium, and the Netherlands), and Mexico four times. We purchased a kayak and have spent many hours paddling quiet lakes and rivers. Over the past ten years, we’ve spent 240 nights in our trailer and I’ve played over 350 rounds of golf. We’ve tried new things like snowshoeing and joined a seniors’ bowling league. I’ve edited 1346 microloan descriptions for Kiva and joined a prison letter writing ministry. I’ve had the opportunity to teach two women to read and tutored an ESL student. And again, the list goes on!

Life is good! Yes, I have cancer. Yes, some of my tumours have grown a bit recently, but I still feel 100%. I don’t know what the future holds, but neither does anyone else. I have an army of people who pray for me and we know who holds my future. I’ll just focus on today!

So what am I doing to celebrate this momentous occasion? I suppose I could have planned something special, something big, but I’ve been so busy just living life that this one crept up on me! I have absolutely nothing planned, but that’s okay. I’m alive and living life to the fullest and that’s all that really matters!

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