Author: edebock

NET Cancer Day 2023 and an update

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For those of us who have neuroendocrine cancer, every day is NET Cancer Day, but November 10 is the one day each year that is set aside to increase awareness of our disease and to promote improved diagnostics, treatments, care, and research. Unlike most cancers, neuroendocrine cancer (NETS) is often overlooked or misdiagnosed. Some patients, myself included, endure symptoms for 5 to 10 years before receiving an accurate diagnosis. All that time, the unseen disease is quietly growing and spreading which is why at least 50% of us, again myself included, have stage 4 cancer by the time we are diagnosed. At that point, it’s treatable, but not curable.

Why is this sneaky disease so easily missed? Why does it take so long to get a correct diagnosis? NETS starts in the cells of the neuroendocrine system which are found throughout the body. Neuroendocrine tumours can hide in many locations, but most commonly originate in the lungs, pancreas, gastrointestinal tract (specifically the large intestine, small intestine, or appendix), the adrenal glands or in rare cases, the brain, breast, or prostate. Without early detection, it spreads to other locations throughout the body including the lymph nodes, liver, peritoneal cavity, and bones.

Not only can the cancer be found in so many different parts of the body, but the symptoms vary and are often non-specific. They might include abdominal pain, diarrhea, nausea and vomiting, heightened anxiety, fatigue, weight loss, skin flushing, chest pain, coughing, wheezing, shortness of breath, and/or back pain. All of these are also symptoms of more common conditions, so it’s completely understandable that doctors don’t immediately consider a little-known cancer like NETS. Many have never encountered a case and know little or nothing about it. As a result, neuroendocrine cancer is often mistaken for other conditions including gastritis, IBS, generalized anxiety disorder, or even menopause. That’s why we need an annual NET Cancer Day and why we need to advocate for increased awareness amongst doctors and patients every day of the year.  

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Last year, on NET Cancer Day, I was happy to be able to report that my disease was stable. Unfortunately, this year, that’s no longer the case. Over the past year, my tumours (or at least one of them), which had essentially been dormant for several years, have been waking up and producing excess hormones again. One of the lesions on my liver has also started to grow again. Thankfully, however, NETS is usually a slow-growing cancer and we still have a number of treatment options available. The neuroendocrine cancer team at the Cross Cancer Institute meets on Tuesdays (I absolutely love the fact that they take a team approach), so they’ll be discussing my case next week and deciding where we go from here.

In the meantime, other than an ongoing headache that is probably stress-related, I have no symptoms and I’m able to live a fairly normal life. Considering that fact that I’ve had stage 4 cancer for over ten years, I feel pretty blessed. I consider every day a gift and I continue to trust that I’m not dying of NETs, but living with it! 

There will be no Fashion Friday post today, but stay tuned for a new one next week. 

Uniqlo comes to Southgate

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Logo by SamI fell in love with Uniqlo on our first visit to Japan in 2005. The popular Japanese fashion retailer is known for innovative yet functional apparel as well as high-quality, reasonably priced, easy-to-wear basics for men, women, and children. When we lived in Japan in 2008-2009, it was a short bicycle ride from our apartment to the closest Uniqlo store and later, in 2013, when we spent a semester in Dalian, China we were delighted to find Uniqlo a short bus ride from home!

From one store in Hiroshima in 1984, the chain has spread across Asia and around the world. The first store in Canada opened in Toronto’s Eaton Centre in September 2016, but that’s still a very long way from my home in Alberta! In October of the following year, a Uniqlo store opened in Vancouver just a few kilometres from where my father was living at the time. Every visit to that city included a stop at Uniqlo! Then, in September 2019, Uniqlo finally came to Alberta! A week ago today, Edmonton’s second Uniqlo store opened in Southgate Mall and we were there!

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The chain has been very strategic in choosing new locations and if the number of people crowding the aisles last Friday morning was any indication, they’ve made another good choice.

Like the more than 2400 stores worldwide, Uniqlo’s newest store will carry business attire, leisurewear, intimate apparel, and some accessories. With winter’s sudden arrival in our part of the world, customers might be particularly interested in the brand’s HEATTECH line made of innovative fabric that absorbs body heat and stores it in air pockets deep within the fibres to keep the wearer warm. For additional winter comfort, the brand also offers cashmere sweaters, extra fine merino garments, fleece jackets, and a variety of ultra light down outerwear all suitable for our cold climate.

My favourite Uniqlo purchase has been the Ultra Light Down Vest which I’ve had for several years. The 2023 version of this Uniqlo staple is slightly shorter and boxier than the one that I have, but otherwise the same.

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Last week, I left the store with just one new item, the HEATTECH Lined Padded Scarf a cozy neck warmer that folds into it’s own little pocket for easy carrying. For someone who feels the cold as I do, I know that it’s going to be another favourite!

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PLEASE NOTE: This is not a sponsored post. I am not a brand ambassador for Uniqlo (although I probably wouldn’t say no if they asked!) I simply like the brand and want to share it with you. 

Book of the month – October 2023

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Iris & Ruby

Rosie Thomas

9780007173549-l19-year-old, Ruby, driven by her difficult relationship with her mother, runs away from her home in England and seeks refuge with the grandmother she hasn’t seen for many years. Her unexpected arrival on Dr. Iris Black’s doorstep in Cairo brings life and disorder into the elderly woman’s house.

After a lifetime of independent living, Iris recognizes in herself the early signs of dementia. Lovingly cared for by her servant, Mamdooh, and her cook, Aunty, she has become increasingly reclusive, but the arrival of her granddaughter changes that. An unlikely bond forms between the two as Ruby attempts to help her grandmother record her fading memories.

Iris & Ruby is a richly textured story of love, loss, and the power of family relationships.

Through Ruby’s experiences and Iris’ memories, the novel moves seamlessly between present day Cairo and the same city during World War II. Thomas’ writing is wonderfully descriptive drawing us into the glittering parties and the devastating wartime losses of the 1940s; the sights, sounds, and smells of the crowded marketplace of today; and the timeless and relentless desert that surrounds them both.

I was drawn to this novel by the fact that I would love to visit Egypt someday. While preparing to write this post, I discovered that Literary Tours in Egypt actually offers a Rosie Thomas’ Iris and Ruby 2-day tour of Cairo! What a cool idea!

Styling an old favourite

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Logo by SamThis week I’m featuring a garment that has been in my wardrobe since my teaching days. Far from new when I retired in 2007, it’s over 20 years old and now qualifies as vintage in the fashion world. Although I don’t wear it very often, I keep it because I love it and on those occasions when I do pull it out, as I did for church last Sunday, it feels like I’m wearing something new. 

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I’m not actually sure what to call it. Since it can be worn alone, I guess it qualifies as a dress, but I’ve usually worn it over a blouse. As a child, I might have called it a jumper, but according to the dictionary, a jumper is actually “a collarless sleeveless dress, typically worn over a blouse”. Jumper is also a confusing word in the world of fashion. This definition is North American, but elsewhere, especially in the UK, a jumper is what we would call a sweater. 

Whatever we call it, this garment is versatile. Not only can it be worn without a blouse underneath, but it can also be worn without the belt. Styled very differently, it first appeared on the blog in this post written over 11 years ago, long before I added a weekly fashion post. 

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Today’s photos were taken very hastily as I was freezing. It was only 3ºC (37.4ºF) outside, but I wanted to take advantage of the last of our beautiful leaves before they were buried in snow! Sure enough, there was snow on the ground when we got up the very next morning! If I hadn’t been so cold, I probably would have taken a moment to ensure that the front wasn’t puckered. 

The Classic Blouse is from cabi’s Fall 2019 collection and was bought second-hand as were the cute booties. 

And now, this morning, I’m off to the grand opening of the new Uniqlo store in Southgate Mall in South Edmonton! Maybe more about that next Friday. 

Not exactly a fashion post

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Life has been a bit crazy lately between our usual fall/winter activities starting up again and numerous medical appointments for both hubby and I. More about that in the future when we have a better idea what’s going on, but for now, suffice to say that it’s been a bit difficult to focus on something as comparatively trivial as fashion. I will, however, share what I wore yesterday for what was probably our final hike of the year.

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I don’t usually wear graphic t-shirts nor do I often wear black close to my face, but this particular tee has significant meaning to me and I really wasn’t worried about what I looked like out on the trail! 

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The logo, known as The Creator’s Path, was created by Indigenous artist, Don Monkman, for Indian Life Ministries, an organization that I do volunteer work for that seeks to reach Native people across Canada and the United States with the good news of the gospel. If you look closely, you’ll see the cross surrounded by Christ wearing the crown of thorns, the two thieves on either side of Him, His nail pierced hands, the people who rejected Him piercing His side, and those who accepted His sacrifice kneeling in prayer. All of this is held within a circle representing creation. 

Anyway, back to our hike. It was an absolutely beautiful day, one of the last few in the forecast before winter is expected to hit early next week. We spent a couple of hours exploring one of our favourite hiking areas, Willow Creek Coulee, located near the village of Donalda, Alberta. With beautiful sunshine and a temperature of 23ºC (73ºF), it was hard to believe that snow and sub-zero temperatures might be just around the corner! 

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In addition to the t-shirt described above, I wore an older pair of chinos, my trusty Merrell hiking shoes, and a hat to shade my eyes from the sun. There are few things that I love more than the peace and quiet of nature. For awhile, I even forgot all about the headache that I’ve had for the past two weeks! 

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On the way back to the vehicle, we almost decided to do a bit of international travel, but we didn’t have our passports with us.

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Just kidding! 😂 That’s actually a new sign that has appeared on the fence of a property near the trailhead since the last time we hiked the coulee. The land is held by a member of a movement known as  Freemen on the Land, a group who believe that they can declare themselves independent of the government and any laws to which they have not consented. It takes all kinds, I guess! 

Not promising, but I’ll try to have a more conventional fashion post for you next week! 

Logo by Sam

 

What’s your style uniform?

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Logo by SamAnyone who has ever had to wear a prescribed uniform for school, work, a sport, or as a member of an organization knows that it has its benefits. Wearing a uniform is a great equalizer and it eliminates questions about whether or not what you’re wearing is appropriate for the setting or the activity. A uniform can also be a form of identity shorthand. We know that a person is a police officer because of the uniform that he or she is wearing.

But what is a style uniform and how does it benefit you? Essentially, it’s a combination of clothing that you know you can always rely on and feel comfortable wearing. It’s an outfit formula that you wear consistently, that you look and feel good in, that represents who you are, and that is practical for your lifestyle. It doesn’t have to look the same every day, although it can if you want it to. Having a style uniform takes the stress out of dressing and frees up your brain to focus on other things.

It was the great philosopher, Socrates, who gave us the key to discovering our personal style uniform when he said, “Know thyself!” Considering your habits, the level of comfort you prefer, and the types of activities you participate in will help you define your uniform. This is also where your personal style adjectives come into play. Choosing three to five adjectives to describe your personal style can be very helpful in building a style uniform that says what you want to say about yourself. For example, I want my outfit to say that I’m classy, confident, comfortable, casual, and authentic.

My style uniform consists of pants (usually jeans or cords), a pullover top, a third piece (cardigan, blazer, denim shirt, etc), earrings, and depending on the time of year and whether there is snow on the ground or not, sneakers or boots. Of course, there are occasions when I dress differently, but this is what you’d find me wearing most days.

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Here’s what I’m wearing today. None of these pieces is new and all have appeared on the blog before. This combination works for my lifestyle. The sleeveless top made it easy to have blood taken at the hospital lab this morning and with the cardigan over top, it gave my on-screen presence a semi-professional look for my online tutoring session this afternoon. In my opinion, it looks classy, confident, comfortable, casual, and authentic and when it comes to style, it’s truly our own opinion that counts!

So, what’s your style uniform? Do you have one?

Isabella Rossellini and I – this is what 71 looks like!

/ edebock / 12 Comments

I turned 71 yesterday, so I was intrigued to discover that Italian actress and model, Isabella Rossellini, who is also 71, is featured on the cover of this month’s issue of Italian Vogue.

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Even more delightful is the fact that the photo hasn’t been retouched! No photoshopping to eliminate the visible signs of aging.

Isabella is no stranger to ageism. At the age of 43, when she was dropped by Lancôme in favour of younger models, she was told that advertisements represent women’s dreams, not reality, and that women dream of looking young. More than 20 years later, in her mid 60s, she was invited back; perhaps a hopeful sign that there are positive changes taking place in the beauty industry.

Of course, for the magazine cover, Rossellini had the benefit of professional makeup artists, photographer, and lighting, but I also love the more natural look of this photo that she posted on Instagram recently.

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That’s a look that I can identify with; the look of a woman who is comfortable in her own skin, wrinkles and all. Born with scoliosis, Rossellini has had two major and very painful back surgeries. The idea of having surgery to alter her looks actually scares her. She isn’t interested in Botox injections either. She has a 28-acre organic farm on Long Island, New York and eats organic food, not to look younger, but to preserve her health. She says that doing Botox would completely contradict her chosen lifestyle.

Although she eschews cosmetic surgery and other attempts at hiding her age, Rossellini has been attentive to caring for her skin since she was a child. Her routine includes an eye cream, a face cream, and sunscreen. I, too, am diligent about skin care. In the morning, I wash my face with warm water and apply a day lotion with SPF 15 and UVA/UVB sun protection. At bedtime, I use a creamy facial cleanser with gentle exfoliants followed by a night cream. While I’ve been doing this since I was in my early 30s, I now use products that are specifically designed for maturing skin. I’m also very conscientious about using an SPF 50+ broad spectrum sunscreen whenever I spend much time outdoors.

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And there’s my without the benefit of professional assistance, just turned 71, wrinkles and scars, unretouched photo! Though I’m half blind without my glasses, I removed them so that they don’t hide anything.

Today, on my second day of being 71, I’m very thankful for role models like Isabella Rossellini; strong, elegant women who embrace their age and defy societal pressure to try to look younger than they actually are!

Logo by Sam

Book of the Month – September 2023

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I Am a Bacha Posh

Ukmina Manoori

9781629146812-usThe subtitle of this short, but intriguing memoir, My Life as a Woman Living as a Man in Afghanistan, tells much about the content of the book, but it could also be misleading to those of us living in western cultures. This is not a book about living a trans experience.

“You will be a son, my daughter.” With these stunning words young Ukmina learned that she was to spend the remainder of her childhood as a boy. This had nothing to do with gender confusion on her part. In Afghanistan’s heavily patriarchal, male-dominated society, it is customary for some families, especially those without sons, to choose a daughter to live, dress and behave as a boy, even taking on a boy’s name. These children are known as bacha posh which means “dressed up as a boy” in the Persian dialect, Dari.

Families have various reasons for making this choice and there are no statistics on how many families have daughters living as bacha posh. In most cases, due to the somewhat secretive nature of the practice, only the family, close friends, and necessary health and education officials know the bacha posh’s biological sex.

As a bacha posh, a girl has all the freedoms denied to her as a member of the female sex. Instead of staying at home cooking and cleaning, she can move about freely in public, attending school, running errands, playing sports, and sometimes finding work to help the family make ends meet.

Once a bacha posh reaches puberty, however, she is expected to revert to traditional female roles putting on the veil, staying at home unless accompanied by a male, and preparing for an early marriage. What makes Ukmina’s story unique is that when that time came, she refused. Confronting societal and family pressure, she continued to live as a man, not because of gender dysphoria, but because she doesn’t want to give up the the rights and privileges of a male in Afghan society.

Ukmina’s choice paved the way for an extraordinary destiny. She acted as a scout for the resistance when the Soviet Union invaded Afghanistan and ultimately commanded the respect of everyone she encountered. There did come a period of time when she lived in isolation and fear of the Taliban and even of some of her fellow villagers who didn’t agree with her life choices. Eventually, however, she entered politics and as an elected member of her provincial council, fights tirelessly to improve women’s rights.

Rather than telling you any more of her story, I’m simply going to share three quotations that I think wrap up Ukmina’s thoughts about her experience and the life of women in Afghanistan.

“Living in men’s clothing has given me a certain freedom. A life as a woman in Afghanistan is a life of destruction.”

“I say to myself that I have sacrificed nothing. I have done what I had to do. I became what I was. I found my destiny. And there is nothing I lack.”

“I also told myself that women were beautiful creatures of God. Men were cruel. I often asked Allah: “Give me the power of men and the kindness of women.””

If a novel about bacha posh would be more to your liking, I would highly recommend The Pearl That Broke Its Shell by Nadia Hashimi.

Changing seasons

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Logo by SamThe seasonal closet switch that I mentioned last week actually happened this week. Almost. I did leave a few pairs of summer pants in the closet in case we get some more warm days, but the shorts have all been put away. Most of my summer tops are now in storage too, although I do leave a few sleeveless tops in my closet year round as I’ll wear them under jackets and sweaters during the colder months.

These twice a year seasonal switchovers are an excellent time to evaluate and decide what to keep and what to get rid of. As I put the new season’s clothes into the closet, I turn all the hangers around. Then, when I wear an item, I turn its hanger back the right way. At the end of the season, if an item is still hanging backwards, it’s a clear signal that I need to consider whether or not to keep it. This year there were several spring/summer items that I hadn’t worn, but I didn’t feel ready to let go of some of them yet, so I separated them from the others in storage. I’ll reevaluate in the spring and decide then whether to keep them for another season or not. I did get rid of a few things though. Two pairs of capris that were too worn out to keep or to pass on to anyone else went out with yesterday’s garbage and a few other pieces are destined for the second-hand store. Bringing the new season’s clothes back into circulation almost feels like having something new to wear. There were even a few pieces in my fall/winter wardrobe that I’d forgotten all about over the summer!

But how do we dress for this “wear a sweater in the morning and regret it in the afternoon” shoulder season without constantly changing clothes? After all, the temperature can be barely above freezing in the morning, above 20ºC (68ºF) in the afternoon, and chilly again as soon as the sun starts to go down.

As always, layering is the key.

In this example, my base layer consists of a sleeveless top and a pair of mid weight chinos. In the morning, I added warm socks, sneakers, and a cardigan. In the afternoon, I shed the socks and sweater, rolled up the cuffs of my pants, and switched out the sneakers for a comfortable pair of flats.

Everything I’m wearing in these photos has been in my wardrobe for at least three years and has appeared on the blog before except the sleeveless top which is new to me. It was part of the cabi Fall 2018 collection. I have no idea where it’s been hiding for the past five years, but when I found it in our local thrift store recently, it looked like it had never been worn. It originally sold for $99 CAD and I bought it for $2.50! Is it any wonder that I love thrift store shopping?

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And, totally off the topic of today’s post, you may remember that on May 1st, I challenged myself to walk and/or hike 350 kilometres by the end of October. I’m excited to report that I crossed the imaginary finish line yesterday afternoon, a full month early!

Wear what makes you feel good

/ edebock / 3 Comments

Logo by SamTomorrow is officially the first day of fall. Today’s post was supposed to be about my seasonal closet switch from spring/summer to fall/winter, but life happened and the transition didn’t. Actually, I had a choice between spending time in my closet or packing the trailer for one last camping trip and you can probably guess which one I chose!

I’ve been trying hard to hang onto summer for as long as I can, but hubby has been raking leaves all week. Mornings are crisp and evenings chilly. Harvest is well underway all around us and geese are flying overhead. Whether I like it or not, they’re heading south! Though my summer clothes are still in the closet, the days of wearing shorts, sandals, and sleeveless tops are over and I’m reaching for warmer things.

As much as I try to resist the coming of winter, there are things that I’m looking forward to wearing again, especially cozy sweaters and boots. One pair of boots in particular! So, the transition will happen this coming week, or at least that’s my plan. We all know that plans are flexible though, especially in retirement!

In the meantime, I’ll leave you with this thought.

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Regardless of what season it is where you are, wear what makes you feel good!