Hitting the Covid-19 wall

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Do you feel like you’ve hit a wall where Covid-19 is concerned? Have you simply had enough with all the restrictions imposed by the pandemic? I know I have!

I admit that as retirees, we’ve had it easier than many. We don’t have jobs or a business to worry about or children at home. My father, our last remaining parent, passed away ten days before the World Health Organization declared the rapidly spreading coronavirus outbreak a pandemic, so we don’t have elderly parents in care facilities to worry about. Nevertheless, I’ve definitely hit the proverbial wall. Like many others, I’m tired and frustrated.

Experts tell us that this isn’t unusual. Dr. Aisha Ahmad, Associate Professor of Political Science at the University of Toronto who has has conducted fieldwork on conflict dynamics in Afghanistan, Pakistan, Somalia, Lebanon, Mali, and Kenya, recently summed it up this way: “The 6 month mark in any sustained crisis is always difficult. We have all adjusted to this “new normal”, but might now feel like we’re running out of steam. Yet, at best, we are only 1/3 the way through this marathon. How can we keep going? First, in my experience, this is a very normal time to struggle or slump. I always hit a wall 6 months into a tough assignment in a disaster zone. The desire to “get away” or “make it stop” is intense. I’ve done this many times, and at 6 months, it’s like clockwork.”

With the pandemic dragging on and no end in sight, it’s easy to become discouraged. In our part of the world summer is over. The days are getting shorter and the hours of darkness longer. We’ve enjoyed beautiful fall weather throughout the month of September, but the long cold winter is just around the corner. People will soon feel more shut in than ever. Add to that the fact that Thanksgiving is almost upon us (we celebrate it in October in Canada) and not long after that, Christmas. Those are times when families usually come together to celebrate, but much of the spread of Covid-19 over the summer has been the result of family gatherings. There’s a lot of uncertainty in many families about how to observe these holidays this year. 

One of my greatest sources of frustration is the urge to travel. It may not make sense to a lot of people, but wanderlust (a deep, uncontrollable desire to travel and explore the world) is real. With interprovincial travel discouraged and international borders closed, I’m beginning to feel trapped. Yesterday, I jumped in the vehicle and drove down country roads just to try to appease that feeling! 

Then there’s frustration over the divisiveness of this thing. With more than 1 million deaths due to Covid worldwide, there are still those who believe that it’s a hoax or a conspiracy cooked up by “the” government to take control of our lives. I still haven’t figured out which government they’re referring to or why they think that all the governments of the world would come together to destroy their own economies! I was actually told yesterday that it’s all a plot to derail the upcoming election in the United States! What ever happened to calamity drawing people together? It certainly hasn’t happened this time! 

Anyway, enough of my ranting! Thankfully, Dr. Ahmad also offers hope. “This is my first pandemic, but not my first 6 month wall. So, what can I share to help you? First, the wall is real and normal. And frankly, it’s not productive to try to ram your head through it. It will break naturally in about 4-6 weeks if you ride it out.” I sure hope she’s right! 

In the meantime, what can we do to help alleviate that hitting the wall feeling? Nicole Haughton, a registered psychologist based in Toronto, suggests that that maintaining a proper diet, exercising regularly, going out for fresh air, and engaging in spiritual practices or mindful meditation can be beneficial to mental health during this time.

For me, writing about my feelings is cathartic, but here are a few other suggestions:

  • Give yourself something to look forward to. I can’t plan a major trip right now, but I can plan an overnight getaway for our upcoming anniversary. 
  • Step back from social media and limit the amount of news you consume. I definitely need to take this one to heart!
  • Clean out or reorganize something. It could be the kitchen cupboards, a closet, a filing cabinet, or the garage. The simple act of bringing organization to chaos where we’re able to can be very freeing. I did a lot of this back in the early days of Covid-19, but it’s been awhile. Now it’s time to do my seasonal wardrobe switch and reorganize my closet for winter. Having some “new” clothes to wear might also be a pick me up. 
  • Start a gratitude journal. It’s easy to spiral into negativity, but even in these strange and somewhat difficult days, we all have much to be thankful for.  

Finally, psychologist, Dr. Heather McLean, asks her clients to rate themselves on this scale and tells them, “If you see you are on the low end of any of these these, get busy and problem solve, think outside the box, and ask others for help on how to fix it.” 

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Though the pandemic is likely going to be with us much longer than anyone hoped or predicted, I do trust that it will come to an end. For now, I just need to focus on getting through this blasted six month wall instead of bashing my head against it!

HOOFED IT!

Over a three day period while camping at Miquelon Lake Provincial Park this past week, Richard and I hiked a total of 23.9 km, pushing me to within just 2 km of my final HOOFING IT Across Canada goal. This evening, under dark cloudy skies that look like they were about to let go and pour rain, I crossed my self-imposed finish line! Since July 1st, I’ve HOOFED IT 179.5 kilometres (111.5 miles). That’s 2.5 km more than the distance from our front door to the Cross Cancer Institute in Edmonton where I receive all my neuroendocrine (NET) cancer care.

If you’ve been reading my blog or following me on Facebook this summer, you know that I’ve been taking part in the CNETS Canada campaign to raise funds for NET cancer research. The goal was for participants to rack up 5514 km, the distance from Newfoundland and Labrador to the Yukon, by walking, hiking, kayaking, swimming, cycling, roller-blading, or any other forward moving activity that they could think of. We did that in spades, criss-crossing Canada almost five times!

Fundraising has been a bigger and vastly more important challenge. This evening, we’re sitting at just over $73,000, but approximately $20,000 of that has come in over the past ten days! For that reason, the deadline for making donations has been extended to September 25. With an extra two and a half weeks, we’re hopeful that we can bring in the final $27,000 necessary to continue funding critically needed neuroendocrine cancer research.

The need for research and awareness was brought home to me again this afternoon when I spent some time chatting online with a NET patient in another Canadian province who was diagnosed in May of this year. She’s been seen by an oncologist and has had surgery, but she hasn’t been referred to a NET specialist. She hadn’t even heard of Sandostatin, the injection that I’ve been receiving every 28 days since diagnosis. It’s been the workhorse medication for neuroendocrine cancer patients for the past 30 years, but her oncologist may never have encountered a NET patient before and may have little or no idea how to treat it. Sadly, this is a common occurrence for NET cancer patients!

Today, with so much attention being directed toward COVID related research (and rightly so) a relatively unknown cancer like ours can easily get overlooked. With many people facing financial difficulties, it’s not easy to keep asking for donations, but let me do it one more time. If you haven’t already and you’re able to give even a small donation, please visit my fundraising page and help us reach our goal. Every dollar counts!

How to stay cool while wearing a mask

LogoWhether we think they’re necessary, absolute foolishness, or an infringement on our rights and freedoms, it appears that face masks are here to stay at least for the foreseeable future. More and more municipalities and establishments are making them mandatory. Since that’s the case, the next question to ask might be how can we wear them most comfortably, especially in the heat of summer. Here are a few tips that might help.

  1. Choose the right mask. Tightly woven, but breathable fabrics such as cotton or bamboo are the best choice for comfort in hot weather. The thin, usually blue, disposable masks that many people wear aren’t as breathable so they tend to be hotter. The downside to cotton masks is that they absorb more moisture and may become damp, so it’s a good idea to have more than one with you on a hot day. A damp mask isn’t only uncomfortable, it’s less effective at blocking the virus. If you’re going to be wearing a mask outdoors, also consider colour. A lighter colour will be cooler than a dark one.
  2. Make sure it fits properly. A mask should fit securely, but be roomy enough that it doesn’t interfere with breathing.  
  3. Avoid the hottest part of the day. When possible, run errands first thing in the morning or in the evening.
  4. Go makeup free. Dermatologists recommend wearing masks over clean, lightly moisturized skin. Sweat won’t evaporate under a mask. Mixed with makeup or oily skin care products, it collects and clogs pores leading to what has been dubbed “maskne” (mask + acne). If you’re going to be wearing a mask outdoors for an extended period of time, do use a lightweight sunscreen or a moisturizer with SPF.
  5. Stay hydrated. Drinking plenty of water is always important in hot weather, but even more so when wearing a mask. It’s fine to remove your mask to take a drink, but do it when you’re a safe distance from other people and only handle it by the elastic loops or ties.

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If you have a sewing machine and basic sewing skills, making your own masks is simple and a great way to use up fabric scraps. There are many excellent tutorials online. I made these two this week using this one.

 

Just wear the mask!

I’ve avoided wading into the wearing of masks fray because I know that it’s controversial and has the potential to erupt into another nasty conversation on Facebook similar to the one provoked by my “redneck thinking” post back in April, but I can’t stay silent any longer. I am absolutely mind boggled that this is even an area of debate! Are people so stressed and so unhappy these days that they will jump at any reason to protest?

In an attempt to understand this controversy, we need to back up several months. In the very early days of the Covid-19 pandemic, public health officials thought that the virus was primarily transmitted by people touching contaminated surfaces and then their faces. Frequent hand washing, the use of hand sanitizers, and refraining from touching your face were thought to be the best ways to prevent its spread. At first, both the World Health Organization (WHO) and the Centers for Disease Control and Prevention (CDC) said that wearing masks was unnecessary. As time progressed, however, and more was learned about this new virus, it became clear that this early thinking was inaccurate. Instead, researchers now realize that Covid-19 is primarily spread by inhaling virus-laden droplets expelled by an infected person. As time passed and studies were conducted, it also became clear that people can transmit the virus before they begin to experience symptoms and, in fact, that some people who remain asymptomatic are actually contagious. These factors explain the more recent recommendation that people wear masks in public, especially in situations where it’s difficult to maintain distance between one another. Perhaps changing advice midstream led to confusion and fuelled the anti mask movement, but I think that there are also other reasons why it’s become necessary for many businesses and municipalities to make wearing masks in public spaces mandatory.

Denial is clearly at the root of some people’s refusal. In spite of all the information to the contrary, there are still those who refuse to accept the severity of this worldwide plague. Conspiracy theories abound and negative voices question the research and the data that it presents.

At the individual level, some people protest that their personal rights and freedoms are being infringed upon when they’re told that they must cover their mouths and noses. They selfishly choose to put personal comfort above the welfare of others. We all know that wearing a mask isn’t particularly comfortable. If you’re a glasses wearer, as I am, there’s the added frustration of fogged up lenses, although I’ve discovered that folding a Kleenex (tissue) into a strip and placing it across the bridge of my nose under the top edge of the mask helps a lot. I don’t like wearing a mask any more than anyone else does, but I wear one because I don’t walk this planet alone and I don’t want to take a chance on unknowingly passing a deadly virus to someone else, particularly one of the more vulnerable amongst us. As my specialist put it so succinctly when we discussed the topic at my appointment yesterday, “In our culture, too many people think only about their rights and freedoms while forgetting that we also have responsibilities.” In Genesis 4:1-12 and elsewhere throughout scripture, God answers the question, “Am I my brother’s keeper?” with a resounding YES! Jesus said that the greatest commandment is to “Love the Lord your God with all your heart and with all your soul and with all your mind.” The second is to “Love your neighbour as yourself.” In the days of Covid-19, loving your neighbour often involves wearing a mask!

Some of the excuses that I’ve heard for not wearing masks are absolutely ludicrous.

  • Wearing masks causes oxygen deprivation or carbon dioxide poisoning or similarly, rebreathing dirty moist air will make me sick. In reality, the fibres that cloth and surgical type masks are made from aren’t dense enough to block the exchange of gases and air can also get in around the edges. The only time that this excuse might be considered legitimate would be during strenuous exercise. If this is a concern, exercise outdoors instead of in a gym and maintain distance from people who aren’t part of your household or “bubble”.
  • The mask prevents communication. Sound passes easily through masks! This is only a legitimate concern for those who are hearing impaired and who depend on lip reading. Masks with clear panels are available for those who interact regularly with someone for whom this is an actual problem.
  • Masks hide our beautiful smiles. The world will survive without your beautiful smile until this pandemic eventually comes to an end!

And then there’s the one that I’ve seen circulating around on Facebook since our province announced that masks will be required in schools for students from grade 4 to 12. Masks make children unidentifiable and assist in human trafficking! Now that’s really grasping at straws! There is absolutely no question that human trafficking is an incredibly heinous crime and far more prevalent that most people are aware of or willing to admit, but to make the wearing of masks about human trafficking is a ridiculous stretch and an insult to intelligence.

Perhaps living in Asian countries where wearing a mask when you have a simple sniffle has long been a common courtesy has influenced my thinking on this topic, but I’m truly astonished by the tempest that this has created here in North America. As more businesses and municipalities make masks mandatory, the furor increases, but there’s really one simple answer for those who don’t want to comply. If you choose not to wear a mask, stay home!

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Playing pretend – fantasy backyard book party

LogoAs a child, I loved playing pretend. You probably did too, but as we got older, real life pressed in and the world of make-believe was all but forgotten. Apparently, not so for retired high school English teacher, Sue Burpee, who has hosted two virtual parties for the readers of her blog, High Heels in the Wilderness, since the Covid-19 shutdown began.

In her blog, Sue writes about fashion, travel, books, and life in general. I’ve been following her for several years and had the privilege of “attending” both her parties. The first, in early April, was an afternoon tea at the historic Chateau Laurier in Ottawa and the second, this past Saturday, a book party at her home overlooking Ontario’s Rideau River. And what a party it was!

Since we came from across Canada and around the world, it was an overnight affair complete with an old-fashioned, down-east lobster and corn boil at supper time and houseboats on the river to accommodate us for the night! You can read all about it here.

The invitation told us to dress casual, cool, and comfortable and to be sure to bring a hat. After contemplating my closet and considering several different options, here’s what I chose.

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The white crop pants are a basic piece that have been in my wardrobe for several years and the light, airy Scallop Top from cabi’s Fall 2019 collection was perfect for the heat wave that the Ottawa area has been experiencing lately. My Summit Breeze crushable hat was easy to pack and provided great protection from the sun. Of course, I also wore lots of sunscreen! I knew I’d want to stroll around Sue’s lovely property, so I wore a comfortable pair of Naturalizer sandals that I’ve had for several years.

Since this was a book party, Sue also asked each of us to bring a book that had had a significant impact on us to share with the other guests. Again, how to choose? There have been so many! Probably the book that has had the most profound impact on me, other than the Bible, is Half the Sky: Turning Oppression into Opportunity for Women Worldwide by Nicholas D. Kristof and Sheryl WuDunn, but I don’t actually have a copy of it right now. Instead, I chose one of the memoirs that I’ve been reading during Covid-19. A Good Wife: Escaping the Life I Never Chose, by human rights activist Samra Zafar, is the inspiring story of a courageous and determined woman who walks away from a harrowing past and builds a new life for herself and her two daughters. An arranged marriage in her native Pakistan at age 17 and a subsequent move to Canada with her new husband promised to be the fulfillment of her dreams, but instead turned into an abusive nightmare. I was impressed by her grit and determination and reminded that many women, especially amongst our immigrant population, live lives shaped by cultures that we have little understanding of.

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Yes, a virtual party during these most unusual days was just what I needed! I feel like I’ve had the opportunity to connect with a whole group of like-minded women from around the world and I’ve added several new books to my ‘must read’ list.

Many thanks, Sue!

Back in business, but without a fitting room

LogoOur local thrift store reopened on Tuesday. My main reason for going in that afternoon was to drop off a load of things that I’d sorted out of my closet, the storage room, and the kitchen cupboards over the past few months. I also wanted to see if I could find some more  books to read because I’d finished most of the ones I picked up prior to Covid-19. Of course, I couldn’t be in the store for the first time in over four months and not take at least a quick look at the clothes too!

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Almost immediately, I spied a cute pair of Simon Chang capri pants. They looked like they might be the right size, but as I’ve mentioned before, I have a hard time finding pants that fit my boyish figure. If they fit at the waist, they often bag at the hips. If the hips fit properly, they’re too tight at the waist. Like many stores, however, there were some restrictions in place due to the pandemic and the fitting room was closed. Should I buy the pants anyway? At just $3, what did I have to lose? There are no refunds, but if they didn’t fit I could simply donate them back.

OR… I could try them on anyway! That’s right. Savvy thrift store shoppers know that not every second-hand store has a fitting room, though most of them do. As I mentioned in a post entitled 18 Tips for Successful Thrift Store Shopping, if you have to try things on in the aisles, you want to be able to do it easily and modestly, so it’s a good idea to dress with that in mind. Even if there is a dressing room available, wearing leggings, a cami, and slip on shoes makes trying things on a breeze, but on Tuesday I hadn’t come prepared. I was wearing pants, not leggings. How could I try on those cute capris?

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I wouldn’t do this in a regular retail store, but I simply took those pants over to the circular rack of skirts and dresses which is up against one wall of the store and found a long skirt with an elastic waist. Standing where I was largely out of view, I slipped it on over my pants, and you guessed it… I discretely removed my pants from beneath the skirt and pulled on the capris! There weren’t many shoppers in the store at the time and I don’t think anyone even noticed. Sometimes unusual times call for unusual measures!

The pull-on capris are made of a very comfortable stretch fabric with a nice wide waistband, but it was the tiny polka dots that attracted my attention. Polka dots are very much on trend this season and I’ve been wanting to add some to my wardrobe.

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I’m wearing my new pants with one of my brightly coloured golf shirts, my Nordgreen watch with it’s navy leather band, and a pair of Naturalizer sandals that I’ve had for years.

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HOOFING IT Across Canada update:

I’ve walked 22.99 kilometres since starting the challenge on July 1st and thanks to many generous donors, I’m slightly over half way to my fundraising goal of $1500 for neuroendocrine cancer research.

Chinos

LogoI finally went clothes shopping this week! To be more truthful, we were in the city for an appointment and I went into one clothing store. Just one!

After weeding several things out of my closet that should never have made the cut when I did my seasonal closet switch last fall, I identified a couple of significant holes in my summer wardrobe. As I mentioned two Friday’s ago, I have lots to wear when the weather is hot, but where we live I need things that are suitable for cooler summer days like the ones we’ve been having recently. One thing that I clearly needed was a couple of pairs of pants that would be warmer than my shorts and capris, but cooler than jeans.

Though I don’t shop for clothes online, the internet is a great place to do some scouting, especially during these days of Covid-19 when I don’t want to spend a lot of time browsing. I’d much prefer to go into a store, buy what I want, and leave again without lingering. When I knew that we’d be going to the city, I checked out the Mark’s website in advance and decided that their chinos might be just what I was looking for. Chinos are a nice middle ground between dress pants and jeans for both men and women.

The first thing I did when I entered the store was check to see if the fitting rooms were open. If I couldn’t try the pants on, there’d be no point in me even looking at them. Thankfully, a limited number of them were in use and there weren’t a lot of customers in the store so I didn’t even have to wait in line.

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Finding pants that fit well is often a struggle for me, but Mark’s slim-fitting, tapered leg chinos were perfect for my boyish figure. The toughest decision was which of the several colours to choose! I settled on two pairs; one in a light tan called Stone and the other in a dark Olive. Both will be very versatile. I’m showing you the light pair today, but I’m sure that the others will show up on the blog sometime soon. The bottom hem is meant to be rolled to ankle length, but they can also be worn down.

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I didn’t realize until after we’d finished taking the pictures that I’d forgotten to put on any lipstick, so this is my au naturel, at home look! Actually, I’d just got back from having several vials of blood taken at the local hospital, so perhaps I was even a bit paler than usual!

Being a word nerd, I couldn’t help doing a bit of research to find out how chinos got their name and what it actually meant. Apparently, the word was first used to describe khaki coloured military trousers that were worn during the Spanish American war of 1898. They were made from a cotton twill fabric that was sourced from China, so the name came from the fact that Chino is the Spanish word for Chinese. Thankfully, my new pants, which are made of a stretch cotton blend, were not made in China as one of my fashion goals for this year is to avoid buying Chinese products as much as possible. Of course, I have no idea where the fabric came from. As I’ve mentioned before, being a truly ethical shopper is very difficult, but I try.

In a wardrobe funk

LogoLiving as I do in a location that has very distinct seasons, I have two almost entirely different wardrobes. There are, of course, some pieces that stay in my closet year round, but I do a seasonal wardrobe switch twice a year. Our bedroom closet isn’t very big, so the off-season clothes go into storage in the basement. Before that happens, I usually do a good sort and try to get rid of things that are taking up space and not likely to be worn again. I say “try to” because I’m not always good at letting go of things. That’s definitely part of what has led to my present wardrobe funk. It’s barely past the middle of June and I’m already feeling fed up with my summer wardrobe! There were things that I fully intended to get rid of at the end of last summer, but when it came time to do that, I wasn’t disciplined enough. Instead, they went into storage and when I hung them back in the closet this spring, I was immediately discouraged by what I saw. That’s definitely not a good way to start a new season!

And what a season it’s been! The monotony of the Covid-19 quarantine has definitely added to my present feeling of discouragement with my wardrobe. Though I firmly believe in getting dressed every morning and not hanging around the house in pyjamas or sweats, the shutdown has seriously limited where we’ve been able to go and consequently what I’ve worn. There are a number of dressier items languishing in my closet simply because I’ve had nowhere to wear them.

Then there’s the weather. Last year we basically didn’t have summer. It was the coldest, wettest summer that I can ever remember. Though we’ve had a few really nice days this year, it isn’t starting out a lot warmer. I still enjoy wearing shorts and sleeveless tops on hot days, but with temperatures barely creeping above 20ºC (68ºF) most days and some not even that warm, I need things that are suitable for cooler days. That’s where the choices in my closet are most limited; another reason for my present wardrobe woe.

A poorly curated closet + a pandemic + gloomy weather = a serious wardrobe funk! 

So, what am I going to do about it? This year, I’m not going to wait until the end of summer to weed out the items in my closet that should no longer be there. I already have a collection of clothing and other things to drop off at our local thrift store as soon as it reopens and I’m going to start adding to it right now! Although the Covid restrictions are starting to loosen, it’s probably going to be awhile before I go shopping for anything new, but once I’ve pared down the closet to those things that I actually want to wear again, I’ll take a close look at where the gaps are and make a wish list. That way, when I finally do go shopping, I’ll be prepared! In the meantime, I’m also going to work even harder than I already have been at putting together new and different combinations from the items that are already in my closet. Who knows, maybe I’ll even find some interesting ones to share with you in future posts.

Now, how are you doing? Have you found yourself in a funk lately… wardrobe or otherwise?

Emerging

6b418a7e1c894727282ae55335b6bb1aLike butterflies coming out of cocoons, we’re gradually emerging from the Covid-19 shutdown and figuring out what living in this new world is going to look like. I don’t know about anyone else, but I’m finding it a little bit unnerving. My cocoon was comfortable. I knew exactly what to do and what not to do. I wasn’t worried about contracting  the virus because we easily kept our distance from other people and almost never left our county where there hasn’t been a single confirmed case. Thankfully, I was able to fit the local golf course into my cocoon!

Even though Alberta entered the first phase  of a three stage relaunch strategy back on May 14, nothing really changed for us. Now, with the introduction of Stage 2 on Friday, a week ahead of schedule, bigger changes are happening. In addition to those businesses that were deemed essential and never closed, as well as those that reopened in Stage 1, theatres, libraries, places of worship, casinos, bingo halls, arcades, and recreational facilities including gyms and pools, as well as many other similar facilities, can now be open. Personal services, including skin and body treatments, facials, manicures, pedicures, waxing, and tanning are also allowed now.

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Life at this stage is a bit like the newly emerged butterfly; somewhat fragile and facing many unknowns. As we step out of our cocoons, we need to decide which of the many available options we feel comfortable resuming right now and what precautions should be taken when we do.

Though we’re being reminded to remain diligent about social distancing and to wear masks when that’s not possible, I’m concerned that many people seem to think the crisis has passed and are becoming lax about following the recommendations. If that continues to happen, I foresee an upswing in Covid cases and possibly a need to shut things down again. Though my cocoon was comfortable and safe, I don’t want to have to hide away in it for any longer than necessary, so while we spread our wings, please let’s do it with care and caution!

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Celebrating survival!

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Today, the first Sunday of June, is National Cancer Survivors Day, an annual, worldwide celebration of life set aside to honour the millions of people worldwide who are living with and beyond cancer and to raise awareness of the challenges that they face.

Major advances in cancer prevention, early detection, and treatment have resulted in longer survival, but a cancer diagnosis can leave a host of problems in its wake. Physical, financial, and emotional hardships often persist for years after diagnosis and treatment. Depending on where they live, survivors often contend with rapidly rising drug costs, inadequate insurance coverage, difficulty finding or keeping employment, and a lack of understanding from family and friends. Despite these difficulties, cancer survivors can live active, productive, inspiring lives.

So what is a survivor? To many, the term ‘cancer survivor’ suggests a person who has beaten their cancer; perhaps one who has been cancer free for several years, but I like the definition used by the National Cancer Survivors Day Foundation. “A ‘survivor’ is anyone living with a history of cancer – from the moment of diagnosis through the remainder of life.”

In other words, I am a survivor! In fact, I’m a three times survivor.

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I live with cancer every day. Unless a cure is found for neuroendocrine cancer (NETS) within my lifetime or God performs a miracle on my behalf, I will never be cancer free. People have a hard time grasping the idea of a chronic cancer. The usual assumption is that patients either die of their disease or they are cured, thereby becoming cancer survivors, but I look at my situation differently. I may eventually die of my cancer or I may die with it, but either way, I am a survivor! Fortunately my NETS is stable at this point and it doesn’t significantly impact my day to day life. I’ve had all the PRRT treatments that I can have, but a monthly injection given here in my home by a visiting nurse seems to be keeping things under control. I had my 87th of these “butt darts” just over a week ago.

I’m also a cancer survivor in the more tradition sense, as in one who had the disease, but is now free of it. As many of you know, seven months after my NETS diagnosis, I was diagnosed with a second, completely unrelated cancer that was removed surgically. Six weeks of radiation followed and, since that time, there has been no recurrence.

Cancer number three, most likely caused by the radiation that I received for the other two, was discovered in my thyroid almost exactly a year ago. Though it’s not a particularly aggressive form of cancer, it’s the one that concerns me the most right now. I was supposed to see my specialist two months ago and have an ultrasound to determine whether or not the cancer is growing. Thanks to Covid-19, that didn’t happen and it’s been eight months since my thyroid was last looked at. Though my specialist still isn’t seeing patients except in emergency situations, I decided to do a bit of self-advocating and his office is now in the process of trying to arrange for me to have an ultrasound done in a hospital closer to home in a small city that has only had one Covid-19 patient.

Yes, in spite of all this, I am a survivor! Survivors are people from all walks of life, of all ethnicities and income levels. They’re children, moms, dads, and grandparents. They may be your coworkers, friends, and loved ones. Traditionally, National Cancer Survivors Day celebrations have included parades, carnivals, health fairs, awareness walks, candle-lighting ceremonies, and other community events. This year, due to Covid-19 restrictions, the celebrations may be somewhat more subdued, but life with and after cancer goes on and it ought to be about more than just surviving. It ought to be about living well and that’s always something to celebrate!