Cancer

Celebrating survival!

/ edebock / 10 Comments

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Today, the first Sunday of June, is National Cancer Survivors Day, an annual, worldwide celebration of life set aside to honour the millions of people worldwide who are living with and beyond cancer and to raise awareness of the challenges that they face.

Major advances in cancer prevention, early detection, and treatment have resulted in longer survival, but a cancer diagnosis can leave a host of problems in its wake. Physical, financial, and emotional hardships often persist for years after diagnosis and treatment. Depending on where they live, survivors often contend with rapidly rising drug costs, inadequate insurance coverage, difficulty finding or keeping employment, and a lack of understanding from family and friends. Despite these difficulties, cancer survivors can live active, productive, inspiring lives.

So what is a survivor? To many, the term ‘cancer survivor’ suggests a person who has beaten their cancer; perhaps one who has been cancer free for several years, but I like the definition used by the National Cancer Survivors Day Foundation. “A ‘survivor’ is anyone living with a history of cancer – from the moment of diagnosis through the remainder of life.”

In other words, I am a survivor! In fact, I’m a three times survivor.

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I live with cancer every day. Unless a cure is found for neuroendocrine cancer (NETS) within my lifetime or God performs a miracle on my behalf, I will never be cancer free. People have a hard time grasping the idea of a chronic cancer. The usual assumption is that patients either die of their disease or they are cured, thereby becoming cancer survivors, but I look at my situation differently. I may eventually die of my cancer or I may die with it, but either way, I am a survivor! Fortunately my NETS is stable at this point and it doesn’t significantly impact my day to day life. I’ve had all the PRRT treatments that I can have, but a monthly injection given here in my home by a visiting nurse seems to be keeping things under control. I had my 87th of these “butt darts” just over a week ago.

I’m also a cancer survivor in the more tradition sense, as in one who had the disease, but is now free of it. As many of you know, seven months after my NETS diagnosis, I was diagnosed with a second, completely unrelated cancer that was removed surgically. Six weeks of radiation followed and, since that time, there has been no recurrence.

Cancer number three, most likely caused by the radiation that I received for the other two, was discovered in my thyroid almost exactly a year ago. Though it’s not a particularly aggressive form of cancer, it’s the one that concerns me the most right now. I was supposed to see my specialist two months ago and have an ultrasound to determine whether or not the cancer is growing. Thanks to Covid-19, that didn’t happen and it’s been eight months since my thyroid was last looked at. Though my specialist still isn’t seeing patients except in emergency situations, I decided to do a bit of self-advocating and his office is now in the process of trying to arrange for me to have an ultrasound done in a hospital closer to home in a small city that has only had one Covid-19 patient.

Yes, in spite of all this, I am a survivor! Survivors are people from all walks of life, of all ethnicities and income levels. They’re children, moms, dads, and grandparents. They may be your coworkers, friends, and loved ones. Traditionally, National Cancer Survivors Day celebrations have included parades, carnivals, health fairs, awareness walks, candle-lighting ceremonies, and other community events. This year, due to Covid-19 restrictions, the celebrations may be somewhat more subdued, but life with and after cancer goes on and it ought to be about more than just surviving. It ought to be about living well and that’s always something to celebrate!

 

100 pounds!

/ edebock / 10 Comments

I started lifting weights in the early 1990s. It was never my intention to become a body builder, but I had recently entered my 40s and I thought that it might be a good idea to do something to try to keep in shape. We already had the equipment in the basement and hubby, who was a phys ed teacher at the time, had been lifting for several years, so I had him set up a routine for me and my lifting days began. I would never have foreseen that I’d still be lifting all these years later!

Unlike many serious lifters who work out year round, we only lift from mid October until the end of April each year; the months that the golf course is closed. We have a short summer season here in Alberta and we want to spend as much of it as possible engaging in outdoor pursuits, not working out in the basement! Over the almost three decades that I’ve been lifting, I’ve had good seasons, bad seasons, and  even one when I didn’t lift at all. We spent that year teaching English in Japan and rather than seeking out a gym to join, we spent as much time as we could seeing the country and soaking up the culture. There were also a couple of partial seasons including the winter that we headed off to China to spend a semester teaching there.

My best year to date was the winter of 2005-2006. I was 53 years old and many years pre cancer. At the end of that season, I was bench pressing 97.5 pounds. Why I never pushed myself to add just 2.5 more pounds and press 100, I’ll never know! I suspect that the golf course opened and I probably thought that I’d be able to push that little bit further the following year. In ensuing years, however, I never made it past 90 pounds again. That is until this year!

Each of the past few years, I had a midwinter PRRT treatment that set me back strength-wise, but I kept on pushing myself and refused to quit completely. Am I ever glad I did! I guess I didn’t realize how much those treatments were actually taking out of me, but I haven’t had one since last June and I cannot believe how strong I’ve felt this year. Today I did something that I gave up hope of ever doing a long time ago. I bench pressed 100 pounds! That might not seem like a lot to many more serious lifters, but to me, at 67 years old with two cancers, it was huge!

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It was back in February that I first caught a glimpse of potentially reaching a new personal best. It was definitely on a distant horizon, but barring injury or sickness, it might just be possible. It was very shortly after that thought crossed my mind, however, that we got the call telling us that my father was dying. We had to drop everything and head for Vancouver. With that interruption, I thought the possibility was gone, but when we got home, I picked up where I’d left off and soon realized that it might still happen. I’ve continued lifting later into the spring than I normally do partially because, with the Covid-19 shutdown, there wasn’t a lot else to do, but mostly because I was so close to reaching my goal and I simply couldn’t let it slip through my fingers this time.

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Definitely feeling pretty proud of myself!

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One day at a time

/ edebock / 4 Comments

I’ve been pondering why it is that I don’t seem to be as stressed out by the Covid-19 shutdown as many people around me are. First of all, I acknowledge, as I have before, that I have it easier than many. As a retiree, I don’t have a business to close, a job to lose, or children at home. Trusting in a God who makes manna also makes all the difference in the world, but I believe that there’s another factor as well.

For most of my life I was a long term planner to such an extent that I tended to live more in the future than the present. When I retired a little over a decade ago, one of my primary goals was to learn to live more in the moment. I didn’t anticipate that cancer would be what it took to teach me that, but when we’re not guaranteed a future (none of us really is), we start to look at life quite differently and each day becomes a gift. What I’ve discovered about myself during this unusual time is that I truly have met my goal! While people all around me are worrying and making dire predictions about how long this is going to last, I’m finding myself quite unbothered by that aspect of it. I’ve learned to inhabit one square on the calendar at a time and I’m not giving a lot of thought to what the future will bring. It’s very much a “que sera, sera” attitude, but it seems to be serving me well!

I’m sad that I won’t be able to celebrate with two grandchildren who have birthdays in the next couple of weeks and that the trip we were planning for next month had to be put on hold. I’m also hoping that we won’t have to miss a whole season of camping and golf, but mostly I’m just living one day at a time and not worrying about what next week or next month might hold.

An old Merle Haggard song keeps running through my head:

One day at a time, sweet Jesus, that’s all I’m asking from you.
Give me the strength to do everyday what I have to do.
Yesterday’s gone, sweet Jesus, and tomorrow may never be mine,
So for my sake teach me to take one day at a time.

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In closing, I want to be absolutely clear that I’m not suggesting that everyone should be experiencing this time of uncertainty in the same way that I am. Of course, I’m deeply concerned for those who are living in fear and for whom the outcome might be quite devastating. I’m simply enjoying the fact that I’ve met my goal and learned to live in the present moment.

Stay home, stay safe and I hope that you can find some joy in this day!

Coping with the new normal

/ edebock / 9 Comments

I was supposed to be in the city this afternoon for an appointment with Dr W concerning cancer #3 which is located in my thyroid. Unfortunately, due to the ongoing Covid-19 pandemic, that didn’t happen. Clinic visits are being restricted to only the most urgent cases while people like myself are required to make do with a phone call from the doctor. Had I been in the office, Dr W would have done an ultrasound to determine whether or not there has been any change to my thyroid since I last saw him six months ago. We both agreed that that would have been the best scenario. If I was able to have an ultrasound done in the community where I live, we might have gone with that option, but the closest place that I could do that would be the hospital located an hour away. Since we both know that a hospital is a higher risk location than his clinic would be, we agreed that that wouldn’t be a good choice. Instead, we wait. We wait until the Covid-19 threat passes and I’m able to see him in his office again. He’s predicting June or July, but no one knows for sure. We wait and we pray that the cancer doesn’t grow or spread; that the additional two or three months doesn’t make a difference.

I was also planning to stop into the University Hospital dental clinic this afternoon to pick up a supply of the fluoride gel that I use once a day to protect my teeth from harmful effects of the radiation that I received after cancer #2 was surgically removed.  Thankfully, though, that can be sent to me by mail.

As we enter the fourth week since our province declared a state of emergency and services began to shut down, we’ve all experienced many changes. Most, like accessing my fluoride, have been fairly simple to deal with, while others, like not being able to see Dr W and have my scheduled ultrasound, are more challenging and may have serious long term effects.

Thankfully, for retirees like hubby and I, the impact of Covid-19 has thus far been easier to bear than it has been for many others. We don’t have a business to close, jobs to lose, or children to teach at home. Nevertheless, the novelty of staying home 24/7 wears pretty thin and many of the frustrations that go along with the current situation affect us all. In light of this, I thought I’d share a few things that are helping me deal with our new normal.

Routine.  I like routine at the best of times, but it’s even more important in times of uncertainty. This doesn’t mean that I can’t be flexible or spontaneous, but having some structure to my day really helps keep me on an even keel.

Adequate sleep.  I try to go to bed at night and get up in the morning at about the same time each day. That takes a bit of self-discipline. I tend to be a night owl and I could easily stay up way too late, but I know that I function best if I get about 8 hours of sleep a night. Thankfully, in spite of the fact that I’ve had a couple of nights where odd dreams that probably indicate an elevated stress level have kept me from sleeping well, most nights have not been like that and I feel well rested.

Exercise.  I’m very fortunate that, unlike many people who are finding it difficult to exercise because their gyms have closed, I have everything I need here at home. Monday to Friday my day begins with a 25 minute exercise routine that focuses on core strength, flexibility, and balance. Our basement gym consists of a treadmill, two weight benches, and a large assortment of free weights. Three afternoons a week find me down there lifting weights and on the alternate days, I either walk on the treadmill or outdoors. Sunday is usually a day of rest.

Healthy diet.  If anything, we’ve been eating better than ever since the beginning of this pandemic because I’ve been a little more intentional about meal planning. That started three weeks ago when we visited five grocery stores in one afternoon and found their meat departments almost empty! Thankfully, the shortage didn’t last and I’ve since been able to add enough to the freezer to last us quite awhile. We keep very little unhealthy snack food in the house, so even with many more hours at home, we haven’t been tempted to fill up on junk food.

Spiritual nourishment.  Prayer and Bible reading are regular parts of my daily routine that help keep me balanced. We’ve been missing the opportunity to meet in person on Sunday mornings, but we’ve been enjoying church online.

News, but not too much!  I don’t want to live with my head buried in the sand, but at the same time, I don’t want to become obsessed with every detail of what’s going on. I’ve continued my habit of reading the news after breakfast every morning. We subscribe to one newspaper online. I check the world, national, and local news each day, but I very seldom read editorials. For the past couple of weeks, I’ve been watching our provincial Chief Medical Officer of Health give her daily Covid-19 update each afternoon online, but I don’t watch TV news.

Connection.  Staying in touch with friends and family by phone and online has been a vital part of staying sane. I enjoyed a lovely visit with a group of girlfriends via Zoom one evening last week and we’ve also enjoyed chats with several of our grandchildren.

Purpose.  It think one of the key ingredients to coping throughout the ups and downs of life and perhaps more than ever right now is having a sense of purpose. In addition to the usual day to day activities like meal preparation and exercising, I’ve been cleaning and reorganizing the kitchen cabinets and I’ve been using Duolingo to learn Spanish! Of course, there’s also the blog! Writing it and connecting with all of you gives me so much pleasure!

The one thing that I’d like to be doing more of these days is getting outdoors, but we seem to trapped in a never ending winter. Our snow is usually gone by the end of March, but not so this year. There’s lots of sunshine in the forecast though and our daytime temperatures are beginning to inch up over 0ºC (32ºF), so perhaps this too shall pass just as we know the pandemic will.

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So, my friends, how are you coping? What are some things that are helping you get through these most unusual times?

 

What’s my risk factor?

/ edebock / 2 Comments

Before I even begin this post, especially for those who haven’t been here before, let me emphasize that I have absolutely no medical training. I am simply a neuroendocrine cancer (NETS) patient seeking answers and doing the best I can to weather the very unusual days that we all find ourselves in.

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Does my cancer and the PRRT treatments that I’ve received mean that I’m at higher risk of contracting COVID-19 than the general population? Not as far as I know. The reality, as I understand it, is that no one has immunity to this virus. It’s a brand new disease that our bodies have never encountered before; never had an opportunity to develop antibodies to. That’s why I’m doing what I think everyone should be doing. I’m not hiding out in fear, but I’m hunkering down at home and only going out for necessities such as food and medications.

When we hear about those people who are most vulnerable to COVID-19, this refers to those who may be at higher risk for more serious complications IF they contract the disease. That’s why it’s so important for all of us to do our part in helping prevent these populations from getting the COVID-19 virus in the first place. Am I one of the vulnerable ones? Certainly, my age puts me at higher risk than those who are younger, but I haven’t been able to find any information regarding NETS and COVID-19. In reality, such information probably doesn’t exist. At least, not yet.

So, what are those risk factors? 

  • An older adult  –  Recent figures show that more than 50% of the patients who have been admitted to an ICU with the disease and 80% of those who have died were over the age of 65. At 67, I’m at the low end of that population, but still within the high risk category.
  • People who have serious underlying medical conditions such as:
    • Heart disease  –  Not me!
    • Diabetes  –  I have been diagnosed as pre diabetic, but maintaining a careful, well disciplined diet has kept my blood sugar well regulated, so I doubt that this would put me at high risk.
    • High blood pressure  –  Experts indicate that if a person’s blood pressure is under control and they don’t have other risk factors, they probably aren’t at any greater peril than the general population. I’ve been on hypertension medication for several years and it’s been keeping my blood pressure under control but, of course, I do have other risk factors.
    • Chronic respiratory diseases  –  No again!
    • Cancer  –  This one raises lots of questions for me. Cancer is such a broad category. The word actually refers to any of the 200 different diseases, affecting many parts of the body, that are characterized by the uncontrolled growth of cells that invade and damage the body’s normal tissues. Do all of them put a person at higher risk for COVID-19 complications? I doubt it, but what about the 3 completely unrelated cancers that I’ve been diagnosed with since August 2013? That’s right, 3! As I mentioned above, I haven’t been able to find any information about NETS and COVID-19, but what about my untreated thyroid cancer? At present, there has been no indication that thyroid conditions place a person at jeopardy.
  • People who have a compromised immune system from a medical condition or treatment (e.g. chemotherapy)  –  In spite of having or having had 3 different cancers over the past 6 1/2 years, I’ve never had chemotherapy, but I haven’t been able to find any information on how PRRT affects the immune system, so once again, I’m left with questions.

The immune system is the body’s natural defence system. Unfortunately, there isn’t a simple questionnaire that will tell you how strong yours is. There are, however, several signs that you might have a weakened immune system:

  • Stress  –  Stress decreases the body’s lymphocytes, the white blood cells that help fight off infection. Thankfully, my life is relatively free of stress these days. For the most part, I think I can say with the apostle Paul, “I have learned to be content whatever the circumstances.”  Philippians 4:11b
  • Frequent colds or infections  –  I’ve had two colds this winter; one mild and one nasty. That’s more than I usually get, but I recovered from both in a reasonable length of time and I don’t remember the last time I’ve needed an antibiotic for an infection.
  • Frequent diarrhea or constipation  –  Diarrhea was one of the most obvious symptoms of my NETS cancer before it was diagnosed. Now medications tend to cause the opposite problem, but I can’t blame that on my immune system.
  • Wounds are slow to heal  –  I don’t think so. I haven’t had any serious wounds in recent years, but minor ones heal just fine.
  • Fatigue  –  When your immune system struggles, so does your energy level, but for the most part mine is good. My father passed away in the wee hours of March 1. I got almost no sleep that night and I definitely discovered that pulling an all-nighter in my 60s isn’t as easy as it was in my 20s! The week that followed was pretty exhausting too, but three weeks later, I’ve bounced back and feel completely rested. That seems to speak well of my immune system.

I do know, however, from regular blood tests, that my hemoglobin tends to be slightly on the low side which would make me somewhat vulnerable to infection and disease. On the other hand, I do all the right things to keep my immune system as healthy as I can. I don’t smoke, I eat a healthy diet, I maintain a healthy weight, I exercise regularly, I drink alcohol only in moderation, I get adequate sleep, I try to minimize stress, and I even wash my hands frequently!

So, what is my risk factor? I can only give a somewhat educated guess. Since I live in a sparsely populated area and I’m staying home most of the time, I’d say that my risk of getting COVID-19 is quite low. On the other hand, IF I do get it, my risk of suffering complications is probably moderately high.

Am I worried? No, but I’m definitely taking all the recommended precautions. I hope you are too!

Fine, thanks!

/ edebock / 6 Comments

It’s been quite awhile since I posted an update about my health. That’s because there really hasn’t been anything new to report. For someone with two kinds of cancer, that’s actually a very good thing, but I know that there are those of you who want to know what’s going on, so here’s the latest.

It’s already been over six months since I had my final PRRT treatment. Other than monthly injections of Sandostatin that are mainly meant to control symptoms, I’m not presently receiving any treatment for my neuroendocrine tumours (NETs). That’s a bit disconcerting, especially when more than one fellow zebra that I’ve come to recognize through a Facebook support group has succumbed to the disease in recent months. It’s really hard when one of those announcements shows up in my news feed.

On the other hand, I’m feeling 100% healthy, so most days it’s easy to ignore the fact that there are things lurking inside me that shouldn’t be there and that could begin to grow or spread at any time. I’m blessed to be able to live a full and productive life. I’m lifting weights again this winter and I’ve recently dusted off the treadmill and started using it again. If anything, I’m feeling better and stronger than I did six months ago.

A week before Christmas, I was in Edmonton for CT scans and blood work to find out if I’m really as healthy as I feel and yesterday we met with the doctor to get the results. Sometimes I suffer from a few days of scanxiety before an appointment like this one, but this time I felt completely at ease. I just kept reminding myself that God promised to take care of me over six years ago when I was first diagnosed and He has been faithfully doing that ever since. There’s no better place for me to be than in His hands.

When we sat down with the doctor yesterday all I really needed to hear was one word. Stable! Nothing has changed. No growth, no spread! Nothing to worry about. So, unless I begin to experience symptoms (which I haven’t since treatment began), we go through the same routine six months from now and hopefully receive the same good news again… and again… and again.

The CT scans reveal very little about my thyroid cancer which is entirely different and unrelated to my NETs. For news about that one I’ll have to wait until early April when I see that doctor again and he uses ultrasound to take a closer look and measure whether or not there’s been any change.

In the meantime, when you see me and ask, “How are you?” if I answer, “Fine, thanks!” that’s because I really am!

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Canada’s going black and white for NET Cancer Day!

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November 10 is World NET Cancer Day, a day set aside to raise awareness of neuroendocrine cancer, the uncommon disease that I’ve been fighting for the past six years. It’s our day to be heard by decision makers, health professionals and the general public. In addition to raising awareness, we want to encourage more funds for research, treatments, and patient support; and to advocate for equal access to care and treatment for NETS patients around the world.

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Zebra stripes symbolize how this rare cancer can go undetected for many years. Medical students are taught when hearing hoofbeats, to think of horses, not zebras. Neuroendocrine tumours are difficult to diagnose. Though they are the fastest growing class of cancers worldwide, their symptoms are usually vague and similar to more common health problems.  Many family doctors have never encountered a NETs patient. When presented with symptoms like stomach pain and diarrhea, they naturally think of things like Irritable Bowel Syndrome, Crohn’s Disease or lactose intolerance. They think of horses, not zebras. As a result, NETs is frequently misdiagnosed.

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It would appear, however, that through the tireless efforts of NETs patients and advocates, we’re beginning to be heard. This year on November 10, the following landmarks across Canada are lighting up in black and white for NET Cancer Day!

  • City Hall  –  Vancouver, British Columbia
  • High Level Bridge  –  Edmonton, Alberta
  • Calgary Tower  –  Calgary, Alberta
  • City Hall  –  Lethbridge, Alberta
  • CN Tower  –  Toronto, Ontario
  • City Hall Towers  –  Toronto, Ontario
  • Niagara Falls  –  Niagara Falls, Ontario
  • Hamilton Signature Sign  –  Hamilton, Ontario
  • Tower of Olympic Stadium (Parc Olympique)  –  Montreal, Quebec

If you’re near one of these locations on Sunday, I hope you’ll stop, take a photo, and post it on social media with the hashtag #LetsTalkAboutNETs @cnetscanada. Every bit of exposure helps raise awareness and may contribute to someone getting a quicker diagnosis.

 

 

Crazy (old) sock lady

/ edebock / 2 Comments

LogoI’m a long-legged 5’8″ tall. For much of my life I worried about finding pants that were long enough to ensure that my socks didn’t show. Then along came ankle length cropped pants. Suddenly everyone’s ankles were showing. It took me awhile to warm up to the trend, but it really has made life easier for me.

I usually wear white sports socks with my jeans and other casual pants and black socks when I want a somewhat dressier look, but when I was cleaning out my drawers recently I realized that I’ve gradually accumulated a fairly sizeable collection of patterned socks. There are certainly much more colourful and fanciful pairs available, usually worn by gals who are several decades younger than me, but once in awhile it’s fun to look down and see something funkier than plain old black or white.

Some of my patterned socks, like these two weather themed pairs, are quite subtle. I’ve obviously worn the snowflake ones on the left a lot as they’re almost worn out. You can begin to see my gold toenail polish shining through!

These are definitely bolder! Both pairs were gifts from my daughter-in-law. There’s a story behind the zebra print pair on the left that make them very special to me. Robin is a long distance cyclist. She rides with a club that expects members to be able to ride at a minimum speed of 23 km/hr for at least 50 km and has taken part in many longer races and fundraising rides. If you’ve been reading my blog for very long, you know that I have neuroendocrine cancer (NETS) and that the zebra is our symbol. Robin wore the zebra socks for the first leg of a 2 day fundraising ride for cancer and then gave them to me (freshly washed, of course!)

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While zebra stripes hold special significance to me as a NETS patient, the giant panda is my favourite animal. Apparently Santa Claus knows that as this pair was in my Christmas stocking last year.

When we lived in Japan, I discovered that I love wearing toe socks which are very popular there. I brought several pairs home with me. I don’t wear them very often only because they’re a bit of a bother to put on, but once on they’re warm and comfortable. We were in Japan to teach English and I specifically bought this pair to wear to my Saturday morning preschool classes. Teachers and students alike take their shoes off before entering the classroom, so these were perfect for my little ones who were learning to count in English. They loved them!

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I didn’t realize until I started preparing for this post that almost all my patterned socks are in shades of black, white, and grey. Clearly, if I’m going to become a crazy (old) sock lady, I’ll have to invest in some coloured ones!

What about you? Do you wear patterned or brightly coloured socks? Would you?

Checkmate!

/ edebock / 11 Comments

CheckmateMy husband is a very generous man who loves to surprise me with unexpected gifts. Last Friday was my birthday and he definitely outdid himself! When cabi’s Fall 2019 Collection was released, I fell in love with the cozy Checkmate Jacket, but I balked at the price and decided not to buy it. Apparently, although I don’t remember the conversation, Richard overheard me telling our daughter about it. Engaging the help of my cabi stylist friend and another friend who was hosting a cabi party, he arranged to buy it for my birthday!

He’s definitely a winner! Checkmate!

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The jacket’s roomy, double-breasted style, shoulder pads, and faux horn buttons give it a slightly retro vibe and the soft polyester blend feels like I’m wearing a hug! Panels of stretch fabric on the inner sides of the sleeves reduce bulk and add to the comfort.

I wore it to the city on Tuesday. After seeing my doctor, hearing the good news that there’s been no significant change to my thyroid cancer, and making the decision to simply continue monitoring it, we headed over to West Edmonton Mall to check out the brand new Uniqlo store. I wasn’t really planning to buy anything, but one of the first things I spotted was this lovely orange blouse on sale for a very reasonable price.

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It was immediately obvious that it would coordinate beautifully with the jacket, so I snapped it up. I especially like the 3/4 sleeves and the shirttail hem that’s longer at the back, but I wouldn’t have bought it if I hadn’t known that I could also wear it with several other things in my closet.

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If the jacket looks familiar to you, perhaps you saw it in the August 16, 2019 issue of Family Circle magazine!

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Zebra stripes, more than just a fashion trend

/ edebock / 11 Comments

LogoIn August 2013, I was diagnosed with neuroendocrine cancer (NETS). In August of this year, I attended a cabi party and treated myself to a zebra print top from the Fall 2019 Uniquely Us Collection. Those might seem like two completely unrelated random facts, but they aren’t.

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The zebra is the symbol of neuroendocrine cancer. Neuroendocrine tumours are difficult to diagnose. The symptoms are usually vague and similar to more common health problems. Many family doctors have never encountered a NETS patient. When presented with symptoms like stomach pain and diarrhea, they naturally think of things like Irritable Bowel Syndrome, Crohn’s Disease or lactose intolerance. Flushing, especially in women of a certain age, makes them think menopause, not cancer. Medical students are taught “when hearing hoofbeats, think of horses, not zebras.” Neuroendocrine tumours are rare and therefore they are considered to be zebras.

Some NETS patients and advocates think the zebra symbol is foolish, that it trivializes the grave nature of our disease, and would like to see us stop using it. I disagree. I think we need to take advantage of every opportunity to draw attention to our cause and if that includes zebra stripes, I’m all for it!

Since my diagnosis, I’ve noticed zebra stripes everywhere! As I mentioned in last Friday’s post on trends for fall 2019, the zebra motif is particularly popular this season, but animal prints never go out of style and the zebra has been around for a long time. I’ve seen zebra t-shirts, zebra leggings, zebra jeans, zebra pjs, and zebra bras. I’ve also seen zebra handbags, zebra luggage, and even a zebra golf bag.

I remember trying on a darling zebra dress a couple of years ago, but I didn’t buy it. Like most zebra garments, its stark black and white pattern wasn’t flattering on me. With my pale Spring complexion, I look better in warmer tones. That’s why my new cabi top is so perfect. With its creamy vanilla background and chocolate ganache stripes (doesn’t that sound yummy?) it’s perfect for me.

With soft flutter sleeves, the top is a good stand alone piece for the occasional warm summery day that we enjoy at this time of year, but worn under sweaters and jackets, it will transition well into fall and winter. When worn alone, underarm insets provide good armhole coverage. While the neckline isn’t immodestly low, it leaves enough décolletage exposed to nicely frame a statement necklace. The top looks great tucked in, worn loose, or belted.

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I even tried mixing animal prints. Because both prints are within the same colour family, I think it works!

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For today’s photo shoot, I wore my DIY frayed white jeans. Later in the season, I’ll pair the zebra top with darker pants or skirt, but obviously I don’t adhere to the antiquated don’t wear white after Labour Day rule!

And what am I wearing on my feet, you ask? A pair of flip flops that I bought for $5 at Walmart’s end of season clearance sale. They perfectly match my golden summertime toes!

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