Cancer

World Cancer Day 2015

/ edebock / 7 Comments

World Cancer Day

When I first learned that today is World Cancer Day, a day in which the world comes together in unity in support of the global fight against cancer, I wasn’t sure how I felt about that. Do we really need an awareness day for everything? After all, isn’t everyone already aware of the devastation brought about by this dreadful family of diseases? Surely everybody has been touched by it in some manner. And what good does a day do anyway?

Cynical? Yes. Grouchy? Yup, that too! Perhaps my reaction has more to do with the fact that I’m resting on a heating pad because I wrenched my back yesterday than it does with whether or not we need a Cancer Day. It might also be related to the fact that I have a treatment next week followed by a scan that will tell us whether or not there has been any change in my own cancer. The days leading up to these scans are always a bit nerve wracking so I’d just as soon avoid the topic of cancer altogether today.

I’ve decided not to do that, however. The Lord has given me a voice (or in this case, a keyboard) and the least I can do is lend it to such a worthy cause. There’s really nothing that I can say about cancer that hasn’t already been said, but let’s begin with some alarming statistics:

  • Cancer is a leading cause of death worldwide and the leading cause among Canadians.
  • An estimated 191,300 Canadians were diagnosed with cancer in 2014 – 97,700 men and 93,600 women.
  • About 76,600 Canadians are estimated to have died of cancer in 2014 – 40,000 men and 36,600 women.
  • 45% of men and 41% of women will develop some form of cancer in their lifetime.
  • On average, 524 Canadians are diagnosed with cancer every day.
  • On average, 210 Canadians die of cancer every day.
  • About 30% of all cancer deaths are due to five leading behavioral and dietary risks: obesity, low fruit and vegetable intake, lack of physical activity, tobacco use, and alcohol use.
  • More than 60% of all new cases each year occur in Africa, Asia and Central and South America which account for 70% of the world’s cancer deaths.
  • Deaths from cancer worldwide are projected to continue rising, with an estimated 13.1 million deaths in 2030. I suspect that this is, in part, related to the fact that life expectancies are also rising.

Despite these gloomy numbers, cancer survival rates have doubled in the last 40 years. Awareness is making a difference!

The theme for World Cancer Day 2015 is “Not Beyond Us”. This year, the campaign is focusing on four key areas: choosing healthy lives, delivering early detection, achieving treatment for all, and maximizing quality of life. It takes a positive approach to the fight against cancer by highlighting new treatments and solutions that are within reach.

Today is World Cancer Day but the fight against cancer takes place every day. It takes place in research labs around the world but it also takes place all around you. It takes place in that home where a mother, father or child is fighting for life. It takes place in the hospitals and clinics where they receive treatment. It takes place in classrooms where good health habits are being taught and it takes place in communities, large and small, where fundraisers are held to benefit everything from individual patients to global research.

What will you do to make a difference in the fight against cancer? Will you make a donation, offer to drive an acquaintance to an appointment, or drop off a meal for the family when you know that Mom has had a treatment? Whatever you choose to do, you can make a difference!

Letting it go… with thanksgiving and hope

/ edebock / 6 Comments

In just a few hours, 2014 will be forever behind us. For me, it was a year filled with challenges and loss. At the beginning of the year, my smile looked like this

me March - Version 2

but now, it looks like this.

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Like the rest of me, it’s a little worse for wear, but thankfully I still have much to smile about. As I reflect on the struggles of the past year, I’m ready to sing the refrain from Frozen that I, like most parents and grandparents, have heard a bazillion times this year.

Let it go, let it go!

 
Yes, I’m ready to let go of the negatives of 2014. Instead of dwelling on those things, I choose to hang on to the things that I have to be thankful for.

First and foremost, I’m thankful for a personal relationship with a God who never lets go of me! At the beginning of my cancer journey, He promised to take care of me and he has done just that. I’m thankful for the amazing team of medical people that He’s placed in my life and for the expertise He’s given each one of them.

I’m thankful beyond measure for the love and support of my amazing husband who has walked every step of the journey with me and who helps me hang on when I reach the end of my rope.

I’m thankful for my children, now young adults who make me very proud, and for my darling grandchildren. Being present for Simon’s birth in mid March was definitely one of the highlights of 2014!

Drew & Simon     Jami-Lee
Drew and Simon                                        Jami-Lee

Nate     Sam
Nate                                                             Sam

I’m thankful that my father didn’t give up on life when Mom died in June and for the fact that he’s made a remarkable recovery from the stroke that he suffered in September. I’m thankful that we’ve been able to spend time with him this Christmas season.

I’m thankful for the fact that 2014 was the year that I finally reconnected with a cousin who lived with us for awhile when she was a toddler and I was a teen. Though she lives about 4000 km away, it’s been great having ‘little sis’ back in my life!

I’m thankful for amazing friends both near and far including those of you I’ve only met through blogging. I’m especially thankful for the other three-quarters of the Rav 4 and the fact that they convinced me to go to Vegas with them in November!

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          photo credit:  Sheryl Culbert

 
Yes, even in a year like 2014, I’ve had much to be thankful for. Now’s a good time to let go of all the rest and to look forward to a brand new year. I choose to step into 2015 with hope.

I hope that my treatments continue to be successful and that they become less frequent. That alone would make 2015 a less crazy year! I hope that we can get through an entire year without a family crisis of any kind. I hope that I can enjoy each moment not worrying about the things over which I have no control and I hope that a year from now, I can once more look back with thanksgiving.

What do you have to be thankful for this year? What do you need to let go of? What are some of your hopes for the New Year?
 

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Days of praise!

/ edebock / 5 Comments

I have much to praise God for this week!

Under normal circumstances, I wouldn’t consider a visit to the dentist a big deal. There was a time, after a traumatic experience in a dentist’s chair when I was eleven or twelve, that going to the dentist was frightening but that’s in the distant past and hasn’t been an issue for a long time. No, the reason for Tuesday’s apprehension was different. For the past several months, I’ve been experiencing severe jaw pain when I eat. It appears to have been brought on by a combination of last spring and summer’s surgery and radiation treatments and accumulated stress. I’d been warned that radiation, in particular, would likely cause stiffening of the muscles in my jaw. When I started seeing a physiotherapist in early October, I could only open my mouth 26 mm (average is 50) and the pain when I ate was, at times, almost unbearable. Over the next few weeks of regular exercise, I regained quite a bit of flexibility and can now open my mouth about 35 mm. The pain has lessened but it hasn’t gone away. I was very concerned about whether or not I’d be able to keep my mouth open wide enough and long enough to have my teeth cleaned and checked and how much that would hurt. Unfortunately, however, I couldn’t postpone the appointment.

Until I had my parotid gland removed and my other saliva glands were compromised by radiation, I had no idea what an important role saliva plays in tooth protection. Now that my saliva production has been permanently reduced, I’m especially vulnerable to tooth decay and for at least the first year following radiation, in addition to brushing my teeth after every meal and giving myself daily fluoride treatments, I’ve been advised to see my dentist every four months. Tuesday’s was the first of these check-ups and I feared what the results might be.

As it turns out, I had nothing to worry about. Under the gentle care of my hygienist and dentist, the appointment went amazingly well. No pain and no cavities! As I said, I have much to be thankful for this week but that’s just the beginning!

The following morning, long before daylight, we set out on the two and a half hour drive to the city for my second Lutetium treatment at the Cross Cancer Institute. There were a few snowflakes in the air but the roads were clear and the drive uneventful; definitely another thing to be thankful for at this time of year in Alberta! I was admitted for an overnight stay and the treatment went ahead resulting in nothing more than a slightly queasy stomach that didn’t last very long.

After a reasonably decent sleep considering the fact that I was in a narrow hospital bed, I was up early on Thursday morning for my follow-up scan, the one that would tell us what’s been happening to my neuroendocrine tumours since September’s treatment. One of the things that I appreciate most about this process is that, unlike most medical procedures, I’m given the results immediately afterward. No anxious waiting for 2 or 3 weeks to hear back from the doctors.

And the news? That’s the biggest thing I have to be thankful for! There has been absolutely no change! The cancer has not grown or spread! It continues to be stable. I may have pain when I’m eating but in the overall scheme of things, that seems pretty insignificant. I have much to praise God for and I sincerely thank those of you who have been praying for me!

My next treatment will be on Feb. 11.

School dreams and stress

/ edebock / 12 Comments

For many years, in spite of the fact that I enjoyed my teaching career, I had what I called my “school dreams” in the days leading up to each new school year.  These were dreams in which everything went wrong.  All a teacher’s worst nightmares would visit me as the end of August approached! One of the things that I’ve really enjoyed about retirement has been the absence of these dreams; until recently that is.

Why in the world would I be having school dreams again more than seven years after retiring from the classroom? It happened again last night. This time, I was trying to teach a high school English lesson to a large class of students in a crowded area at the back of a busy hairdressing salon! Yes, my school dreams are like that; a curious mixture of realistic and just plain weird. Midway through the lesson, all but two of the students got up and went upstairs to some sort of student lounge. In spite of my pleading and threatening (definitely not effective teaching strategies), they refused to come down again. Over the years students leaving class and refusing to come back has been a fairly common theme in these dreams.

Teaching is a stressful occupation and during my career, though I anticipated the beginning of each new school year with excitement, I recognized that my strange dreams were a symptom of that stress.

Over the past 14 months, my life has been a series of one stressful event after another. I thought I was coping well but little by little, with each ensuing event, the stress built up until now it’s beginning to bubble over. According to the Holmes and Rahe Life Events Stress Test, which is supposed to give a rough estimate of how stress affects health, events including death of a close family member (Mom), major personal illness (cancer) and major change in health of a family member (Dad) have given me a 50-50 chance of succumbing to stress-related illness. I’m doing my best to combat that by continuing to eat well, exercise regularly and by ensuring that I get enough sleep but it’s absolutely amazing what’s stored away in the deep recesses of our brains. Apparently, mine still connects stress to teaching and  is reacting to my current stress level with school dreams! How weird is that!

Now the challenge is to find ways to reduce the build up of stress and manage it better in the future.

Any suggestions?

 

Enough already!

/ edebock / 16 Comments

Just when I thought that life was going to settle down a little, my world was turned upside down again!

Last Thursday, my 91-year-old father flew to Alberta from his home in Vancouver. On Saturday, he walked his granddaughter down the aisle of Fort Edmonton‘s historic Anglican Church of St. Michael and the Angels. It was a unique and beautiful wedding and he was honoured to play such an important role.

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Less than 48 hours later, he was relaxing at my sister’s home in Vegreville when he suffered a cerebellar stroke!

Richard and I had just finished playing the third hole on our local golf course when the clubhouse manager drove out to tell us that our niece was trying to get hold of us about a medical emergency. We live just minutes away so in no time at all we were on our way to the Vegreville Hospital, arriving just in time for me to climb into an ambulance and accompany Dad as he was transferred to a larger hospital in Edmonton.

After laying in Emergency for another 48 hours waiting for a bed, he was finally transferred to the stroke ward yesterday. A cerebellar stroke affects the back of the brain which controls balance and coordination. Dad suffered no paralysis but he’s unable to stand without assistance because his sense of balance is completely off and he’s experiencing some weakness in his right hand. His speech is slurred, but mostly understandable, and he’s having some difficulty swallowing so he’s being given soft foods and thickened drinks. He is cognitively unimpaired and is in reasonably good spirits considering the circumstances.

I, on the other hand, feel like I’m reaching the end of my rope! In the past thirteen months, I’ve been diagnosed with two unrelated cancers. I’ve had seven hours of surgery and thirty radiation treatments for one of them and three radioisotope treatments for the other. I also lost my mother in June. Enough already!

In this morning’s devotions, I read about Gideon and I could definitely identify when he asked, “If the LORD is with us, why has all this happened to us?” (Judges 6:13)

Another devotional that I read this week was written by blogger, Cindy Keating of Red Carpet Life. It spoke of the pruning that God does in our lives to bring about greater fruitfulness.

I looked up and saw a sadly barren tree taped off in the middle of the orchard. It stuck out like a sore thumb with a noticeable sign hanging from it’s highest branch: “Pruning In Process.”

I instantly thought of the many painful times I have had to be pruned so the beauty of my fruit could shine for God’s glory rather than my own.

Is that what’s happening in my life? If so, I hope God has read this recommendation concerning pruning:

When deciding how much to prune a tree, as little as possible is often the best rule of thumb. All prunes place stress on a tree and increase its vulnerability…

As I said, I think enough’s enough already!

I know I’m not alone in asking why God is allowing these things to happen. The writers of the Psalms certainly asked similar questions. I particularly like the Psalms of Asaph who said things like “When I tried to understand all this, it was oppressive to me” (Psalm 73:16) and “do not forget the lives of your afflicted people forever.” (Psalm 74:19b)

I’ve often heard it said that God doesn’t allow us to go through more than we can handle but the Bible doesn’t actually say that and it definitely isn’t true. He allows more than we can handle so that we learn to lean on Him and, in spite of my whining today, that’s exactly what I will continue to do! I’ll put one foot in front of the other, hang onto the hem of His garment, and wait to see how He’ll get us over this latest hurdle.

We have no idea what the next little while will hold. Dad will likely remain in hospital for at least a week or two where he’ll have access to physio and occupational therapy. The neurologist anticipates that he’ll make a fairly good recovery but we have no way of knowing when he’ll be fit to travel again, whether or not one of us will need to accompany him, or whether he’ll need a higher level of care than he had before.

Please God, no more crises for awhile. Enough already!

Finally!

/ edebock / 11 Comments

Yesterday I FINALLY had the cancer treatment that my doctors wanted to give me a year ago! Thankfully, mine is a slow-growing, chronic cancer or I doubt I’d be here to tell the tale.

When my neuroendocrine tumours (NETS) were diagnosed last September, the doctors at the Cross Cancer Institute in Edmonton would have preferred to start me on a radioisotope therapy, known as Lutetium-Octreotate, that they had been using very effectively since 2010. Unfortunately, shortly before that time, the government had cut off funding for that treatment citing a need for more evidence of its safety and effectiveness. That necessitated the setting up of a clinical trial, a very time-consuming process.

Unlike many NETS patients, my tumours were equally receptive to a second, similar treatment, so rather than waiting for Lutetium to become available again, I received injections of mIBG in November and January. It wasn’t long after that that my second cancer was diagnosed and treating it became a higher priority. My NETS was put on the back burner while I underwent surgery and radiation to rid me of the acinic cell carcinoma in my salivary gland. In fact, my neuroendocrine tumours weren’t looked at again until a CT scan was done in late July. Dealing with a second cancer was bad enough but not knowing what was going on with the first one was equally disconcerting.

While all of that was happening, the Lutetium-Octreotate clinical trial was finally approved and as of yesterday, I’m finally a participant. So, what does that mean? I don’t feel like a guinea pig because the treatment isn’t a brand new, untried one. Having heard the success stories from Dr. MacEwan, chair of the Oncology Department at the University of Alberta and head of the Nuclear Medicine Therapy/Neuroendocrine Tumour Clinic at the Cross Cancer Institute, a man who I trust completely, I have no doubt that it is both safe and effective. Simply put, participating in the clinical trial is the only way that I can access the treatment that Dr. MacEwan feels is the best one for me so it’s clearly a no brainer. I will remain in the study for up to seven years and will be followed up for another year after that. Data that’s gathered along the way will be retained for 25 years and will hopefully be used to improve patient care over the long term.

For me, there are several advantages to taking Lutetium instead of mIBG. From Dr. MacEwan’s point of view, the fact that it will probably be less harmful to my bone marrow was the deciding point, but I’m happiest about the difference in the precautions that I have to take after each treatment. They’ll still leave me radioactive but the effect of that radioactivity isn’t as far reaching. I didn’t have to stay shut away in the lead lined room after yesterday’s injection and Richard was allowed to visit me. Instead of being in virtual seclusion for two weeks afterward, now it will only be one week and the restrictions within that week are much less limiting. Following an mIBG treatment, I had to stay at least 10 feet away from Richard for all but 3 hours a day. For those 3 hours we were allowed to be just 3 feet apart! I still have to have my own bedroom and my own bathroom for the next week but we can be 3 feet apart at any time which definitely makes life easier. I’m also more free to mix with other people as long as I keep a bit of distance between us and I’m careful to stay away from pregnant women and children under the age of 12. Though there’s still the need for several blood tests between treatments, there will also be periods of several weeks when I’m not required to have any blood work done. I definitely see a winter holiday in our future!

I was told that I’d be very tired for the first week after each treatment but I really haven’t felt tired today at all. I suspect that that might have something to do with the exciting news that we received following this morning’s post treatment scans. They confirmed what July’s CT scan appeared to show. In the 7 months since my last mIBG treatment, my neuroendocrine tumours have remained absolutely stable. There are no new growths and the existing ones have not grown! In addition to that news, the scans also showed very clearly that the cancer in my face is completely gone. We were already quite sure of that but seeing it on the screen was absolutely wonderful!

Now I think I can FINALLY breathe a sigh of relief and begin to live a somewhat more normal life again. I still have cancer. In fact, without a miracle, I always will have, but I also have high hopes that the year ahead won’t be quite as crazy as the one we’ve just come through!

One year later…

/ edebock / 10 Comments

It’s hard to believe that a whole year has passed since I heard the fateful news. 365 days of living with cancer have gone by already!

The first days were the scariest when we didn’t yet know what kind of cancer it was and the process of finding out seemed ever so slow. Eventually, we learned that I have neuroendocrine tumours, a very slow growing chronic cancer that often responds well to treatment, and we breathed a small sigh of relief.

There have been dark and disappointing days, especially the day in late March when we learned that I had a second, completely unrelated cancer. That led to seven hours of surgery and six weeks of radiation. There’s still plenty of healing to be done and some long term repercussions but for the most part, I think we’ve put the second cancer behind us and I’ll soon resume treatment for the first one.

Though we’ve spent a lot of time away from home, our gypsy tendencies have been severely curtailed this year.  We’ve spent many days on the road driving back and forth to Edmonton for tests, scans, biopsies and treatments but we haven’t been outside Canada at all. We did renew our passports though and we opted for Canada’s new ten year ones in hopes that my wandering days aren’t over yet.

I often wonder if there will ever be a day when it doesn’t cross my mind that I have cancer. It would be so easy to feel sorry for myself and to focus on the negatives but I refuse to do that! Cancer has changed our lives significantly and we continue to live with lots of unknowns but life goes on and we have much to be thankful for.

I’m ever so thankful for my loving husband who has been by my side every step of the way patiently chauffeuring me to appointments, meeting with doctors and sharing the good days and the bad. We’ve also been absolutely overwhelmed by the prayerful support we’ve received from around the world. I know that that has sustained me through the ups and downs of the past year and that it will continue to do so in the days that lie ahead.

So now, as I move ahead into my second year of life with cancer, completely cognizant of the fact that many people don’t get that privilege, I’m determined to continue living life to the fullest!

Porteau Cove

/ edebock / 3 Comments

As we sat in an Edmonton waiting room on April 10th anticipating our first meeting with the surgeon who was to remove the cancerous tumour from my salivary gland, my cell phone rang. It was our four-year-old grandson, Sam.

“Can we go camping with you this summer?” he asked.

We spent the past week honouring that request at beautiful Porteau Cove Provincial Park, just a half hour drive from his North Vancouver home. At Sam’s age, I lived in an oceanfront house and the beach was my playground. I’ve always said that you can take the girl away from the ocean but you can’t take the salt out of her blood. This week at Porteau was good for my soul!

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From the morning mist hanging over Howe Sound to the sun sinking behind the ridge across the water, our days were spectacular. We watched seals bobbing in the water, bald eagles plunging from the sky to catch fish, and herons standing like sentinels at the low tide line every morning. We also watched the brazen little squirrel that we nicknamed Sticky Fingers attempting to steal food from our table!

Our days were filled with fun. With our two little pirates, Sam and Nate, we built a driftwood fort amongst the logs on the beach and searched for treasure (geocaches). We visited nearby Shannon Falls and toured the Britannia Mine Museum again. We even had front row seats for the beginning of the first Canadian Surfski Championships yesterday. We ended every day around a propane fire pit roasting marshmallows and eating s’mores. It lacked the crackle of a wood fire and the smell of smoke that usually goes along with camping, but the blue sky days and lack of rain have resulted in a fire ban along the coast and only propane is allowed.

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Now we’re back in the city where the next few days will be spent, in part, helping my 91-year-old father with banking and other issues related to my mother’s estate, but the memories made over the past week will be with us for a very long time!

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Baby snuggles

/ edebock / 12 Comments

This morning, we loaded our suitcase into the vehicle and left home as we’ve done almost every Monday since the beginning of June, but this time, instead of heading for Edmonton and another round of radiation treatments, we turned south and came to Calgary to get some baby snuggles!

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After returning from Vancouver last week, we met with Dr. Sandy McEwan, head of the neuroendocrine team at the Cross Cancer Institute, to review the results of the previous week’s CT scan and begin planning for future treatment. We were given the good news that, in spite of the fact that they haven’t been treated or even looked at since the beginning of February, my neuroendocrine tumours are stable. Apparently, there hasn’t been any significant change in them while I’ve been undergoing treatment for my second cancer. Now, with the exception of one monthly injection, I am free of all things medical for the entire month of August!

After being away from home so much recently, it was tempting to stay put for awhile but grandchildren are a much bigger temptation! Simon is almost 5 months old already and I hadn’t seen him since the beginning of June. We’ll be taking care of him and his two older siblings all day tomorrow and the next day while our daughter, Melaina, takes a first aid course. I guess we’ll see how much energy Gram has these days!

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It’s bell ringing day!

/ edebock / 10 Comments

 

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There’s a widespread tradition amongst cancer treatment centres including the Cross Cancer Institute in Edmonton where the following poem is posted on the wall of the waiting area outside each radiation treatment unit.


Ring Out

Ring this bell

Three times well

It’s toll to clearly say,

 

My treatment’s done

This course is run

And I am on my way!

 

Today, after 30 treatments over the past 6 weeks, it was finally my turn to ring the bell! I woke at 5:30 a.m. filled with anticipation and the morning crawled by as I waited for one o’clock to arrive. Now that it’s over, it’s hard to put how I feel into words! Perhaps it hasn’t really sunk in yet. Maybe it will seem more real when I board a plane for Vancouver tomorrow instead of heading back to the Cross!

I’ve been told not to expect the side effects to peak for another two weeks and there will be follow-up appointments in the future, of course, but this race has been run. Praise God!

Today was a bit anticlimactic in that, immediately after ringing the bell, I had to go upstairs for a CT scan to see what’s happened to my other cancer in the six months since it was last looked at but I’ve crossed one finish line. I’ve climbed that mountain and I’ve rung the bell! Now it’s time to move on!

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