Progression

As a neuroendocrine cancer (NETS) patient for the past ten years, stable became one of my favourite words. After each set of tests and scans, stable was the word that my doctors used to tell me that my cancer had not grown or spread. Unfortunately, when I saw my specialist on Friday, that was not what I heard. Instead, I heard the word progression.

In the cancer world, progression is the word that is used to describe growth or spread of the disease. It didn’t come as a shock to me. Over the past few months, we’ve been carefully watching test results that appeared to indicate that my tumours were likely becoming more active again. The news we heard on Friday was actually better than I feared. There has been a tiny bit of growth to a couple of tumours on my liver, but no spread anywhere else. That part is very good news!

Thankfully, I’m a cup half-full kind of person. I think I’d be a basket case by now if I wasn’t!

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So, what’s the good news in this? What happens next and what’s there to be optimistic or hopeful about?

After 126 monthly injections of a drug called Sandostatin, it would appear that it’s no longer doing its job and I’ll be switching to a different medication. Since Lanreotide is also given as an injection every 28 days there will be little change to the routine that we’ve become accustomed to over the years. There are, however, some real benefits to this medication.

Unlike Sandostatin which is know to suppress the production of the hormones that these tumours produce and thus reduce symptoms, Lanreotide is also known to actually delay their growth. Secondly, Novartis, the company that produces Sandostatin, cut out their in-home injection program over a year ago and I had to arrange for my family doctor to begin giving me my injections. Lanreotide is produced by Ipsen and I’ve been assured that once again, a nurse will begin visiting my home to administer my butt jabs. Not only is that more convenient for me, but it frees up my doctor’s time for other patients which is an important issue in a rural area where there’s a doctor shortage. Perhaps the most exciting part of all this for me, if there can be excitement in receiving news of progression, is the fact that hubby and/or I can be taught to administer the Lanreotide injections ourselves! Why is that exciting, you ask? Why would I want to poke myself if a visiting nurse could do it for me? For someone who loves to travel, as I do, the idea that I might be able to pack my medication and leave the country for more than 28 days at a time is actually quite exhilarating!

I’m already somewhat familiar with the new drug because many people in my online patient groups are on it and seem to tolerate it well. Hopefully I will too. I’ll have tests and scans again in late October to see if it’s having the desired effect. In the meantime, it’s summer in Alberta. There’s camping, hiking, and kayaking to be done and golf to play. In spite of the change from stable to progression, I still feel 100% and I’m determined to keep on living life to the fullest.

Golden years?

Have you ever wondered why they call our retirement years, the years from 65 to 80 and beyond, the golden years? The phrase was actually coined in 1959 as part of an advertising campaign for Sun City, Arizona, the world’s first large-scale retirement community for active seniors. The goal, of course, was to portray retirement as a life of leisure; a time to travel, play golf, and pursue hobbies, but is it true?

For Christmas, I gave hubby a sweatshirt with one of his favourite sayings on the front. Retired: The ability to do what I want when I want. Lately whenever he wears it, he hastens to point out that it isn’t entirely true. These days, our lives seem to revolve around countless trips to the city for tests, scans, specialist appointments, and most recently, his prostate surgery. Maybe these should actually be called our rusty years because parts are continually breaking down and our bodies aren’t running as smoothly as they once did!

We certainly aren’t alone in this. At our recent senior bowling windup I looked around the table at our team and realized that all five of us either have or have had cancer. Many of our peers have had hip or knee replacements. Another has recently had a stroke and still others are waiting for biopsy results and/or surgery. No, retirement isn’t all traveling and playing!

I’m not really complaining… well, maybe just a little! I love the fact that we no longer have to rush off to work every day and that the government pays us for simply waking up every morning. I also realize that I’m fortunate to be alive. When I glance at the obituaries these days, many of the deceased are younger than me!

Some people claim that our true golden years are between 40 and 60 when we’re still physically and mentally fit and have probably reached some level of financial security. That led me to wonder, when were my golden years? When were yours? The first decade of my life, living in a waterfront house on the coast of British Columbia with the beach as my playground and the sound of the surf as my lullaby at night, was definitely golden. I look back on the years when my children were at home as golden. I loved that time of my life. There was a dark interval during the fourteen months that our oldest daughter fought her losing battle with leukemia, but even during that time, there were golden moments. When we were in our fifties, the year that we spent teaching English in Japan was golden.

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2 Corinthians 4:16b says, “Though outwardly we are wasting away, yet inwardly we are being renewed day by day.” In spite of the limitations of physical aging, I have no intention of passively resigning myself to coasting along and waiting for my name to show up in the obituaries! It was Abraham Lincoln who said, “In the end, it’s not the years in your life that count. It’s the life in your years.” So what can we do to make these years count, whether they are golden or rusty?

We may not be able to travel as often or for as long as we once could, but I’ll cherish the relationships that we have with people both near and far and when I can’t be together with them in person, I’ll remind myself how fortunate we are to have the internet, something that we didn’t have in our younger years. When I can’t explore far away places, I’ll seek out and appreciate ones that are closer to home. I’ll continue to offer the best of myself through volunteer work. I’ll read and learn and stay as physically active as I can for as long as I can. Always, I’ll remember to be thankful!

And finally, a message for those of you who are younger, don’t waste what might be the best years of your life yearning for the golden years. After all, they might turn out to be a little bit rusty!

Fighting invisibility with fashion

Logo by SamIf you haven’t read the first two instalments of this series about age related invisibility or Invisible Woman Syndrome, you can find them here and here. Today we’ll bring the series to a close by looking at how style can help us be more visible.

We could dress like 101-year-old style icon, Iris Apfel, but that might not be our best option!

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Instead, let’s begin by thinking about style adjectives. What do you want your appearance to say about you? I’m sure you wouldn’t pick words like old, tired, or boring. No! Instead, we want to tell the world around us that we are current, confident, approachable, and comfortable with who we are. So, how do we do that?

Notice that I didn’t include words like young, youthful, or trendy. We want to be noticed for who we are, not for trying to be something we’re not. Those of us who’ve been around for 50 years or more are never going to be young again, nor do most of us want to be, but great style is possible no matter how old you are. Pay attention to trends, but add them to your wardrobe judiciously. Stay abreast of what’s modern, fresh, and relevant, but consider adding bits that are on-trend to an otherwise classic wardrobe.

Vibrant, visible women ignore so-called fashion rules and dismiss antiquated ideas of what’s “age-appropriate”. Instead, wear what makes you feel confident and present. Wear what makes your heart sing! When you do that, you’ll walk into a room with a bounce in your step and your head held high and people will notice. Being visible is about more than what you wear; it’s about attitude!

Don’t be afraid to wear colour. Neutrals might form the core of your wardrobe, but you don’t want to look drab. Even a small pop of colour can add interest and visibility to an outfit. Just make sure that you know which colours suit your skin tone and wear those close to your face.

Play with accessories. A statement necklace, an interesting bracelet, a colourful scarf, or a unique handbag will help you stand out.

Finally, wear a smile! It’s an inexpensive fashion accessory that’s available to everyone! Research has actually shown that people who smile regularly appear more confident and are more likely to be approached by others.

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And it doesn’t cost a cent!

Another diagnosis, another pill

No, it’s not another cancer this time!

Seven years ago, I was diagnosed as pre diabetic. I managed to control it with diet alone until recently when I gradually slipped into the diabetic range. Though I’d originally hoped that this would never happen, it comes as no real surprise. In some ways, I’m not a usual candidate for diabetes. I’ve never been overweight, I’m not a smoker, and I ate a healthy diet and exercised regularly long before the pre diabetes diagnosis. In addition to a family history of diabetes, however, the injection of Sandostatin that I receive every 28 days for my neuroendocrine cancer (NETS) can suppress the release of insulin and cause elevated blood glucose levels. With those two strikes against me, I’ve now reached the stage where I need medication and my doctor has prescribed Metformin, the most common treatment for type 2 diabetes. I’m also going to be meeting with a dietician to find out if there are ways that I can further tweak my diet.

If there’s one good thing about having NETS, it’s the fact that the regular surveillance that it requires brings other health issues to light before they become as serious as they might otherwise. Typical symptoms of type 2 diabetes include increased thirst, frequent urination, increased hunger, unintended weight loss, fatigue, blurred vision, slow-healing sores, and frequent infections. I have experienced none of these. If it wasn’t for the regular blood tests that I undergo because of my cancer, I likely wouldn’t have known that I was pre diabetic seven years ago and without the dietary changes that I made back then, I probably would have reached the diabetes threshold much sooner. Looking for silver linings helps me maintain a positive attitude!

I don’t share these health updates to garner sympathy. In spite of cancer, diabetes, and several other health concerns, I continue to enjoy excellent quality of life. Hopefully, with the help of medication, excellent health care practitioners, and healthy lifestyle choices, that will continue for a long time yet!

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Happy 100th Birthday, Iris Apfel!

American fashion icon, Iris Apfel, famous for her colourful eclectic style and her oversized glasses, will celebrate her 100th birthday on Sunday!

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On August 19th, her Instagram post read..

10 days left of 99… Then comes 100, it feels divine!!!

In 2005, the Metropolitan Museum of Art in New York City said this about Apfel and it still holds true today, “An American original in the truest sense, Iris Apfel is one of the most vivacious personalities in the worlds of fashion, textiles, and interior design, and over the past 40 years, she has cultivated a personal style that is both witty and exuberantly idiosyncratic. Her originality is typically revealed in her mixing of high and low fashions – Dior haute couture with flea market finds, 19th-century ecclesiastical vestments with Dolce & Gabbana lizard trousers.”

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On the eve of her 100th birthday, Apfel continues to work because she wants to. “I want to stay alive,” she said in a recent interview. “If I stopped working, I’d be gone.” This year alone, she curated a line of home products for Lowe’s (long before she became a fashion icon, she was an interior designer), teamed up with Etsy to offer “Iris Apfel’s Fashion Favorites” on the online marketplace, and is designing eyewear collections for Zenni Optical as part of a four-year-deal with the company.

While I don’t aspire to dress like Iris Apfel, I do like how she thinks. Here are a few of my favourite Iris quotes… 

“You have to look in the mirror and see yourself. If it feels good, then I know it’s for me. I don’t dress to be stared at, I dress for myself.”

“When you don’t dress like everybody else, you don’t have to think like everybody else.” 

“Fashion you can buy, but style you possess. The key to style is learning who you are, which takes years. There’s no how-to road map to style. It’s about self expression and, above all, attitude.”

I also like what she says about age…

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Sunday is also my beautiful daughter’s birthday, so Happy Birthday, Iris Apfel and Happy Birthday, Melaina!

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Do we ever age out of fashion?

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I love the Baroness von Sketch clips that pop up on my Facebook News Feed from time to time. They’re irreverent and funny and touch on real life, everyday situations. If you haven’t seen this one, take three minutes to watch it and then we’ll talk about whether or not we ever age out of fashion.

If she’s aged out at 48, I’m in big trouble! I’m 20 years older than her! No, ladies, what we like might change and what looks good on us might be altered by time, but we’re never too old for style; never too old to look our best.  

Take Jane Fonda for example. She’s 83! Yes, she’s had cosmetic surgery and colours her hair, but look at how she’s dressed. She isn’t trying to look like a teenager, but she hasn’t given up on fashion either. She hasn’t aged out. 

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I’m sure you can think of others. Diane Keaton, Helen Mirren, and British actress, Charlotte Rampling, all age 75, come to mind. You can probably think of older women you know whose style you admire. One thing that I suspect they all have in common is that they care about their appearance; they haven’t given up on themselves simply because there are more candles on their cake than there used to be. They wear what they like, what makes them feel good about themselves, and they don’t worry about following arbitrary “age appropriate” rules. 

Attitude not age

Obstacle or opportunity?

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Before the onset of Covid-19, we had planned on leaving on a spring vacation this week. We were going to walk the historic streets of Boston, explore some family history, see the sights of New York City, and visit friends who live in the area. Instead, we continue to shelter at home waiting for our province to gradually begin lifting some of the restrictions that have been put in place to protect us and to keep our health care system from being overwhelmed. There’s absolutely no question that for most people on the planet, the Covid-19 pandemic has been an obstacle to living life as we knew it before the middle of March, but has it also been an opportunity?

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“Even in the darkest experiences we can uncover creative options.” wrote Samuel R. Chand in Leadership Pain: The Classroom for Growth.

On March 18, the day after Alberta declared a state of emergency and started shutting down non essential services, I wrote that I didn’t want to look back on this as time wasted. That was seven weeks ago. Rather than lamenting over a vacation lost and other obstacles to normal living, I’d rather look at opportunities seized. I truly believe that a positive attitude is vital to maintaining good health and overall well-being. That’s proven to be true throughout my journey with cancer and I think it’s just as true in present circumstances.

So how have I been using the unexpected extra time that I’ve been given by the pandemic shutdown? Here are a few of the ways…

  • Cleaned and reorganized the kitchen cabinets and set aside a number of items to take to our local thrift store when it reopens.
  • When I could no longer find the mixes that I’ve been buying for years on the grocery store shelves, I reverted to making my own pancake mix and baking biscuits from scratch. I doubt that I’ll ever go back.
  • Experimented with adapting a bread recipe until it turned out just the way I wanted.
  • Read several books.
  • Wrote more than usual including 11 blog posts in April as opposed to the 6 or 7 that I usually post.
  • Used Duolingo to study Spanish every day learning more than 1000 words so far.
  • Enjoyed several Zoom chats with family and friends.
  • Walked over 80 km (50 miles) partially on the treadmill, but mostly outdoors.
  • Found 7 geocaches.
  • Played a lot of 7 Wonders Duel.
  • Completed some yard work that wouldn’t have gotten done if I’d been busy planning and packing for a trip.

Does all this mean that I’m happy to have been essentially shut in for the past seven weeks? Does feeling positive about how I’ve been using my time mean that I’m oblivious to the effects that this period of time has had on the economy, on businesses, on the lives of others? Of course not, but neither have I been anxiously straining at the bit for it to come to an end. I’m happy that the health authorities in our province feel that we’ve reached a point where we can cautiously and carefully begin reopening, but I also realize that it will be some time before things are back to “normal”. I sincerely hope that we’ll be able to reschedule our trip someday, but I know that it won’t be for quite awhile.

So, how have you been coping during these most unusual days? Have you been focusing on obstacles or looking for opportunities?

Having an Elijah moment

I don’t ever want to be one of those little old ladies in the nursing home who goes on and on endlessly complaining about her aches, pains, and infirmities to anyone who might be listening. On the other hand, while I’m determined to maintain a positive attitude, I’m not actually Wonder Woman and I do have my “Elijah moments”.

If you’re at all familiar with the Old Testament, you may remember the story of the prophet Elijah, who immediately after experiencing an amazing victory on Mount Carmel and defeating 450 prophets of the false god, Baal, flees into the desert when his life is threatened by the wicked queen, Jezebel. Exhausted and depressed, he sits down under a broom tree and prays to die. “I have had enough, Lord,” he said. “Take my life.” (1 Kings 19:4) Later, he goes on to say, “I have been very zealous for the Lord God Almighty. The Israelites have rejected your covenant, broken down your altars, and put your prophets to death with the sword. I am the only one left, and now they are trying to kill me too.” (1 Kings 19:10)

Poor Elijah! An emotional high followed by a crash. That’s what I call an “Elijah moment” and I can definitely identify!

As I shared in Wednesday’s post, I was elated to learn that afternoon that my cancer had not spread or grown. The very next day, however, I learned that my thyroid is no longer functioning as it should. I knew that this could happen as a result of my treatments, but it still seemed like one more in a long list of health related discouragements. In the past 5 years, since my first cancer diagnosis, there has been a second cancer, high blood pressure, prediabetes, osteopenia, and now hypothyroidism! Like Elijah, I felt like saying, “I have had enough, Lord!”

After all, I could argue that I have been very zealous about living a healthy lifestyle. I exercise regularly, I eat healthy, I don’t smoke, I drink in extreme moderation, I’ve never used illegal drugs. Heck, I don’t even drink coffee! Why me? Why another diagnosis? I was definitely having an “Elijah moment”!

But God didn’t leave Elijah under the broom tree wallowing in despondency. He sent an angel to give him food and water, then He let him rest. Later, He spoke to him in a gentle whisper, gave him someone to walk beside him and share in his work, and sent him out to continue. God wasn’t finished with Elijah yet and apparently He isn’t finished with me either! Within a few hours of learning about my failing thyroid, an email from a ministry that I’m involved with made that very clear. And so, like Elijah, I’ll keep on keeping on. I’m determined not to become that crabby little old lady who has nothing better to do than complain!

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Statue of Elijah on Mount Carmel – Israel trip 2016

It’s not about age

LogoI’d like to begin by thanking those of you who responded to last week’s Fashion Friday post either here or on Facebook. I posed the same question about the length of my hair on Jennifer Connolly’s A Well Styled Life Community Facebook page which has a much wider audience and almost 100 members responded! So far, #4 is the overwhelming favourite. In fact, more than half of all the responders chose that look.

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Though they didn’t all agree on which one made me look most youthful, I was surprised at how many women mentioned that as their reason for choosing one hair length over the others. Have we been so indoctrinated by our culture that we automatically equate youth with beauty without even realizing it? Have I?

I admit that I don’t want to look older than I really am. That’s why I don’t straighten my hair when it’s long. That really pulls me down and makes me look haggard while the curls do seem to give me a more youthful look.

I do embrace the age I am, however, wearing my 65 years bold t-shirt with pride. I have no desire to turn back the clock, though I do wish sometimes that I could slow it down! The years seem to be flying by at an ever increasing pace and I’d like to have more time to enjoy each one of them.

Neither do I have any great desire to erase the visible signs of aging. I decided many years ago not to colour my hair, but to age with grayce and I love this quotation from Queen Elizabeth II. Don’t retouch my wrinkles in the photograph, I would not want it to be thought that I had lived for all these years without having anything to show for it.

Attitude not age

 

Getting back on track

When I was diagnosed with cancer at the end of August, it would have been easy to fall into a deep pit of anger. After all, I don’t smoke, I only indulge in an occasional glass of wine, I’ve never even experimented with street drugs, I eat a healthy diet and I exercise regularly. I’ve taken excellent care of my body, so why cancer? Why me? There are no answers to those questions. I don’t think there’s anything more that I could have done to prevent such a catastrophic diagnosis, but life’s not fair and cancer is no respecter of persons.

Fortunately, I managed not to wallow in anger, but for awhile I definitely let a “why bother” attitude take hold. Why bother exercising? Why bother watching my weight? Why not eat whatever I want? After all, I have cancer. I deserve a treat, don’t I? Now, every time I look in the mirror, I see an unwelcome “why bother” bulge around my middle and every time I zip up my jeans, “why bother” gets in the way.

In spite of the delicious food, I actually lost a few pounds while we were in China.  The amount of walking and stair climbing that we did on a daily basis more than made up for the extra calories I consumed. I was surprised that I didn’t gain the weight back as soon as we got home and after being diagnosed with cancer, I actually began to worry about that. I knew that if I had to have surgery or if treatments caused me lose my appetite, I didn’t have any extra weight to spare. That made it easy to get lazy about exercising and to start indulging in fattening foods. I kept up my morning exercise routine but when winter arrived, I quit walking and the weights and the treadmill gathered dust in the basement. Suddenly my weight started to climb again and it didn’t stop! By early December I was seven pounds heavier than I’d been just three months earlier!

Seven pounds isn’t a lot but it’s five percent of my present body weight and on my slight frame, it shows. Also, I realized that if I kept gaining at that rate, I’d put on 28 pounds in just one year! There’s no way I wanted that to happen! It was definitely time to do something about the “why bother” attitude, but with Christmas goodies staring me in the face, I decided not to make any drastic changes until after the New Year.

Now, with Christmas behind us, most of the goodies eaten and the family gone, it’s time to get back on track! Today I bid “why bother” good bye, dug out my virtual walk DVDs and got back on the treadmill. I only walked 1.2 miles (just under 2 kilometres) but it’s a start and it felt good. Before we left for China, I didn’t have time to finish my video course, The Secret Life of Words: English Words and Their Origins so, when I’m not enjoying scenic pathways around the world via DVD, I’ll be watching lectures while I walk.

When the little ones were here for Christmas, we had to hide the free weights to keep them from dropping them on their toes but I’ll be digging those out again next week. It’s been almost a year since the last time I lifted so I’ll have to start small but that’s okay. Cancer may have slowed me down for awhile but it hasn’t stopped me yet!