Cancer

Long distance hugs!

/ edebock / 10 Comments

I love hugs and I’ve been receiving lots of them lately; tentative, gentle hugs from friends who are being ultra careful not to hurt me. One friend, a huge teddy bear kind of guy, tells me that he’s reserving one of his giant bear hugs for me and that I can have it as soon as I’m feeling a little less fragile!

I’ve also been receiving lots of long distance hugs in emails and messages from around the world. There are the traditional Xs and Os, representing kisses and hugs, at the end of some of the messages and the more modern brackets ( ) or (( )) in others. I appreciate every one of them.

Today, I received the most unique and perhaps the most special long distance hugs ever. I had a long nap this morning and after lunch, Richard and I decided to try a walk to the post office. It was great to be out and about on a beautiful spring afternoon. There was a parcel card in our mailbox so we stopped into the office to see what had arrived. The post mistress handed me a large brown envelope with a paper heart glued to the front. It was addressed to Gram DeBock and the return address indicated that it was from our grandsons, Sam and Nate, in Vancouver.

“I knew this one was special,” she said. “So I didn’t want to bend it to fit it into your box!”

I can never wait until I get home to open exciting looking mail so we walked across the corner to our little Main Street Park and sat on a bench overlooking Sedgewick’s tiny downtown area while I opened my special envelope. Look what slipped out!

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In everything give thanks

/ edebock / 11 Comments

I almost hesitate to post anything today because I’m feeling rather cranky! My surgery went well last Wednesday so what do I have to complain about? Just the fact that my head feels like it’s been used as a soccer ball and a sore throat/earache kept me awake most of the night.

Feeling the way I do this morning, it would be easy to give in to whining and feeling sorry for myself but this is one of those days when I need to remind myself that scripture says

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The little word in  at the beginning of that verse is the reason that I can give thanks today. If it asked me to give thanks for everything, I’m quite certain I couldn’t do it. I certainly couldn’t give thanks for cancer and though I recognize how fortunate I am to live where universal and excellent health care is available, I’m not thankful that I had to have surgery at all, but even in  these circumstances, there is much to be thankful for.

I’m thankful for my hubby who patiently puts up with my restlessness at night and crankiness by day! In some ways, the surgery was harder on him than it was on me. I was out cold, totally unaware of what was going on, but as the hours ticked by, he was the one who was waiting for the surgeon’s call to tell him that things had gone well. I’m thankful for a surgeon who worked patiently and carefully for seven hours straight to remove all the cancer yet leave my facial nerves intact. Thanks to his meticulous effort, my left eye is fully functional and I’m left with nothing more than a crooked smile which will likely improve significantly once the massive swelling subsides and healing takes place. I’m also thankful for the wonderful friends and neighbours who have been showering us with meals; pots of homemade soup, fresh buns and other soft foods that I can handle. We are so blessed!

But do you know what else I’m thankful for today? I’m thankful for the guys who invented the drinking straw!  After seven hours with a breathing tube down my throat, it is SORE and it seems to be taking a long time to heal! Drinking lots of fluids helps but that’s hard to do when your bottom lip doesn’t work right!

Apparently, the first drinking straws were used more than 5000 years ago! The oldest one in existence, a gold tube inlaid with precious blue lapis lazuli, was found by archeologists exploring an ancient Sumerian tomb that was dated 3,000 B.C. On the other side of the globe, Argentinian natives long used similar wooden or metal devices, known as bombillas, to strain and drink their tea. Our humble paper and plastic straws had their beginnings in the U.S. In the 1880s, using rye grass as straws had become popular but their tendency to become mushy when wet and the grassy flavour that they added to beverages, made them somewhat unsatisfactory. It was Marvin C. Stone who came up with the idea of making one from paper. He started by winding paper around a pencil to make a thin tube, then slid the pencil out and applied glue to hold it together. He later built a machine that would coat the outside of the paper with wax. He patented his invention on January 3rd, 1888. In 1937, Joseph Friedman, created the first bendable straw, the type I’m using today.

Come to think of it, I’m even thankful for silly history lessons like this one that provide distraction from my present discomfort and crankiness!

What are you thankful for today?

Shoes of hope

/ edebock / 11 Comments

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Sometimes a pair of golf shoes is just that, a pair of shoes designed to provide comfort and stability while playing the game of golf. The pair I bought today, however, are much more than that. These shoes, purchased to replace a very old pair that are literally falling apart, are a symbol of hope. Hope that the ugly weather that has been giving us below average temperatures, rain and even snow far into what is normally spring, will someday come to an end but also, hope that the surgery that I’ll be having the day after tomorrow will go well and that I’ll soon be able to get on with life!

I really have no idea how long it will take to recover from the operation to remove a cancerous tumour from my salivary gland. That will depend on how difficult the procedure is to perform, something that even the surgeon can’t determine ahead of time. Regardless of whether I’m only in the hospital overnight or have to stay much longer, I expect to be swathed in bandages for awhile afterward. If you’re out on the Sedgewick golf course and see someone who looks a bit like a mummy wearing shiny new golf shoes, that will be me!

Look Good, Feel Better

/ edebock / 16 Comments

There is no question that when a woman looks good, she feels better.

When I walked into the Cross Cancer Institute yesterday, it was nice to know that I wasn’t there for a test, a treatment or a consultation with the medical team who care for me. This time, I was there for a two hour Look Good Feel Better workshop sponsored by the Canadian Cosmetic, Toiletry and Fragrance Association. The program, which is free of charge to all participants, is designed to help women with cancer feel better about themselves and thus face their illness with greater confidence.

When I registered for the workshop, I was told that I would receive a kit containing a variety of cosmetic and personal care products. I expected a small collection of samples from the various CCTFA member companies but I greatly underestimated their generosity and was completely blown away by what I actually received.

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In addition to many cosmetic companies, Look Good, Feel Better has several other corporate sponsors including Shoppers Drug Mart, Winners, WestJet and The Globe and Mail. Over 1800 volunteer cosmetic advisers and hair alternative specialists give generously of their time to bring the program to cancer care centres across the country. The ratio of volunteers to participants at yesterday’s seminar was almost one to one!

The session started with tips and techniques for properly cleansing skin and applying make-up. I have been meticulous about skin care for many years, cleansing and moisturizing every morning and night, but when it comes to make-up, I’m a minimalist. If I’d joined the recent craze and posted a no make-up selfie on Facebook, it wouldn’t have looked very different from my usual day-to-day appearance. I feel naked without mascara and I often use a bit of blush to add some colour to my otherwise pale complexion but that’s about all unless I’m going somewhere special. Then, I might use a tinted moisturizer and add some eye shadow. When I was teaching school, I always used an under eye concealer but when I retired, the dark circles under my eyes magically disappeared and I quit using it! It was actually fun to follow the 12 step program and put on my full face yesterday and I was quite happy with the results!

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I was a little disappointed that not much was said about the effects that cancer and it’s treatment can have on the skin but I’ve since discovered that the Signature Steps guide that came with my kit contains some of that information. It also includes sections on body care, hair removal, eye care, oral care, nail care, nutrition and exercise, all topics that weren’t covered in the session.

I’ve always said that if I lost my hair to cancer (which I probably won’t), I wouldn’t bother with a wig. I had my head shaved as part of a cancer fundraiser several years ago and absolutely loved it. After the hair alternatives portion of yesterday’s workshop, however, I’m not so sure. There are so many cute wigs to choose from!

Already bald, as the result of chemotherapy, Tracy, like several of the other ladies, entered the room looking pale and apprehensive. As she applied her make-up, her face began to glow. It’s amazing what a difference something as simple as drawing eyebrows onto a hairless face can make! When it was time for someone to volunteer to model the wigs, Tracy raised her hand. As wig after wig was placed on her shiny head and we all oohed and aahed over how attractive she looked in several of them, she truly came to life!

What a blessing it was for each of us to leave a place where we’ve spent some of the most stressful moments of our lives with smiles plastered across our freshly made up faces! Thank you, CCTFA!

Cancer times two!

/ edebock / 31 Comments

Seven months to the day after being told that I have cancer, I heard that dreaded message all over again. I don’t just have cancer, I have two completely different kinds of cancer!

After waiting patiently for three weeks (okay, maybe I wasn’t all that patient), I finally received the results of my biopsy yesterday. The growth in my salivary gland is, indeed, another cancer. Though I don’t have any details yet, I’ve been told that it will be removed surgically. I don’t know when. I don’t know whether follow-up treatment will be required. In fact, the things I don’t know far outweigh the things I do.

We expected this journey to be a bumpy one and I knew that there would likely be a few unexpected curves in the road but I definitely wasn’t prepared for this one! I must admit that I’m beginning to feel a bit like Old Testament Job who endured catastrophe heaped upon catastrophe. Fortunately, I have a much better support system than he had! No one is suggesting that anything I have done or failed to do has brought these troubles upon me and no one, like Job’s wife, is suggesting that I “Curse God and die!” (Job 2:9) On the contrary, I am surrounded by friends and family upholding me in prayer and offering whatever support they can. I also need to remind myself that, in the end, God blessed Job abundantly. I’m still hanging on to the hem of his garment and praying that my story will end similarly!

In the meantime, I’m doing my best to keep on putting one foot in front of the other. There’s still laundry to do, meals to make and sunshine pouring in my window. My brain is a bit fuzzy; taking it’s time absorbing this latest blow, I guess. I found myself having to look up family phone numbers last night that I usually know as well as I know my own!

That brings me to yesterday’s good news. After being rushed to hospital in respiratory failure two weeks ago, my 90-year-old father was discharged yesterday. For the moment, things are calm on the parental front!

 

Where does my strength come from?

/ edebock / 12 Comments

In the six months since my cancer was diagnosed, (yes, it’s been six months already!) many of you have commented on my strength. While I’m both flattered and encouraged by your kind words, I feel I must give credit where credit is due.

The strength you speak of is not my own. I believe with all my heart that it comes from my relationship with the living God, creator of the universe. Oh, it’s true that tough times in the past have made me stronger and I’d be remiss not to mention that I have the support of a loving husband, family, friends and community but ultimately, if it were not for my relationship with God, I’d probably be a basket case by now!

I grew up in a church-going family but by the time I reached my late teens, I’d turned my back on the things I was taught and gone my own way. It wasn’t until I’d made a huge mess of my life that I heard something I’d never heard in all those years of Sunday School and church. I heard about a God who wanted to have a personal relationship with me and that made all the difference in the world! It wasn’t about a religion and following a bunch of old-fashioned rules. It was simply about someone who could take the mess I’d made out of my life and turn it into something beautiful. That’s where my strength comes from!

Does the fact that I have cancer mean that God has forgotten me or worse yet, that he doesn’t exist? Absolutely not! I have no idea why he has allowed this to happen but I am confident that the words of Jeremiah 29:11, “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future” are as true for me today as they were for the Jews who were living in exile in Babylon in the days of the prophet.

In addition to acknowledging the true source of my strength, I must also admit that I had an amazing example in my oldest daughter who died at the age of five following a 14 month battle with leukemia. She endured so much more than I have with incredible dignity and grace. Though her wee body was ravaged by chemotherapy and radiation, her faith never wavered! She certainly knew where her strength came from and her legacy lives on in those whose lives she touched. I am inspired to fight the fight as well as she did!

Ready to go home after an 8 weeks stay in hospital

Ready to go home after an 8 week stay in hospital

Riding the roller coaster again

/ edebock / 9 Comments

Cancer is definitely a roller coaster ride! Yesterday was up and today is back down again.

I had my second mIBG treatment on Friday. When Dr. MacEwan, nuclear medicine radioisotope specialist at the Cross, entered the room for our pretreatment consultation, he started by thanking me for contacting my MLA about the delay in getting government approval for the lutetium clinical trial. It made a big difference, he said. In fact, the trial has received approval and is up and running now but there are a few hoops left to jump through before they can begin taking on new patients like myself. In the meantime though, the clinic is working overtime treating those patients who were receiving lutetium before the government cut its funding.

Though lutetium might still be my better option, yesterday’s post treatment scan showed that the mIBG appears to be working. There was no indication that the cancer had grown or spread. That was great news and we rode it to the top of the roller coaster!

Then the phone rang this morning. It was Dr. MacEwan calling with the results of the PET scan that I had before Friday’s treatment. He had ordered the scan in hopes that it would shed some light on what it was that had previously been found in the left side of my face. Apparently, it revealed that there is a growth of some sort in my salivary gland. That didn’t come as a complete surprise to me as I’ve been feeling swelling and tenderness there for some time. Dr. MacEwan is quite confident that it isn’t related to my other tumours, however. He suggested that there are a number of possibilities, many of them benign. Though he did his best to reassure me that it likely isn’t anything to be too concerned about, I felt the roller coaster begin to descend again.

After discussing options, including simply keeping an eye on it, we agreed that a needle biopsy to determine exactly what we’re dealing with would be a good idea. I’ll return to the Cross for that in about a month’s time after I’ve had time to fully recuperate from Friday’s treatment and my body has rid itself of most of the radioactivity. I have a lot of confidence in Dr. MacEwan and I feel certain that he wouldn’t intentionally give me false hope so, though I’m not feeling at the top of the roller coaster anymore, I haven’t crashed either.

It’s an ordinary common variety head cold that has me feeling really down today! 😦

How am I doing?

/ edebock / 11 Comments

“How are you doing?”

I’m asked the question often and I really don’t know how to answer! The short answer is, “I’m feeling fine and able to live a normal life right now and for that I’m very thankful!”

I know there are some of you, however, who want the long answer. Other than a sensation in the left side of my face that doesn’t feel quite right, I really am feeling fine but I have no idea what’s happening on the inside. Not knowing whether the cancer is growing and spreading or if it’s been arrested by the treatment that I had in November is somewhat disconcerting but it’s the growth in my face that concerns me the most because we know that it wasn’t receptive to the mIBG.

I’ll be back in Edmonton on January 31 for more tests and another treatment so I hope to have more answers after that. Because I tolerated the last treatment so well, I don’t even have to stay in the lead lined room this time! Instead, I’ll be receiving my treatment as an outpatient. I’d feel more confident if I knew that it was going to be lutetium instead of mIBG though. That was the original plan but the government hasn’t given final approval to the clinical trial yet. Since I don’t know where the hold up is, I’ve written to both my MP and my MLA asking them to look into the matter. As I pointed out to them, it may only be paperwork to those who are dealing with it at the government level but it’s a matter of life and death to people like me! Both their offices immediately forwarded my concern to their respective health departments but I’ve heard nothing more!

In the meantime, I’m grateful that I can live a very normal life. With the exception of blood tests at the nearby hospital every second Friday and a Sandostatin injection here at home every 28 days, my schedule is much the same as it’s always been. I’ve suffered absolutely no ill effects from either the mIBG or the Sandostatin, my energy and appetite are unaffected and I’m sleeping well. I do suffer from bouts of anxiety but thankfully, they haven’t been too frequent. My biggest regret is not being able to take a role in our drama club’s upcoming production of Agatha Christie’s murder mystery, And Then There Were None, because the upcoming treatment will render me too radioactive to be in close contact with other people for the final two weeks of rehearsal.

I often find January a long and dull month but getting back on track physically has helped a lot. Over the past three weeks, I’ve walked 12 miles (almost 20 km) on the treadmill and since the weather has been unseasonably warm, we’ve also done some walking outside. With all the freezing and thawing, however, it’s pretty treacherous out there right now and the treadmill is a lot safer. I’m also back to three full weight lifting sets three times a week. After almost a year long hiatus, I started with what seemed like ridiculously small weights but I’ve already started increasing them. Sadly, there’s still a bulge around my middle and the best I can say for my weight is that it hasn’t continued to climb but I know that the exercise is contributing to my overall feeling of well-being and I’m determined to keep it up.

So, to those who’ve been asking, I hope this answers your questions and to those who’ve been praying for me, thank you so very much! I’m still hanging on to the hem of his garment and asking for a miracle!

What’s in your sponge?

/ edebock / Leave a comment

What does a dog do as soon as it comes out of the water? Why, it shakes, of course! It can’t help itself and if you happen to be standing nearby, you share in the blessing!

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I was reminded of that when I read my devotions this morning.

“Let’s say you have a bucket full of water and you soak a sponge in it. Later on you take the sponge, and in a room full of people, you swing the sponge around. What would the people be splashed with? The answer is obvious, water. What if the bucket is filled with milk, oil or soda pop? The people will be splashed with the substance in the bucket that saturated the sponge.”

The writer, Christian Sarmiento, went on to point out the spiritual application or principle behind his illustration. When life squeezes us or shakes us around, we, like the wet dog, will drench the people around us with whatever it is that we are filled with whether it be joy or bitterness, love or hate, acceptance or irritation.

Life isn’t easy and it can fill our sponges with all sorts of disagreeable things if we allow it to. I could choose to dwell on the hurts of the past or the unknowns of the future and spread gloom wherever I go or I can pray for grace and fill my sponge with hope.

“The fruit of the Spirit is love, joy, peace, patience, kindness, goodness, faithfulness, gentleness and self-contol.”  Galatians 5:22-23

These are the things that I want in my sponge! What’s in your sponge today?

Getting back on track

/ edebock / 9 Comments

When I was diagnosed with cancer at the end of August, it would have been easy to fall into a deep pit of anger. After all, I don’t smoke, I only indulge in an occasional glass of wine, I’ve never even experimented with street drugs, I eat a healthy diet and I exercise regularly. I’ve taken excellent care of my body, so why cancer? Why me? There are no answers to those questions. I don’t think there’s anything more that I could have done to prevent such a catastrophic diagnosis, but life’s not fair and cancer is no respecter of persons.

Fortunately, I managed not to wallow in anger, but for awhile I definitely let a “why bother” attitude take hold. Why bother exercising? Why bother watching my weight? Why not eat whatever I want? After all, I have cancer. I deserve a treat, don’t I? Now, every time I look in the mirror, I see an unwelcome “why bother” bulge around my middle and every time I zip up my jeans, “why bother” gets in the way.

In spite of the delicious food, I actually lost a few pounds while we were in China.  The amount of walking and stair climbing that we did on a daily basis more than made up for the extra calories I consumed. I was surprised that I didn’t gain the weight back as soon as we got home and after being diagnosed with cancer, I actually began to worry about that. I knew that if I had to have surgery or if treatments caused me lose my appetite, I didn’t have any extra weight to spare. That made it easy to get lazy about exercising and to start indulging in fattening foods. I kept up my morning exercise routine but when winter arrived, I quit walking and the weights and the treadmill gathered dust in the basement. Suddenly my weight started to climb again and it didn’t stop! By early December I was seven pounds heavier than I’d been just three months earlier!

Seven pounds isn’t a lot but it’s five percent of my present body weight and on my slight frame, it shows. Also, I realized that if I kept gaining at that rate, I’d put on 28 pounds in just one year! There’s no way I wanted that to happen! It was definitely time to do something about the “why bother” attitude, but with Christmas goodies staring me in the face, I decided not to make any drastic changes until after the New Year.

Now, with Christmas behind us, most of the goodies eaten and the family gone, it’s time to get back on track! Today I bid “why bother” good bye, dug out my virtual walk DVDs and got back on the treadmill. I only walked 1.2 miles (just under 2 kilometres) but it’s a start and it felt good. Before we left for China, I didn’t have time to finish my video course, The Secret Life of Words: English Words and Their Origins so, when I’m not enjoying scenic pathways around the world via DVD, I’ll be watching lectures while I walk.

When the little ones were here for Christmas, we had to hide the free weights to keep them from dropping them on their toes but I’ll be digging those out again next week. It’s been almost a year since the last time I lifted so I’ll have to start small but that’s okay. Cancer may have slowed me down for awhile but it hasn’t stopped me yet!