A little truth and a little common sense please!

When our daughter was suffering from leukemia in the early 1980s, we were told that if we simply boiled up some pine needles and fed her the resulting tea, she would be well. That was just one of many crazy cures that we were told about, so I expected to be inundated with similar tales when I was diagnosed with cancer two years ago. At first, I was pleasantly surprised not to be told about some magical potion or miracle fruit at every turn, but lately I’ve come to the end of my patience with all the nonsense being circulated through social media!

It absolutely astounds me how many cockamamie stories circulate on Facebook and are reposted by seemingly intelligent people who don’t bother to check the facts first. It’s so easy to do! Just plug a few key words into Snopes.com or TruthorFiction.com and voila! There you have it; the research, the facts, the truth!

These days, it’s the crazy cancer prevention and cancer cure stories that really burn me. Yesterday it was baking soda that would save my life! Really? If it was that easy, do you think there would still be thousands of people dying of cancer every day? According to Cancer Research UK, more than one person dies of cancer every four minutes in the UK alone! Would that be happening if the answer was sitting on the shelf in almost everyone’s kitchen? I don’t think so! With all the time and money that goes into medical research, does anyone really think that the cure for cancer is going to be found floating around on Facebook? Let’s use a little common sense!

Extraordinary claims require extraordinary evidence. YouTube videos and Facebook posts are most certainly not scientific evidence! Where are the clinical trials? Where are the published research papers? If only people would consider the source before choosing to repost something. If it doesn’t come from the Mayo Clinic or another reputable medical institution of that ilk, it probably isn’t true.

Of course, that brings me to my all time most loathed myth, the idea that governments, pharmaceutical companies and even charities are colluding to hide the cure for cancer because they make so much money from existing treatments. How can anyone actually believe that? There are so many ways to debunk that argument that I hardly know where to begin. First of all, it simply doesn’t make sense that pharmaceutical companies would want to suppress a potential cure. Finding a highly effective therapy would guarantee huge worldwide sales. Secondly, why wouldn’t doctors, who often prescribe less expensive generic drugs, use cheap treatments if they were shown to be effective in clinical trials? And then there’s perhaps the most obvious argument; cancer touches everyone. Even politicians, doctors and pharmaceutical executives get cancer. Their loved ones and colleagues die too. They are not exempt! Would they really withhold treatment from their own spouses, parents or children if they knew they could save their lives? Again, I think not!

Perhaps before reposting or passing on an unsubstantiated, too good to be true, miracle cure a person should ask themselves, what if one desperate cancer patient chooses to abandon conventional treatment and try this instead and what if it doesn’t work? Do I want to be responsible for that? Steve Jobs, co-founder of Apple Computer, had the same cancer that I have. He chose to ignore his doctors’ advice and sought out alternative treatments instead. By the time he discovered that they didn’t work and turned back to the doctors for help, it was too late. He was a highly intelligent man with enough money to be able to access the best of treatments available anywhere in the world and he might be alive today if he’d used a little common sense!

There ends my rant!

common_sense_cartoon_realitycheck060103-resized-600

Hope and a future!

It’s been awhile since I wrote an update about my battle with cancer which is, in itself, an indication that things have been going well. There really hasn’t been much to report which is a good thing! Yesterday, we sat down with one of my specialists to discuss the results of recent CT and PET scans. Though we weren’t expecting anything dire, I think we both walked out of his office feeling like a load had been lifted off our shoulders. Yes, the news was that good!

As many of you are aware, I have dealt with two completely separate and unrelated cancers over the past two years. The first good news was that there is absolutely no sign of the acinic cell cancer that was removed surgically and treated with radiation last summer. I have routine follow-up appointments with both the surgeon and the radiation oncologist next week, but I’m certain that they’re going to tell me that everything is fine.

We already knew that my primary neuroendocrine tumour, which is located in my colon, has been shrinking as a result of the radioisotope (Lutetium) treatments that I’ve been having. Yesterday we learned that the other four tumours, three on my liver and one in a lymph node, have not changed in size since diagnosis. That’s a glass half full / half empty kind of statement. While it would be nice to hear that they too are shrinking, the fact that they have not grown and that there are no new ones is actually very good news.

Another indication that the disease is stable, that my tumours are essentially dormant now, is hormone production. Neuroendocrine tumours (NETS) produce serotonin, a hormone that we all have in our bodies. Serotonin is sometimes referred to as one of the happiness hormones because a deficit may to lead to depression, but an excess secreted by neuroendocrine tumours results in carcinoid syndrome which, as in my case, results in symptoms that include abdominal cramping and diarrhea, skin flushing, and periods of rapid heart rate. It can also lead to heart disease and other complications. A 24 hour urine test is used to measure the amount of serotonin in the body. I don’t yet understand exactly what the numbers mean, but I was told yesterday that my level at diagnosis was 150. A year ago, it was down to 69 and now, it’s 42. Apparently, normal is around 40. That would indicate that my tumours are no longer actively producing serotonin which is definitely good news!

So what does all this mean for the future? There is no cure for NETS. Even if my tumours were to disappear completely which happens very rarely, I would not be considered cured, but I am now entering a maintenance phase. For the next two years, I will receive a Lutetium treatment every six months instead of every 9 to 12 weeks as has happened so far. Then, if things continue to go well, we’ll go to a treatment every nine months. Yesterday was the first time we were even told of that possibility!

“I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future.”  Jeremiah 29:11

Yesterday was definitely a day that gave us hope and a day that gave me greater confidence of a future here on this side of heaven! The battle isn’t over, in fact it never will be, but for now it’s getting easier and that’s enough for me!

Walking on water… sort of!

Last summer when we were camped at beautiful Porteau Cove with Matt, Robin and the boys, I saw something out on the water that I’d never seen before; a lone figure who appeared at first glance to be walking on the water! Can you see him in the early morning mist?

IMG_4196 - Version 2

I soon learned that he was stand up paddleboarding, a sport that combines surfing with kayaking or canoeing and that has become increasingly popular over the past ten years. Watching him brought back delightful memories of the styrofoam paddle board that my parents gave me when I learned to swim over 50 years ago. We lived on the waterfront in those days and I spent countless hours playing on that board. It was meant for lying on, of course, but I had to try kneeling and even standing on it. Kneeling wasn’t too great a challenge, but I never did manage to stand successfully. The board was simply too small and unstable for that, but splash after splash, I had fun trying!

When I saw the stand up paddleboarder at Porteau Cove, something new was immediately added to the bottom of my unwritten bucket list. I had no idea when or where it would happen, but I knew that I wanted to try this new sport. This week, at Barnabas, I had my chance and it was great! My first time out the water was very calm and the width of the board made balancing easy. It really did feel a bit like walking on water. Returning to the dock, however, I approached too quickly and took a spectacular spill! Fortunately, I managed not to hurt myself and was eager to try again another day. This time, there were small waves to contend with providing a bit more of a workout for my knees and core muscles. I managed to end my time on the water much more gracefully the second time around though and left determined to try the sport again. Fortunately, there are a number of places where I can rent a board when we’re back this way again.

IMG_5509 - Version 2   IMG_5527 - Version 2

Never too old to try something new, I hope!

Barnabas

Last Sunday afternoon, we left our son’s home in North Vancouver and headed for Gibsons, setting of the popular Canadian comedy-drama series, The Beachcombers, that ran from October 1972 to December 1990. There we climbed aboard the Kinbasket Queen and left the rest of the world behind! Our destination was a five day family retreat at Barnabas Landing, perched on a hillside on Keats Island overlooking Howe Sound.

IMG_5472

Taking it’s name from the New Testament character whose name means Son of Encouragement, Barnabas Family Ministries has been dedicated to strengthening, educating and encouraging families since 1986. Barnabas is sometimes referred to as a “thin place”, one of those wonderful places where the boundary between heaven and earth seems especially thin and we feel just a little closer to eternity. This past week was certainly like that, a time when we left the stresses and concerns of this world behind immersing ourselves in the beauty of the location, enjoying luxurious accommodations and savoury meals, and being renewed physically, mentally and spiritually.

Lamplighter's Cottage, our home away from home for the week

Lamplighter’s Cottage, our home away from home for the week

IMG_5473

Our days were full but energizing. Every morning after breakfast the children went off with their various age group leaders for a wide variety of activities while the adults attended sessions with our speaker. Afternoons were family activity time with many options to choose from. On Monday, Richard and I joined a group for a hike across the island to Bridgeman’s Bluff, one of the higher points on the island, where we enjoyed the spectacular view.

IMG_5485

Other afternoons were spent taking long walks along the rocky beach, doing crafts, enjoying a wide variety of waterfront activities and visiting the General Store for ice cream treats.

IMG_5521

IMG_5506 - Version 2

IMG_5531 - Version 2

Bedtime for the kids was a highlight for the young parents because it was taken care of by the staff! That’s right! While the adults attended another session with the speaker, staff tucked their little ones into bed and continued to look after them until 10:00 PM. After our sessions, the General Store was open again for the adults to enjoy a steamed milk or a cup of tea and a snack before heading back to their rooms and taking over their parental duties.

Our speaker for the week was leadership coach, Mark Warren, who specializes in helping people discover and experience their personal life callings. This was Matt and Robin’s third summer retreat at Barnabas and Mark was speaker at their first one. They enjoyed him so much that they specifically chose this week in order to hear him again and I can definitely see why. I found myself looking forward to each session. Learning about our core strengths and exploring our personality types, we came away with lots to consider and apply. We also learned about empathy and how to diagnose and master the stories in our heads about other people and how they affect communication and relationships. A dynamic Christian, Mark applied biblical principles to all that he taught us.

In addition to being a retreat centre, Barnabas is also a working farm and much of what we ate during the week came from its organic gardens. Everything was cooked from scratch and was delicious! With the exception of one formal, adult-only dinner, meals were served buffet style on the Orchard Terrace, a casual outdoor setting. Yes, we were well fed mentally, spiritually and physically!

IMG_5497